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Medical professionals are some of the most trusted experts out there. However, nobody’s perfect. Even the most skilled, sharp, and knowledgeable experts make mistakes from time to time. It’s only human. However, some mistakes can have extremely far-reaching and terrifying consequences for your health.
Some of the members of the r/AskReddit community spilled the tea about the worst medical misdiagnoses they have either experienced or heard about. We’ve collected their most powerful stories for you to read. Check them out below. Meanwhile, it’s a good reminder to always get a second (and maybe even a third or fourth…) professional’s opinion!

#1

Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories My 17 year old son had bloody stools for a few weeks. The doctor ran some tests and told him he was fine, to go home and eat Raisin Bran.

Turns out he had cancer in his colon (lymphoma), and it was very aggressive. He had to have emergency surgery that night. After the biopsy, the hospital called and said Good news! It's benign!

Three hours later, the doctor called and said Oops, sorry, actually it is cancer, and we have to do a colon resection, followed by a very aggressive chemotherapy regimen.

Freakin' roller coaster.

Edit to add: That was 15 years ago, and he's doing great! Complete remission :).

garenisfeeding , Jonathan Borba Report

Sue Denham
Community Member
1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

Very happy to read that last paragraph.

Beth Wheeler
Community Member
1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

I know you were all terrified and that is rare for a kid to have colon cancer. So happy that he is doing good now.

ZuriLovesYou
Community Member
1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

What kind of a doctor says go home and eat Raisin Bran? That just seems so weird me.

Bec
Community Member
1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

The kind who assumes a 17 year old can't have colon cancer, but I would have demanded some more testing, blood in your stool is definitely not a normal thing

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Griffy
Community Member
1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

My mom's brain tumor was misdiagnosed as a stroke. Neurologist was adamant it was a stroke. I wasn't so sure. I was thinking "I didn't think stroke lesions were fuzzy (on the MRI)". Several months later she goes in for a checkup and MRI. Doc later calls and says " I don't know how to tell you this, but we found a brain tumor". The cancer ultimately took my mom's life, but she kicked the statistics in the nurgles. I still think we had a legal case against the neurologist, but my dad decided at the time to not pursue it. I still miss my mom and it's been over 20 years.

Paul Donahue
Community Member
1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

Glad it all worked out in the end! I'll see myself out

Beachbum
Community Member
1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

So glad to ehar he is in remission!

CD King
Community Member
1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

Maybe it wasn’t cancer after all.

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    #2

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories I started gaining 20 pounds a month and multiple doctors told me I was eating too much. By the end I could barely walk to the kitchen to get food or even stand up. I was down to less than a thousand calories a day and still gaining weight. I was finally hospitalized and it was end stage liver disease.

    The first night I was in the hospital they stuck a huge needle in my abdomen and sucked out 10 liters of fluid. Over the next six months I lost 150 pounds of fluid 14 liters at a time once a week. I eventually had a liver transplant. I was not a drinker and there never was a diagnosis for why my liver failed.

    blippityblue72 , Andrea Piacquadio Report

    glowworm2
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I hate when doctors just assume it's "fat".

    aj
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And even IF the weight gain had been "just" fat, such a rapid increase with no change in eating or movement habits should ring biiiig alarm bells at every doctor..

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    J C
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    in order to gain 20 pounds per month you would really have to have increased your caloric intake dramatically. Thats crazy they assumed that without doing more testing.

    Brenda
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My BFF had Non-alcoholic Cirrhosis of the Liver. She died from it a few years ago. The first time she went to the hospital to have fluid removed, they took 22 liters. After that, it was normally 15 to 18 liters. Every week for 8 months until she passed. They didn't diagnose her until a week before she started treatment. Apparently, it's not an uncommon occurrence.

    BarfyCat
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My grandma died in her early 50s from this. She was a teetotaler and alcohol was not allowed in her home, so it was quite a shock!

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    Chewie Baron
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had a period of time when my liver just stopped working. Which was rather odd. Went yellow - like Simpsons yellow! - lost a shít ton of weight, plus a few other side effects. I had to change hospitals it was getting that bad. When being admitted to the new hospital, the specialist told me I was a “medical enigma”! Eventually after about six months, it started working again and my liver is now in two medical textbooks!

    María Hermida
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Years ago, one of my students a girl in her twenties) started to feel very tired. She was a healthy woman, so the doctor said she probably needed iron. A month later she collapsed in the street and was taken to hospital. Most of her pancreas had "disappeared". She didn't take alcohol, the pill or any medicines. The doctors still don't know what happened, although they suspect it was something self immune. She now has to carry a little device connected to her body which injects insulin all the time. For the rest of her life.

    Justin Tyme
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    That sounds like some serious medical malpractice. The doctors should have been able to determine just by looking at you that you had ascites and not weight gain from overeating.

    Mariaf
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Welcome to the wonderful world of having an illness while being a woman. Any lazy doctor can just go: you are pregnant, you are just eating too much, it's your hormones or it's all in your head.

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    Marno C.
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    There are some serious, widespread biases from doctors towards 'fat' people. Many illnesses/conditions that contribute to weight gain or look like weight gain or make someone resistant to weight loss get missed. The patient is told that they have to try harder to be 'less fat' and then things will resolve themselves. When the patient explains their diet and exercise habits, they are suspected of lying or some minor thing will be seized upon as what the patient is doing 'wrong.' (e.g. Oh, your biggest meal is dinner? Well, that's your problem. If you ate a light dinner and focused more on breakfast, the pounds would melt away. Oh, you put milk in your coffee? Well that explains it! You have to stop doing something so fattening._

    Simone
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My sister passed away from this, I hope you're doing well with your new liver ❤️

    Beth Wheeler
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Oh dear God in heaven this is nuts and sounds like a good case for malpractice.

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    #3

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories My sister is epileptic. Since her seizures also look like someone high on d***s our primary care doctor *and 7 separate neurologists* told my mom to send my sister to a d**g rehab to clean up, this is despite my mom videotaping the seizures. Neurologist #8 went “yep that’s a seizure let’s get you some meds” after 30 seconds of footage.

    gothiclg , RDNE Stock project Report

    Maria Maria
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I started having seizures at 19. I went to the family doctor and he asked: "it only happens around other people, right?" I later saw a neurologist who immediately knew it was epilepsy.

    detective miller's hat
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My niece started having seizures when she was like 11/12 years old. The first doctor's official diagnosis was "she's being dramatic."

    Amanda Young
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    OMG I could not even IMAGINE. My daughter is epileptic... I wouldn't know what to do with no answers.

    Emily Phillips
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have been telling my sons primary doctor for years that my non verbal autistic child has been having seizures. Doctor always said it was just his autism. Yet this past weekend I had to rush him to the hospital from having a seizure. His temperature had dropped down to 91.5 F due to his seizure Now he's on meds and has to have an mri done.

    Libstak
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    That's pathetic, incidentally one of the best Medicines for epileptic seizures is a marijuana derivative, so doubly effed up of them.

    Anxiety Panda
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This happened to us too. My son was having his first seizure. We didn't realize but knew he was very ill. ER kept asking what he took. We kept insisting nothing. Around and around until the seizure turned into a massive tonic clonic one. Only then did they jump into gear. Transferred to children's hospital and nearly immediate epilepsy diagnosis.

    Anna Drever
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Wouldn’t they do drūg tests to actually confirm she was on drūgs? What kind of medical professional doesn’t back up their insane theory?

    Skip62
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thank God you have the video footage.

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    Medical misdiagnosis is exactly what it says on the tin. It’s when a medical professional incorrectly diagnoses a condition or illness. It’s also considered a misdiagnosis when a doctor says that you’re fine when, in fact, you’re ill. And it happens far more frequently than you might think.

    Misdiagnoses lead to inaccurate treatment. In turn, this has massively negative effects. The patient’s proper treatment can get delayed, and their actual condition can worsen. Aside from the physical and financial repercussions, there’s the emotional and mental toll to account for when an individual’s life gets turned upside down by false information.

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    Imagine, just for a moment, if your doctor missed a cancerous tumor early on. Or if they told you that you have cancer when it was some other illness wreaking havoc on your body. Not only could this potentially mean that you might lose your life, but if you survive, it would be incredibly hard to trust medical professionals in the future.

    #4

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories My aunt was told she had dementia. Turns out she was on 4 different (prescribed by real doctors) opioids and just whacked out of her mind all day for years.

    Weened off opioids, no pain, no memory issues.

    It’s seriously f****d up.

    filteredaccess , Kindel Media Report

    arthbach
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is why it's important to have a pharmacist review your prescriptions every so often. They understand the combined effect of the medications far better than any doctor - that's the pharmacist's area of expertise.

    Roxy222uk
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I can't upvote this enough, so important. Also, dementia should not be considered until a host of other causes have been ruled out, including dehydration, chronic constipation, and infection.

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    Sue User
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My grandmother had high blood pressure. She seemed very confused, so everyone thought dementia. I took her blood pressure and it was very low. Looked at her meds and she was taking 3 different ones. Near as i can figure out, they were trying different ones and instead of stopping the previous and trying the next, she took them all. Dialed back and she stopped being " confused"

    Arkham Wohlfert
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I checked myself into a detox/rehab for a bad cycle of drinking at the same time that the pushback and trials were going on for doctors who were in on the massive opioid scam in the US. I met 4 old ladies, over as many weeks. I mean like sixties to one who was closer to 80 than 70 who were all hooked on heroin and whatever synthetic opioids they could get their hands on. They were all victims of their greedy doctors and pharma. It was really hard to see & get to know them. They weren't even told what was going on by their doctors. Just that they didn't need them anymore! They all expected to just go back to their normal routines. After the movement had won, and drs were correctly losing their licenses, they had been cut them cold turkey!! Now people saw them as d**g-addicts and bad people. How does an old middle class, lady who doesn't even swear find heroin? Just take her off her oxy without explanation and see how fast she finds it. Those Drs should be charged with a crime too.

    Beth Wheeler
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is one of the reasons they have cracked down on them. For instance now when you have surgery they will give you 15 or 20. I had surgery last month and can only take Tramadol for pain because I'm allergic to codiene and oxycodone. Out of the 15 pills given I only took 7 or 8. I took the last one the day of the post-op when the stitches came out because I knew that was gonna hurt.

    Susan Raskin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    In today's world, doctors use a program that quickly informs them of ALL opioids/benzo/controlled substances the patient has been prescribed by any doctor. Helps stop d**g seekers from getting multiple scripts from multiple doctors.

    Satya Bain
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is why I have refused pain meds for my chronic pain from fibromyalgia and Sjogren's. I've had it all my life. I'm now 62 and I manage my pain without mind-altering d***s.

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Your primary doc should be aware of all of the d***s you are taking and what they might do in combination. See a pharmacist if the doc doesn't seem tuned into your medication.

    Jude Laskowski
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Also, check your prescription before you leave the doc's office. I'm allergic to several meds, and my doc's P.A. wrote me a prescription for one of the meds for post-op pain. I found my doc and asked about this. I never saw that P.A. again.

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    #5

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Apparently my asthma was anxiety despite having been diagnosed asthmatic as a child. I "outgrew it" when we moved and I was "just out of shape and needed to try harder". Finally in my late 20s I told everyone (including the GP) to f**k off and saw an asthma specialist who humored me. She did an allergy skin test and a challenge to test for asthma. I'm allergic to 40-50 of the things they skin tested me for, 10+ of them really significantly and failed the breathing challenge.
    Anxiety. Yah- I was anxious I couldn't catch my breath and no one would believe me lol.

    321lynkainion123 , Annie Spratt Report

    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I 'outgrew' asthma too, I used to use a nebuliser most days. Then I started having breathing problems when running cross country about 5 years later, when I was about 9. I thought it asthma but my mum said it could be, though she did take me to the doctor. He diagnosed me with exercise induced asthma and prescribed ventolin.

    Lee Banks
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Feel ya. I was told for years that my constant bronchitis, sinus infections, and lethargy were due to being around smoke and an unhealthy lifestyle.(Was walking at least 15 miles a day, ate well, had friends) Finally got a full allergy panel. 59 of the 60 things! At least ten were 'highly severe', thirty were 'severe', and the rest 'moderate'. Not allergic to cod, though. Glad you found help!

    Hey!
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    When my parents sent me to an allergist, he stopped counting after 150 and told my mother I was allergic to everything. Forty years later and my GP is sending me to an allergist again because I have more. Cod is highly specific. I hope you like cod. I just ate some last week, a new recipe too.

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    Starbelly Eleven
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had a doctor who would continuously blame random things on "my asthma." I had never been diagnosed with asthma, had no symptoms of asthma, and I don't have asthma now. Came out of left field.

    Kaedyn Walsh
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Istg medical gaslighting to females is grotesque

    Connie Hirsch
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And one of the symptoms of not being able to get enough oxygen.. is anxiety.

    Tyranamar Seuss
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This one always worries me. I'm a psychiatrist and when the patients have physical symptoms like this I always worry it's something medical going on. I recommend PCP visits but no one goes.

    Shea Fujishima
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My childhood doctor refused to diagnose me with asthma, in spite of being up all night because I couldn't breathe living down, because I hadn't gone to the ER.

    KatSaidWhat
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have had one panic attack in my life (in May actually) and I can see how they might have misdiagnosed you because I was very much asthmatic in that moment.

    Caroline Fraser
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I’d been suffering shortness of breath and eventually went to A&E. After just a few very basic tests I was diagnosed with a ‘panic attack’. I’d been out of breath for weeks but that didn’t seem to matter. Eventually, because I was hypertensive, I had a CT scan and some respiratory tests and I was diagnosed with pulmonary stenosis and pneumonitis. Also found a fractured vertebrae I’d been walking around with for 7 months- just thought I was a wuss with a pulled muscle!

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    #6

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories I had the starting symptoms of tonsillitis. I knew it was this and I knew I was about to get so sick, I wouldn't be able to stay awake longer than 20 mins, let alone see the dr, so I went and asked for antibiotics. It's important to note that when I get tonsillitis, my entire body shuts down, all my glands come up, and I just sleep.

    So I go to the dr, and he does an examination. Says my throat is only a little red atm, and feels my abdomen and feels a lump and asks if it hurts when he pushes it. I say it hurts a little but more like it's sort of more uncomfortable. He sends me straight to the ER with a note.

    I'm in there for hours. My temp skyrockets to 42 degrees Celsius, I'm delirious, they are doing all these tests and I tell them it's tonsillitis. They don't believe me. They eventually think since the test came back inconclusive that I have appendicitis. The surgeon tells me he's the specialist, not me and this can't possibly be tonsillitis. They take my appendix. The surgeon then yells at me for having to come in at 9:30pm on a Tuesday night to take out a perfectly fine appendix. They then discover I do have tonsillitis

    TL;DR: my appendix was removed bc I had tonsillitis and no one listened to me.

    MissMurder8666 , cottonbro studio Report

    meeeeeeeeeeee
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    They can't just give out antibiotics because you ask for them though, you need to be already sick to get them not just feel something coming on

    Debby Keir
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Agree in general, but there are some wise people out there who have had the condition before and 'know' it's starting again. Thus, if the doc knows both the patient and the patient's history/knowledge (hey, it may be another doc!) then early antibiotics are actually helpful. Imagine having repeated urinary infections, and having to wait 3 days for the lab tests to come back before they ease your agony, and hopefully before the kidneys become infected and lead to permanent damage....

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    Bouche and Audi and Shyla, Oh My!
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I read a true story about a little girl named Alexandra who had cystic fibrosis. The book was written by her father after her death. When she was six or seven, her lung collapsed. It had happened before, and Alexandra knew immediately what was wrong. Her parents took her to the hospital, and her regular specialist was off that day. The person subbing refused to believe that a little girl could possibly know that her lung had collapsed. Even with her parents advocating for her, the doctor refused to consider it. That little girl had to suffer needless pain for over 24 hours because the doctor refused to listen.

    Alexia
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Oh, this reminds me of my own experience. Went to my GP with serious pain on my right knee. She diagnosed me with "tonsilitis localized on the knee" (I s**t you not) and gave me some pain killers. It got worse and worse, and I could barely walk. I got to an orthopedist who had me do an MRI, diagnosed me correctly with "multiple meniscus lesions" and performed an emergency arthroscopy. 100% fixed. Bless him.

    Colleen Glim
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    She diagnosed you with WHAT?!!! How the heLL did this woman graduate medical school?

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    Bewitched One
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Since you were so sure it was just tonsillitis, why didn’t you refuse the appendectomy?

    Papa
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I also had frequent tonsillitis, and had them removed in 1969. Do they not do that now?

    Red PANda (she/they/he/ze)
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    They do it a lot less frequently. Only if it is really necessary.

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    Winnie the Moo
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Why do they not take your tonsils out?

    arthbach
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm trying to work out why a doctor would prescribe antibiotics for tonsillitis. 70-85% of the time isn't viral, not bacterial, and antibiotics would not make a blind bit of difference.

    Marieke van Buytene
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I've had antibiotics for viral tonsillitis several times, because after the pustules open up, the bacteria in my mouth move in and have a party. So antibiotics do help.

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    Robin Roper
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Needed to have the tonsils removed.

    Lucky Hemlock
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    My ex-husband fell ill with a kidney stone, a really nasty one, but where it lodged was near his appendix and the doctor was certain it was appendicitis. It was the worst pain he'd ever felt. They removed his appendix, only to find it completely fine. Then they realized it was a kidney stone. Oddly enough, he recovered from the surgery, and the kidney stone never bothered him again, so he didn't really mind all that much about it. LOL

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    The AARP reports that according to the Society to Improve Diagnosis in Medicine, there are over 12 million diagnostic errors every day in the United States. A whopping third of them cause serious patient harm. It’s estimated by StatNews.com that the potential cost to the American healthcare system due to medical misdiagnoses can be as high as $100 billion per year.

    Meanwhile, a BMJ Quality and Safety study found something eerily similar about the frequency of these situations as well. “Extrapolating to all diseases (including non-‘Big Three’ dangerous disease categories), we estimated total serious harms annually in the USA to be 795,000 (plausible range 598,000–1,023,000). Sensitivity analyses using more conservative assumptions estimated 549,000 serious harms,” the report states.

    In other words, because of medical misdiagnoses, around 795,000 Americans become disabled or die. Every. Single. Year.

    #7

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories I was diagnosed with BPD and severe anxiety, along with psychogenic non-epileptic seizures (basically seizures caused by anxiety and stress). I was having multiple seizures every day and had one so bad I wound up in the hospital after I couldn’t stop seizing for 15 minutes. The doctors thought I was faking everything because of the BPD diagnosis until they did an EEG.

    Turns out I just have chronic high blood pressure, so high that it was giving me seizures. It’s been two years I’ve been on beta blockers and I haven’t had any attacks, and my BPD diagnosis was removed.

    threadbarefemur , RDNE Stock project Report

    LB
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This one is WILD

    Connie Hirsch
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    There are some pre-existing diagnoses (BPD or d**g-seeking behavior, for example) that will make the medical establishment blame =everything= on those conditions.

    Bewitched One
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Is really fun when you have both a bpd and addiction history

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    Susan Raskin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    terrifying. just another hysterical female looking for attention right?

    Emmy S.
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Ayo! I’ve got those seizures too!

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    People including docs and nurses are not very trusting of people with BPD and that makes it difficult to get help. What ever you say they figure you are just saying it for attention or whatever and their ears turn off. I am so glad you found a good doc who could pay attention to other things happening in your body and help you. Psychiatric symptoms are often caused by illness and not the other way around.

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    #8

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories I stepped in a hole in my yard and felt a "pop" and sharp pain in my foot. It went away after about 20 minutes. 3 days later, the pain came back, and progressively got worse over the next week until I could barely stand to walk. I went to see my doctor, he did the standard xrays and didn't see anything. Then he proceeded to tell me about a patient he'd seen 2 months earlier who had a similar pain in her foot. Upon examination, he determined that she had stepped on a sewing needle, punctured her foot, and developed an infection. Then he looked at me and said, "I'm pretty sure the same thing happened to you. You probably stepped on a needle and didn't know it. Here's a script for Keflex," and walked out. Before I go any further, let me make something clear. About 20 years prior to this, I had an anaphylactic reaction to Keflex and nearly died. It's in my chart in big bold red letters that I am not to be prescribed Keflex. So, I had to track him down, get him to change the script. Fast forward 2 weeks, after the round of antibiotics for this mysterious needle that attacks people's feet with no warning, I am in far worse pain than ever. I go back to see the doc, he says, "Well, the antibiotic just wasn't strong enough. Let me write you a script for Keflex,", and I just about lost my s**t with him. So, after a very terse conversation, I was off to the pharmacy for another 10 days of antibiotics. Fast forward another 2 weeks, pain is excruciating. Call the doc, he schedules me for an MRI to find the infection, as well as a bone scan to rule out a tumor (?). Bone scan comes back positive for a fractured bone in my foot. When compared to the first xray, it is obvious in both. So I went through 3 months of hell (first injury through recovery, boot, crutches, whole 9 yards) just because he had another patient at some point in his medical career who stepped on a needle and got an infection. The kicker is that if he had listened to what I told him during the first visit, that I had stepped in a hole and felt a pop and instant pain, this could have all been avoided.

    Sparky3200 , Henrik Pfitzenmaier Report

    Mrs Irish Mom
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I know alot of doctors are amazing at what they do but there are lazy doctors and they need to be told NO YOU ARE WRONG and stand your ground, something simular happened to me but i didnt let him tell me what i knew it wasnt

    Groundcontroltomajortom
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Arrogance can cloud the judgements of even the smartest person!

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    Tabitha
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Folks, please understand that you can FIRE your doctor and find another who will actually listen to you! You may have to do it a few times before you finally find the one who won’t just dismiss everything you tell them—-especially if you are a woman, which I suspect most of the people posting their stories here are.

    Lou Cam
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    In the US? Can't do that in the UK. You join a GP practice based on location (if you're outside their area they won't see you) and when you call for an appointment you get whomever is available. Don't like your doctor....tough.

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    Toothless Feline
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The part that ticks me off the most about this one is that the doctor TWICE tried to prescribe a d**g the patient was severely allergic to. As a former pharmacy tech, I can honestly say that doctors ignoring patient allergies is one of the most easily preventable healthcare mishaps.

    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My little brother got a broken leg once (I don't remember how, but he had osteoporosis) and was taken to the doctor. Doc said something along the lines of 'I don't think it's broken, but if it is it doesn't really matter anyway because he is already in a wheelchair'. Mum was furious and took him to another doctor who ordered scans and confirmed it was broken. We stopped seeing the first doctor after that.

    Big Chungus
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I am shocked sometimes why these people keep going back to some of these doctors who clearly don't care

    Julie Blaylock
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I’ve broken my ankles six times, 3 on each side. Fortunately all cracks but painful as hell! The first time-stepped in a hole I didn’t see-the x-ray tech said it wasn’t cracked. A couple of years later when I rolled the same ankle again I went to an orthopedic doctor. He looked at the x-ray and said, you’ve cracked this before! I said they told me it wasn’t. He said they were wrong. 🤦🏼‍♀️

    Beachbum
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    OMG! Doctors just need to take moer time and listen to their pateints! Where this idiot got you stepping on needle from you stepping in a hole is beyond me!

    Diane H
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Why do people go back to a DR they know can't even read their charts correctly?

    Lowrider 56
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My wife, we've been married 16 years now, had very bad teeth. It wasn't from lack of brushing. She is also tall and thin. Every time she went to a doctor they assumed she was an addict because of her appearance and said she was 'd**g seeking'. Neither one of us drinks or does d***s. No matter what she was seeing a doctor for, they always said she was looking for d***s.Apparently at one time a doctor had put that in her medical chart. It's frustrating as hell trying to explain that she doesn't do d***s. All because a doctor made an assumption based on her appearance. Also, she had very extensive dental treatment and all good now.

    MacintoshID
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have similar d**g allergies that I have to keep reminding an ER staff when I broke my leg after a fall on ice. They didn't believe I even broke my leg even though I was brought in by ambulance and every bump made me scream. Finally xrays were done and I not only fractured the tibia I broke it in 3 places. Surgery with metal placed to keep the bone in one piece was the next step. Fast forward 9 months and I am doing fine but with a nasty limp.

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    #9

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Flu symptoms for months on end after being a very healthy, very active child until this point.

    Thank god the nurse at the urgent care took one look at me and said "hey, what if we did a blood sugar test on this anemic, fruit scented, child-corpse?"

    My flu was actually type one diabetes and I was going into keto acidosis and was so far along my blood content now contained acetate. My blood was literally nail polish remover. I went into a 4 day mini coma, had my first NDE, and then woke up to a whole new universe where pixi Stix and grape juice were illegal.

    sylverkeller , Polina Tankilevitch Report

    Nikki138
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm not making light of this scenario but that last sentence made me lol, seriously.

    Tempest
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I love how the whole entry is written in such a humorous and lighthearted manner despite the seriousness of the situation.

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    goldenwood_cottage
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Back in the 70's I had a cousin that passed away because her dad didn't believe in diabetes, and found a naturopathic quack to treat her. At age 9 I didn't understand what happened, and it terrified me. As an older teenager someone explained it to me and I'm still angry when I think of it.

    Bewitched One
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    He should’ve been charged in her death. Medical neglect

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    Jaya
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    "fruit scented child corpse" is not something I was expecting to read today, lol

    Crystal M
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yes, when a person smells 'fruity' they are in ketoacidosis which can be fatal if not immediately treated.

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    Sunny Day
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My aunt was sick for 3-4 years & her doctor couldn't figure it out. She got so bad she was about 85 pounds, bedridden, and on hospice. She was diabetic. Doctor never tested for it in all those years. She lived to her late 70s, but maxed out 2 insurance policies with all the issues the untreated diabetes caused.

    Sylvia Baker
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    OP could be a comedy writer.... or a comedian

    Susan Raskin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    a smart, attentive nurse, not afraid to speak up, is your best defense and advocate in healthcare.

    Jennifer Brown
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had the same thing happen to me. I was ignored by my DR for 6 months...even left her office with a blood sugar level or 530!! When I finally got my sister who is a nurse to accompany me to the ER for the 4th time, she demanded they check my glucose levels and low and behold I was in Keto Acidosis and was admitted. 4 days in the hospital.

    Melinda Flick
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Not Type 1, but I had a neighbor who got gestational diabetes with her 3rd kid. She was an OB nurse, and had access to a fancy monitor, and found out that .... maple syrup did not move her bg numbers. The whole wheat pancakes, did, though! She said it was a real adventure learning what she could safely eat and what she had to avoid.

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    According to Professor David Newman-Toker, the director of neurology at the Johns Hopkins University School of Medicine, the most common misdiagnosed issues are ‘vascular events’ (e.g., stroke and heart attacks), as well as infections and cancer. He stated that around 30% of women are more likely to be misdiagnosed when presenting with stroke symptoms. Moreover, most misdiagnoses happen at the patient’s bedside.

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    It can also be very dangerous if you’re prescribed the wrong medication or the wrong dose for your condition.

    Have you or a loved one ever been misdiagnosed by your doctor? If you’re a medical professional, how do you ensure that misdiagnoses happen as rarely as possible? Feel free to share your thoughts and experiences in the comments.

    #10

    My best friend was misdiagnosed with IBS when she was 35. She had vague digestive symptoms that had started about a year before. She had a colonoscopy, an endoscopy, then another colonoscopy, all clear. Then she began to lose weight without trying, while her belly stayed bloated. She went to see an OBGYN, who said my friend was fine, just a little "fat" on her abdomen. The very next day her new GP sent her immediately to a gynocological oncologist. She had stage III ovarian cancer. It took about 18 months of GI complaints to get a correct diagnosis. By the grace of the gods and the flying spaghetti monster, she is a 20 + year cancer survivor. Turns out, she has Lynch Syndrome, a familial cancer disorder

    weird_sister_cc Report

    RAM31280
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Upvote for a fellow pastafarian.

    Dee Zee
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    By the grace of the Flying Spaghetti Monster is my new favorite phrase

    RAM31280
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    You have been touched by his noodley appendage.

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    Renee H.
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My landlord ( an RN) was told he had IBS again and again turned out he had pancreatic cancer and passed away Monday. Less than a year from proper diagnosis. Myself also an RN complained of terrible pain and was breaking ribs for no reason. Told I had an autoimmune disease. For 9 months the pain got worse until I went to the ER in November. I actually have stage 4 breast cancer with Mets to the bones, lymph. Told the doctors again and again it wasn't an autoimmune disease. My labs said so.

    Marissa D
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Flying spaghetti monster....lol love it

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yeah, it is not only the colon there in your abdomen. If you do not see anything weird in the colon, you look at the other things nearby. Sad to say though that with Lynch Syndrome, she will have to be keeping an eye on things all of her life to catch cancer early if it sprouts again. I assume she had a total hysterectomy and oophorectomy to remove the female sex organs so she does not have to think about those parts again. She is fortunate.

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    #11

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Was told I likely had leukemia by an OBGYN. In the gap between my hematology appointment, I went to an urgent care and had them redo my bloodwork. Turns out I was just dehydrated. 6 years later, still looking good.

    This was the same OBGYN that told me the cure to premature menopause was to get pregnant "as quickly as possible" instead of getting hormone therapy. I was 23 and (am still) a lesbian who isn't super interested in having biological children.

    RedHotCherryShrimp , Los Muertos Crew Report

    arthbach
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My goodness. I hope this is not a doctor you will ever see again.

    Jen Exer
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm a menopausal lesbian partnered to a transgendered man. Medical staff argue with me about doing pregnancy tests before surgical procedures because it's policy. I argue every time. They insist every time. I'm in the US. Seems illegal to require of me. (It's just a urine test, but it's the principle to me.)

    Hey!
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Wow, I'm glad we don't have this in Canada.

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    Beth Wheeler
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    You were lucky that an Urgent Care did the labs because most won't unless it's for chest pain. So glad that Dr was wrong about leukemia. If that same Dr knew you are gay and don't want kids, that was way out of line and I really hope you found another OB/GYN to go to.

    Queen Jackson.
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Pregnancy can’t ethically be a cure for anything and there’s no way she was ever taught that ever in school? Right? This has to be blatant misinformation.

    Elio
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It's super unethical but doctors tell women to try to get pregnant to treat endometriosis all the time.

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    Dawnieangel76
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had the misfortune of having 2 periods monthly for 20+ years. Heavy, painful, weakening...on top of already having Pernicious Anemia. I lost count of different gynes I went to and NOBODY was ever able to figure out how & why. I tried BC, ended up with HBP for 5 years. Tried an IUD, my body rejected it & had to be surgically removed. I had too many of them tell me "get pregnant, your body will restart" like I'm a goddamned computer. Thankfully I entered early menopause about 4 months ago (47) and all the hot flashes & mood swings are a piece of cake compared to the pain & bleeding out.

    Janice Sanz
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Wacko ob/gyn. Who SAYS that kind of s h I t??

    Susan Raskin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    this doc needs to be reported to the state medical board. what BS

    Vicki Perizzolo
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Same md I had years ago I think...insisted I was dehydrated, blood work showed blood at 5.7...anemia and dehydrated are not the same

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    !!! An OB-GYN who diagnoses leukemia!!! RUN AWAY!

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    #12

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Definitely not the craziest, but this happened to me. When I was 12, I would get horrible stomach aches every morning, and would spend a lot of time in between getting dropped off for school and first period hiding the bathroom or just sitting in a hallway waiting for it to subside. I was late to class so often that it was seen as behavioral, and my adhd/depression meds, both of which I was already on, just got upped. Those are both legit diagnosis for me, so I guess no one thought to look into it further.

    Turns out I have celiac disease and my body was just fighting for its life daily after my morning toaster strudel.

    z0mbie_boner , Polina Zimmerman Report

    Ariom Dahl
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Commiserations re the coeliac. I also have that but a totally gluten free diet has made my life good again. Best wishes for your GF future. We are fortunate nowadays to be able to get plenty of GF foods.

    arthbach
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Coeliac Disease can present with many, many different symptoms (although the one above is classic). It is a systemic disease and the effects can be felt in throughout the body. The average time from first symptoms to accurate diagnosis is 6-10 years. Yes, years. https://celiac.org/2016/08/19/20-things-you-might-not-know-about-celiac-disease/

    keyboardtek
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had constant stomach aches many mornings as a kid. Turns out I was lactose intolerant. But medical science had not yet discovered lactose intolerance yet. When I was an adult an alternative doctor told me to discontinue any dairy products. I also had bad acne from age 16 to 26. That alternative doctor had me quit all sugar, even fruits, and in three months my acne was cured.

    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    When my brother was a kid, he would get bouts of 'gastro', often one right after the other. The doctor (same one who missed my other brother's broken leg) kept saying it was gastro and thought we must have been sharing bath towels of something. It wasn't until he was about 15 that he had a colonoscopy and then was diagnosed with coeliac disease. After that my family had gene testing done and I found out I had one faulty gene and one not, which meant I may or may not get coeliacs in future. I lived with my brother in my mid 20s and ate a mostly gluten free diet because it was easier to just cook one meal for us, so I was only eating snacks with gluten in them. After I moved out I found I was reacting to things with gluten and assumed I was just intolerant, because symptoms were mild. They got worse over time until I was diagnosed as coeliac too.

    Diane H
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This was my daughter when she was a teen, only her joints also hurt like crazy. I took her to multiple Drs even to see if it was arthritis. Took years to figure out it was Celiac disease. No one suggested a simple allergy test.

    Brazen
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My son stopped breathing/turned blue in the middle of the night when he was 6 months old, and this was the reason why. It's scary when people aren't believed that this is a real thing.

    Laserleader
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    What were you feeding a 6 month old that had gluten in it? This sounds weird.

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    Vicki Perizzolo
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I found out I was lactose intolerant when I ran out if milk and didn't have my usual horrible 3 p.m. trip to the bathroom..at work.

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I only had IBS but it was bad enough that I stopped eating breakfast so I could avoid the "I need to use the toilet" routine. I went through junior and senior high school on tea only for breakfast.

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    #13

    All through high school and college, I had constant nose problems. They were diagnosed as sinus infections and allergies, so I was on every common allergy prescription out there. None of them ever seemed to make much of a difference, but that’s what the family doctor said.

    I moved to a new city and went to a new doctor for something unrelated. I mentioned the long history of allergies and he asked if I’d ever had a CT scan. First time that had ever been suggested to me. I had it done and it showed that I had a severely deviated septum. One side of my nose had basically closed in on itself, creating a great environment for infections and making it harder to breathe. From the way it had healed, the doctor thought it was likely due to a broken nose when I was a kid.

    I’d never knowingly broken my nose, but I’d had a bike accident when I was eight where I went over the handlebars and somehow got a cut on my nose in the process. I never quite figured out exactly how it got there or what it impacted, but was the only thing I could remember that involved my nose. There was no pain afterward or change in the exterior at all.

    One quick laparoscopic surgery and a couple days with a very sensitive nose and it was like night and day. Over a decade of sinus pain, headaches, struggling to breathe during school runs and getting heckled about being out of shape or just trying to get out of it, and turns out I was working with half a functioning nose the entire time.

    Second opinions are your friend.

    Sporkicide Report

    Hill Branda
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had a similar situation. At 15/16, I started getting horrible, blindly-painful sinus headaches. I was told to take Tylenol Sinus. Well, I had to take it nearly every day. I told doctor after doctor and they would just give me antibiotics for a sinus infection and send me home. This went on until I was in my 30s. My health insurance was c**p and wouldn't pay for a specialists. My mother told me she would send me to a specialist, as a gift, so I wouldn't have to worry about the cost (stupid American medical system). Turned out, I had broken my nose really badly when I was a toddler and somehow, no one noticed. One side was nearly totally blocked. I had to have surgery to correct it. For years, I had been told I was depressed, a hypochondriac, or an attention whore. Getting that fixed made a huge difference in my life.

    Mary Dodd
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I hate how the doctors blame the patient for their own misdiagnoses. Worse still, refuse to listen when the patient knows better.

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    Biofish23
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    From the time he was a newborn my son breathing issues, sniffling, snoring, never seems to breath through his nose well. Bring up to the doctor, she declares everything normal. As he gets older he just gets more and more congested and starts getting sinus headaches. Eventually get diagnoses with a dust allergy. Do everything we can to treat it. He still can't breath through his nose. Complain to doc, try new allergy med, repeat, repeat. We also got air filters and removed out carpeting. Age 12 we get a new doctor who sends him to an ENT. First ENT doesn't really examine him , but hears he snores and sends him for a sleep study. Yup, kid has sleep apnea. Follow up with different ENT. Says he has slightly enlarged tonsils and probably has enlarged adenoids. Goes and grabs a special fiber optic camera she can stick up his nose. Guess what his nasal passages are 95% blocked in the back by oversized adenoids. He needs surgery. Surgery he should have gotten as a toddler!

    Biofish23
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    He finally got the surgery, and now he can finally breath. But it still makes me mad that my kids spent the first 12 years of his life struggling to breathe when the diagnosis was so SIMPLE, if anyone had bothered to check.

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    Lee Banks
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had this surgery last year. Made my friend take me to the grocery store so I could smell everything. Congrats!

    Blue Bunny of Happiness
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yup, had a septoplasty for a massively deviated septum (probably genetic as my Dad and one of his sisters had it too). My allergies were soooo much better afterwards. Went from being on the strongest prescription antihistamines, nasal spray, saline nose washes and air filters in every room in the house to taking the odd over the counter antihistamine.

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Me too. One side was almost blocked due to genetics. When I was about 26, I finally had an operation to straighten the nose and chisel out a bigger airway. It really improved my life! We were meant to breathe through two sides of the nose!

    Kat
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Laparoscopic surgery means they look into your abdomen with scopes ... They can work in your abdomen with small instruments trough the trocart holes ... OP probably had a septoplasty

    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I wish mine (all the above symptoms) was a deviated septum or something else they could actually do anything about. Instead I have to use a steroid nasal spray twice a day and my sinuses are almost always blocked.

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    #14

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories My GP said I was probably just tired and diagnosed me with fatigue, during the next two year I lost the ability to walk and started shaking before I got diagnosed with Parkinson's.
    He thought it impossible to be my age and get it so it never crossed his mind.


    Edit: I had symptoms at 29 but diagnosed with Parkinson's at 33.

    Mateba6 , Klaus Nielsen Report

    Roxy222uk
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This GP had never heard of Michael J Fox?

    Robin DJW
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Apparently not. The age bracket/gender thing can get you. I insisted on getting checked for AAA when I was 45. Abdominal aortic aneurysm is most common in men over 65. My dad's was found when he was 55, and his stent failed at 62, so he died relatively young. I (F) insisted on getting checked at age 45. Yep, found one. 45F is anomalous for AAA, but... it happens.

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    R Dennis
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have a medical condition that affected me far earlier than the average - took seven years for a diagnosis. I explain it like this: Doctors have a checklist and when they hear hoofbeats, they are looking for horses. Occasionally they check for zebras. I was a unicorn. No one is looking for unicorns.

    🇳🇬 Asi Bassey 🇳🇬
    Community Member
    Premium
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Young-Onset Parkinson’s Disease (YOPD) is a thing. I just learned that.

    Connie Hirsch
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    29 is too damn young for Parkinson's. And it's usually the worst prognosis, too.

    Lee Banks
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    A friend was just diagnosed at 26. Good luck going forward.

    Vicki Perizzolo
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    A coworker of mine...older but it took 2 years and no end of b.s. Dr responses

    Earl Grey
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    New research is focusing on gut damage as a possible cause of Parkinson’s Disease: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2823250#google_vignette

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Always ask for a specialist consult if nothing improves after seeing the GP. Most of them cannot adequately diagnose complex disease.

    Steve Hall
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    There is a blood test for parkinsons, isn't there?

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    #15

    Every single thing that I have ever complained to doctors about have been because I was fat or faking it.

    Appropriate-Toe-1332 Report

    Matthew Currie
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My late sister, who was a bit on the fat side, had that problem. Long story short, the leukemia killed her.

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    Hey!
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    You must be a woman I'm guessing.

    Sophia Athene
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Best friend broke his back and there was a lot of nerve and muscle damage too. But a broken back at 33 means you are a chronic d**g abuser who's always begging or demanding more. God forbid he hurts worse as he aged and fights fibromyalgia. I've gone with him to a lot of his appts to keep him from being shut down. He's afraid he'll lose what little help he can if he presses or pushes to be heard. I've luckily been his voice on a few occasions, which has warranted me going as much as possible. B/c not only does he get little help, he has to show up every 3 months and pee in a cup for over ten years now. He hasn't failed a single d**g test and he's still taking the same controlled/scheduled meds at the same levels as almost ten years ago. But you talk back once about needing help during a crisis and get labeled an abuser and d**g seeker.

    BarfyCat
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This all changed for me when I found a primary care doc who is fat herself. Highly recommend!

    Ellinor
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Fat, Faking or Periods, the new favourite game of the Doctors !

    Historyharlot93
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I could go to an ER with my arm ripped off and they’d blame my weight somehow

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    Batwench
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Are me and OP situation twins?

    Melanie Filmer
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Spent 20 years from the age of 15 being told my pain was because I was fat. Found my maternal grandmothers death certificate (she died when my mum was 7) complications due to EDS. Googled what EDS was, spoke to genetic doctor who confirmed my pain was due to EDS!

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    #16

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Back in 2008 my dad was just “not feeling right” and hadn’t been for a long time. After two weeks of tests they told us he had aggressive Lymphoma and needed chemo urgently…and he’d be lucky to have another year.

    One of the doctors who had run some of these tests disagreed with his colleagues and refused to sign off on the chemo, this was on a Friday and they wanted my dad to start chemo the next Monday.

    Well the doctor who wouldn’t sign off was right, he ran some more tests and proved my Dad was just coeliac.

    16 years later he’s still with us living his best gluten free life!

    Lizzy_Tinker , Tima Miroshnichenko Report

    arthbach
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Living a gluten-free life is annoying, but utterly wonderful for Coeliacs. It's a glorious relief from near constant migraines, stomach/digestive problems, brain fog, suppressed immune system etc. Getting the diagnosis felt like bereavement, but seriously, it has given me my life back.

    Thom Serveaux
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Omg. I hate when people act like it isn't real. My life began when I gave up gluten. Thanks immune system...

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    Ordhaj
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I was sick for months and was finally diagnosed with leukemia. I lived in terror (my father died from leukemia) for months until I could see a specialist. Turns out I was just lactose intolerant...

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The reason why you should have a second opinion consultation for such a serious diagnosis.

    Mary Kelly
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    thank god for that insistent doctor

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    #17

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories My 96-year-old father fell down outside the house and ended up going to rehab center for physical therapy. My brother came down to stay with my mom. My father was assigned a social worker. Social worker said they would not release my 96-year-old father to my 82-year-old mother. They needed 24x7 live-in care or a nursing home because he was too weak to live on his own.

    The social worker says that from what my brother decribed, she has SEVERE dementia. She needs a cognative test and may need to be institutionalized in a locked down facility so she doesn't try to escape. So, my brother schedules a cognative test with her doctor. And we're now assuming my parents will be separated, which will just lead to a massive cognative decline and depression for both of them. I'm thinking they'll be dead within 6 months of this happening.

    I drive up to relieve my brother and he heads home. We both have a long conversation about how we're about to ruin our parents' lives over the next 3 weeks.

    3 weeks go by and we get to the point where they're discharging my dad, and the social worker asks my Mom "Can you help him get his shoes on and help him with his pants when he uses the bathroom if he asks?" She looks at the social worker and says, "I've been doing that for the last couple of years." And the social worker says "I have no concerns discharging him to her care." I'm sitting there going WTF?! I haven't slept in 3 weeks thinking I was kicking my parents out of their house and throwing them in a nursing home against their will and permanently separating them.

    My brother calls me up and starts flipping out about the social worker and how she gave both of us an ulcer for no good reason.

    And my mom passed her cognative test.

    Obviously, they can't continue to live long-term like this. And they know that. But now we have time to properly research solutions and go over it with them, rather than look for the first available situation.

    Now there's a home health aid coming in 2 days a week to check in on them. My dad is getting home physical therapy. They're together in their house, which is what they want.

    I am so f*****g mad at the social worker right now!

    plazman30 , SHVETS production Report

    arthbach
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    What a terrible thing to have to go through, but I'm glad they are establishing plans for the future. It's always better then path forward can be chosen rather than being forced along routes you don't want to take.

    Kipper
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I really worry about this for myself and my husband. We are in our late 70's, married for 56 years and the thought of being separated at the end terrifies us.

    Robin Roper
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Each person is different. My 97 year old father lives alone in his home. There are four daughters and between us, we make sure someone checks on him and to keep him company at least 6 days a week. We're going to keep this up for as long as we can.

    Shea Fujishima
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Hospital/rehab social workers are the worst. I will never trust one again after she used my confidences to build a case against my then BF coming home with me and trying to forcing him to go to his parents house.

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    You can always request a change of social worker and also a re-evaluation.

    Jude Laskowski
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Glad your parents are getting home health care. Sometimes the simplest way is the best.

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    #18

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories My friend's doctor kept telling him his headaches were just stress. I said try my doc and get a second opinion. worst case your out $30 co-pay.... my doc sends him for MRI or whatever and it turns out my friend had survived a brain aneurysm. apparently it was close to the "surface" of the brain and those are more survivable than those deeper down.

    monogreenforthewin , Anna Shvets Report

    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My mum had intense migraines for 3+ days and was told it was just a migraine and given paracetamol. She ended up going to the Emergency Department where, after 6+ hours of waiting, she got an MRI and they found she had had a TIA (minor stroke). She had had the same symptoms moths before but it didn't last as long. The neurologist said it was highly likely also a TIA.

    tee-lena
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had a stroke while I was in the MRI machine. It was on film. No one caught it for years. It took a headache specialist.

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    Maria Maria
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I know someone who went to the doctor because he had been having bloody stool for weeks. The doctor said it was "normal for a 40 year old to have bloody stool. He then went to see another doctor, and it turned out he had rectal cancer.

    Bewitched One
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yeah it’s not normal for anyone at any age to have bloody stools

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    Mary Kelly
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    i have never heard a story where a doctor says "it's just stress" and it turns out to be just stress...has anyone?

    EM
    Community Member
    1 year ago

    This comment has been deleted.

    #19

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Not me, but a friend of mine had a seizure at age 16 and had been taking keppra for like 15 years. She stopped seeing neuro since she hadn’t had a seizure in years; her PCP was prescribing the keppra."

    "She started having seizures again out of the blue with disorientation and speech so slurred her boss started accusing her of being high at work. She finally got in to see a neurologist, who did an EEG and said she was fine, but increased her meds just in case."

    "I urged her to get a 2nd opinion, as I was sure that sounded like a tumor with the sudden onset and breakthrough seizures with the increase in meds. Turns out, it was a tumor behind her ear."

    "Second neuro referred to a neurosurgeon and she had to have brain surgery. Since then, she’s had no seizures and hasn’t been on any seizure meds whatsoever.

    Fickle_pickle_2241 , cottonbro studio Report

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    #20

    Dr sat my mother and I in a room and told us that my adult mentally challenged brother "will not be leaving the hospital and we won't know what killed him until his brain is on the autopsy table" .

    10 + years and he is still using said brain. I told Dr it was the new meds they were trying, he disagreed , I insisted they switch him back, they did, he got better.

    Curlytomato Report

    Green Machine
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I wish this one had more details.

    glowworm2
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Found the details by clicking on the name under this one. It's unfortunately too long to put down here though.

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    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Meds can make a huge difference. Some just do not mix well with some people.

    #21

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Had a cough that was keeping my bunk mates up at night (military) and one of them demanded I go to sick call. I did and the LT said I would stop coughing when I wanted to and it was all in my head. I went back and told her what they said. She said to wait until after hours sick call (civilians) and go again. I did. It was pneumonia.

    Ready_Set_Go_123 , Gustavo Fring Report

    AtMostAFabulist
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    How is coughing all in your head?

    Kathrin Pukowsky
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    That's just a way to say "You're faking it" without outright saying so. If I understood correctly, the person during daytime was also military (Lieutenant?), and thought OP was just trying to get out of their shift (duty? Whatever it's called in the military), while the person afterhours was a civilian and actually examined them.

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    Melanie Filmer
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm on month 15 of my cough, had 4 chest xrays, referred to respiratory specialist. Sick of telling them there's nothing wrong with my breathing, it's my damn throat but no one will listen!

    Steve Hall
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Undiagnosed pneumonia has messed with my health several times, sometimes it just feels like a cold that won't go away.

    Diana Thomas
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    In the Navy and was told that recurring tonsillitis infections were all in my head. Problems ended after having them removed.

    Melinda Flick
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Pneumonia has such a specific cough, too. SO identifiable.

    S R Godwin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I am curious to know what it sounds like, if you can describe it please.

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    #22

    My left thumb was in constant pain, couldn't make a fist or grip a mug. Saw the nurse practitioner at our local place. She said it was just over-use, gave me a velcro wrist brace and told me to take ibruprofen.

    A few months later, it got bad again, went to the urgent care at the same facility, saw another NP. She sent me for a hand XRay and said it was DeQuarvain's Tenosynovitis, basically inflammation of the tendons around the thumb joint, and told me to follow up with a hand specialist. She gave me a new wrist brace, with a thumb stabalizer, and that really seemed to help more.

    Hand specialist, a week or so later, tells me there is literally nothing wrong, nothing he can see on the XRay to indicate DeQuarvain's. At worst, he said I have "maybe a little arthritis." He told me the brace should help if I want to keep wearing it, just don't over use it, take inbrofen. I wore the brace pretty regular when it got bad, tried to be mindful of it to avoid flare-ups, but it just sucked all the time lol.

    Fast forward a year or more, I broke my left arm/wrist in 4 places, needed surgery to pin it all back together. The surgeon tells me, "I noticed from your XRay, it looks like you've got DeQuarvain's Tenosynovitis too. I can release that while I'm in there."

    He did and my thumb has been fine ever since.

    Not really a crazy story but so frustrating!

    AmIonFire Report

    arthbach
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It makes sense to take the surgical route 'while I'm in there'. DeQuarvain Tenosynovitis often responds well to physiotherapy. Let the flare up subside, use anti-inflammatory, heat/ice, let the area rest, and then gently begin the exercises. Slowly build up, and maintain the exercises. It really does help for most people. If it doesn't, then ask about surgery.

    Upstaged75
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yeah, I had it and was able to resolve the symptoms with physical therapy and dry needling.

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    Robin Roper
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    De Quervain's tenosynovitis will put you on your knees it hurts so bad. After having my one son, I developed it in both my hands. After months of wearing splints while caring for a new born, getting steroid injections, and taking oral anti-inflammatory meds, I go the fix - both the right and left sheaths over the inflamed tendons were surgically "opened" so that the sheath is no longer rubbing against the inflamed tendon, no more pain. First thing out of the Hand Specialists mouth was "How old is your baby?" Turns out for women, it's fairly common after having a birth.

    Iseabail Munro
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I got misdiagnosed with dequarvain's years ago, it turned out I actually have fibromyalgia.

    tee-lena
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Which is oh so fun when your entire body of nerves goes nuts!

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    Lee Banks
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thanks for posting this! I'd forgotten the term I had surgery on my foot a few years ago. My doctor thought he was just going in for bone spurs, and I'm pretty sure the 'release' caught him off guard. "Surprise! You also had a Very case of Tenosynovitis."

    S R Godwin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Frustrating alright! You don't realise how often you use your thumbs in a day until there is something wrong and painful with one or both. Glad you had a happy ending.

    cryssH
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Problem is .. you use your hands all the time, for everything.

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    #23

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories My mom was misdiagnosed for 7 years with a chronic ear infection, 7 years, no tests on the fluid leaking out, 7 years, no ideas that maybe he was wrong, 7 years of him refusing to listen to my mom. It took a second opinion to find out it was a Cerebral spinal fluid leak behind her ear. She's lost all hearing on that side because it got so bad they had to use the bones in her ear to repair the leak


    Edit: don't worry I've put gravel in his gas tank once a year for the last 4 years. If he doesn't leave town this year I'm going to just burn the damn thing.

    namloocn , Karolina Kaboompics Report

    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had cerebral fluid leaking into my eye via an optic nerve pit (hole) on my retina. Thankfully it was picked up on the compulsory eye test when I started school. I had laser eye surgery to close it and that stopped meant my sight didn't get worse. If it wasn't picked up then, I probably would have gone blind.

    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Not to mention you could have gotten an infection in your spinal fluid and that would have been very bad.

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    Steve Hall
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    The bones in the inner ear are too small to use for repair of this problem, they probably used bone from behind the ear.

    Laura Lawson
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Why the HELL would you keep going to a doctor for 7 YEARS when they obviously aren't listening to you?!? I just don't get it!

    Jess Smith
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    american and that doc is who insurance will pay for? Honestly half the time something seems inexplainably stupid and it's related to medicine, it's in the US and it's cause of our fucĸed up healthcare system. Edit: It's not ALL the time that it's cause of our healthcare system...but it often is

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    Rebecca Joan
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    How does this happen? The cerebral fluid leak?

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    #24

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Being told that I'm too young to have the health issues that I legitimately have is so infuriating! I am 39 (40 tomorrow, Woop Woop!) and I just recently got my 'official' diagnosis for the arthritis that I've had since my early teens."

    "I can't tell you how many doctors told me that I have all the symptoms of osteoarthritis, but that just couldn't be right because of my age. I finally got a referral to a rheumatologist who listened and now my insurance company is refusing to pay for the medication they prescribed."

    "Last person I spoke with said I might have to get a second opinion due to my age. I swear, the more health issues you have, the harder it is to be taken seriously by medical professionals."

    "The amount of times my very real symptoms to several different issues have been blamed on 'anxiety' should be illegal, I swear!

    LalaThum , Thirdman Report

    Scotira
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    A friend of mine had excruciating abdominal pain for month couldn't keep food down up to the point where she dropped ~20kg and couldn't get her weight up bc the food didn't stay down. She had tons of examinations, went to several specialists, paid for an MRI (out of pocket bc the doc said there would nothing be found). No diagnose. The last doctor told her she had to see a psychiatrist for anxiety bc she was imagining the pain 🤬. In a last effort she insisted on a laparascopy. They operated on her for more than two hours. She has endomitriosis and her intestines were stuck together bc of the scar tissue from endo. Anxiety, sure, sure 🤬

    goldenwood_cottage
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Endo sucks so bad, and is hard to diagnose because it presents so many different ways. Doctors are sometimes to lazy or busy to listen and figure it out, so women suffer. I suffered for years with it - finally the pain receded with menopause, and was diagnosed in retrospect after loosing 15 years to pain.

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    and_a_touch_of_the_’tism
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I got diagnosed with arthritis when I was ELEVEN. Screw those doctors and anyone else who says you have to be old to have it.

    Bewitched One
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thankful I have a doctor that listened to me. I was in my early 20s when they first tested me for rheumatoid arthritis because no other diagnoses fit. Thankfully that wasn’t it either. But really sucks to still have zero answers to my chronic ailments

    Kirsten Kerkhof
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    At 41 I had a life threatening GI complaint that mostly happens to very old people. Guess who got told it was ‘just my period’ for 5 years? Yep. Finally threw a tantrum, got seen by a very miffed specialist, and then got the surgery I should have had 5 years previously.

    Lou Cam
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    I got told my eosinophillic oesophagitis was anxiety for 15 years. Got to the point where I couldn't swallow solid food and had to blend it all down. Lost 30lbs and people were worried about me. Eventually got a private endoscope. We can have private in the UK if you can afford insurance or employer provides it. I was diagnosed but the insurer then declined to pay to treat it so went back to the NHS. Saw same doc that refused to help or investigate previously and felt smug giving him the diagnosis letter. No apology from him or acknowledgement he put me through c**p for years but at least I can eat again.

    Susy Hammond
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had a friend who was nearly paralyzed by arthritis at the age of 12. My ex-husband had arthritis, diagnosed at 15.

    Bored -
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    So far everything I've seen seems to be caused by anxiety...

    Satya Bain
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have asked my insurance on more than one occasion to speak with the physician they have on staff as my second opinion. I'm 3rd generation Irish-American. The language is strong. Didn't get it covered but I felt better mentally after unloading on them. EDIT: No one is too young for arthritis, cancer, whatever.

    Melinda Flick
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The 'doctors' never heard of juvenile rheumatoid arthritis? FFS!

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    #25

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories My dear friend was told for months it was long Covid. It was cancer, she died 6 months later.

    evmeowmeow , Alex Green Report

    Scotira
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is THE ONE thing regarding the "handling" of the COVID pandemic that probably will get my blood to boil indefinitely. So many early stage cancer symptoms were (sometimes willfully) overlooked bc they were attributed to a COVID infection and the patients were not really looked at by doctors. "You don't have to come in, that's COVID. Just quarantine." We lost so many cancer patients because of that and it makes me so fracking mad 🤬🤬. So many could have been saved in the early stages of cancer that now are terminally ill. And oc none will take responsability for that and none will investigate how high those numbers are. 🤬 Edit: and no, not only in the US but everywhere (in my case Switzerland)! How do I know? Bc I treat cancer patients and that is what I deal with every day.

    Nina
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Also, a lot of doctors refuse to look any further when they hear you have long covid, even there are meds available for a part of your symptoms.

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    Steve Nelson
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Good friend of mine had Hodgkins when the doctor said it was long Covid. By the time they figured it out it was too late. Hodgkins is very treatable.

    Satya Bain
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Mom has long covid. Short compared to SOOO many others. They tested her for everything including different cancers. She "simply" has long covid. She is recovering slowly because she's 88 but it was devastating for her because she has never been sick in her life. Ever. Even taking care of 5 kids who brought everything home from school, now grandchildren and greatgrands who are walking petri dishes. Covid sucks but other things cannot be ruled out just for the one positive diagnosis. I'm sorry for your loss due to medical stupidity. It should not have happened.

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    #26

    My husband was diagnosed with ‘substance abuse disorder’ when his spinal cord in his neck was literally crushed and he was nearly paralyzed. He wasn’t even prescribed narcotics. He just asked for an MRI. He went on to need an 8 hour neurosurgery.

    ScaredVacation33 Report

    Beth Wheeler
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    YIKES!!! That is super scary.

    Barbara Baldwin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Me, too! Was almost paralyzed from the chest down a year later. My Dr kept telling me I'm faking it.. Even gave my head a quick jerking motion to prove I was faking it. A year later they had to fuse three cervical vertebrae because it was turning my spinal cord into an hour glass shape

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    Sue User
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    My ex had spine surgery. He did not like to take the meds. One night we started with paracetemol, then tramadol, then oxycodon. Still in severe pain. Refused to take more opiates. Went to ER, he was in so much pain he was lying on the floor. Doctor cane in and said: You must get up. Him: I cant, i am in too much pain. Doc: well , i am not giving you anything for pain. I wanted to slug that doctor.

    Sophia Athene
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I know that kind of doctor. Witnessed it for my BFF.

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    #27

    “You’re a d**g seeker”

    Nah, just ovarian torsion 🤷🏻‍♀️.

    thisisallme Report

    Momma Jess
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Years ago a nurse my sister worked with on a Med/Surg floor was having severe pain suddenly and could barely move, and they took her down to ER. She then overheard the on call doctor complaining about the patient being a d**g seeker, and she ripped him up one side and down the other so fast his head was spinning. She hurt her back helping patients, just to have a doctor not want to help a patient, and she let him have it.

    Beth Wheeler
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Gotta love it when a nurse knows and let's the Dr have it. Or when a nurse refuses an order because they know better. I'm not a nurse but a medical scheduler for 25 years and 1 time when I worked in MRI a lady brought her baby in for a scan and his breathing didn't sound right so I went to the nurse and told her. She took them in a room and it turned out the baby had vascular ring which means blood vessels are around the trachea and you can't do regular sedation on them, they have to go under anesthesia. A couple of weeks later a Resident called and wanted to scan a kid with vascular ring and I tell him I can't do it because it's a safety issue which should made alarm m bells clang in his head. I ended up going to the Radiologist who told him if we sedate vascular ring we will kill a kid, has to be anesthesia. I will not refuse to do something w/o a damn good reason. Called my boss & she was good with it.

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    BarfyCat
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    When my gallbladder exploded, even after this was fully diagnosed, I had to beg for pain relief. I think my husband's presence & advocacy was the only reason they gave it to me.

    Sophia Athene
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I go with my BFF as an advocate but he's afraid at times to push for what he needs or let me do it b/c his doctor threatened to drop him if he pushes any more. That's it. If he pushes any more. Outside of that doc, I get pushy if need be.

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    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had this at the start of last year. I thought it was period pain, though I didn't usually get pain like that. Ended up going to hospital, the pain just getting worse. They thought it was appendicitis or kidney stones to start with but CT showed a larger mass. Turned out it was a 10x10cm cyst and ovarian torsion. They removed the cyst and turned the ovary around the next night and I was fine, but it was scary for a while there. I've never felt such bad pain, so I'm glad they listened and began prescribing d***s right away, although those didn't kick in for a few hours.

    Wendy Neumeyer
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I went to the er suffering from pains radiating out from a particular point in my left arm. The intern doing my preliminaries accused me of d**g-seeking. I laughed and said, if I wanted d***s I could be a lot more creative than a heart attack, they don't give pain killers and such for a heart attack! The attending physician marched him back into the room about 10 minutes later, watching with a deep scowl as the young man uttered an obviously forced apology, stating my enzymes, etc. sĥowed I had 7 recent events.

    Lauren Caswell
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yep. same here: was just an enormous arterial clot blocking my bowels

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    #28

    Deployed on an aircraft carrier and a guy in my squadron said his arm was feeling weaker than the other so he went to medical and they said he just needed more electrolytes and gave him a gatoraid. The next day in port it had gotten so bad he went to the hospital in England and they told him he had had a stroke.

    PooleBoy_Q Report

    Chewie Baron
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thumbs up for the NHS.

    rorschach-penguin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    ...sure. How many of these other stories happened on the NHS?

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    shankShaw deReemer
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My 48 yo brother was in the middle of a heartattack in the ER of a hospital. Idiot "doctor" said he had a pinched nerve. Sent him home after an xray with pain meds. My mom found him dead the next morning in his bed.

    #29

    I went to a GI when I was having severe abdominal pain that made me feel like I was having a heart attack, couldn’t breathe, just absolutely miserable."

    "He didn’t want to do an ultrasound because he thought it was acid reflux. Turns out I had a gallstones."

    "You have to advocate for yourself. Some doctors don’t listen.

    Just_Dont88 Report

    Kalikima
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    When I was 11 I started getting horrible gas pains.. it would wake me up at night, or I'd get them late in the evening. My grandma would treat me with reflexology and massage, but it would never really help. As I got older, it would become more frequent, and nothing seemed to help. When I was 14, on the way home from a family vacation, I got the worst attack yet, and finally my mom was convinced to take me to the ER. They did an ultrasound, and it turns out it was my gallbladder! It was so full, and huge, that they admitted me that night, and did surgery the next morning.

    Beth Wheeler
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yep and gallbladder can mimic a heart attack

    cadena kuhn
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Same. If the nurses friend hadn't just had the same issue who knows how long it would have taken them to catch it

    Vicki Perizzolo
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Farewell nasty ol gallbladder..I don't miss u

    Jennifer Brown
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Gallstones feel like someone is twisting a knife in your lungs

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    #30

    Diagnosed with depression and anxiety for decades, and at one point, bipolar. Just another female 80s baby with adhd (diagnosed at 40🤦‍♀️).

    Solid_Preparation_89 Report

    Ariel Andersen
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Unfortunately, lots of women with ADHD were misdiagnosed with bipolar or BPD

    Valerie
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Just flash backs to when they just diagnosed women with hysteria

    Summer S
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Everyone thought I was bad at school and lazy. Was diagnosed with ADHD at 18

    Anne Home
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Born '71 and diagnosed in '21

    Tropical Tarot
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Born in '69 and diagnosed in :24. On meds and doing great. Just talked to my wife about stopping my depression meds and going to discuss with dr next week

    Bex
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Born in 1978 and just diagnosed this year (2024) at 46.

    Foxglove🇮🇪
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My friend was diagnosed with bipolar, on meds that didn't do the job, another doctor realised she has premenstrual dysphoria disorder. Different meds, whole better result.

    Jennifer Brown
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I was mis diagnosed as having depression in 1990. On meds for 11 years. Not completely happy and my life still out of control sometimes. After my 2nd suicide attempt in 2003 my NEW dr finally diagnose me with BPD and I have been stable ever since.

    Laserleader
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Was diagnosed ADHD at 14, refused medications, still had major bipolar depression and suicidal tendencies. I still have ADHD, but the depression got under control after 10 years and was real, and caused by my parents, and forcing myself to be social when I am an extreme introvert.

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    #31

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Sent home 3 times after Xrays with a cracked C5 vertebrae. Treated like a d**g seeker. 3 months of excruciating pain before a neurosurgeon found it on an MRI. C4-C5 Fusion.

    CLE-Mosh , Anna Shvets Report

    Sue User
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    See my comment above. Ex had surgery C4-C5 , spinal stenosis. After surgery, he had complications and pain. Went to ER and he was treated as a d**g seeker despite having a fresh 5 inch scar on his neck.

    Bored Sailor
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I also have Cervical Stenosis, C5, C6 & C7 fused now. Two weeks before my neck surgery I had oral surgery. So to get the pain meds filled after oral surgery I had to buy Narcan to be safe. Never been a d**g user and no reason for them to think I would become one and I never used them or all my pain meds.

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    #32

    I was diagnosed with depression, anxiety, social phobia, borderline personality disorder, and OCD before finding out it's autism.

    olioleander Report

    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The problem here is that the symptoms of these overlap a lot, so it's not an easy diagnosis to make, especially if you are female because it presents differently.

    Andrea
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I am also on the spectrum but it comes with depression and anxiety for me. I also have an ADHD diagnosis, so my brain is in a constant battle.

    Tyranamar Seuss
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    These diagnoses are not mutually exclusive.

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    #33

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories When I was in the Marines & in combat training at Camp LeJeune in North Carolina, shortly after basic training, I started noticing a pain in one of my feet. I was in a class at the time and it progressively got worse as that class dragged on, and I mentioned it to a guy sitting next to me after he noticed me squirming around like I was uncomfortable. He happened to glance down and said, "Oh my god, dude...look at your foot." It was starting to swell so much that you could actually see it through the jungle boots I was wearing.

    I went to a Corpsman (medic) to get it checked out and it was so swollen by then that they had to cut the boot off, and I guess because my foot had swelled up so much the skin broke, but the wounds from where the skin broke looked like a snake bite. So the initial diagnosis made by the medic, was that I had been bitten by a venomous snake.

    This is like 45 minutes to an hour after I first noticed pain, so the whole time the humvee was taking me back to a hospital (we were out in the field at the time), which felt like an eternity even though it was racing at high speed on these dirt roads, I was thinking I was definitely going to die.

    Fortunately at the hospital it was diagnosed as cellulitis (a bacterial infection), which can be potentially serious too, but it felt like good news compared to a venomous snake bite. I probably got it from a blister from one of the many humps (forced marches) we were doing, later getting exposed to swamp water.

    Pixelated_Penguin808 , Pixabay Report

    FoxEcoLimaIndiaCharlieIndiAlfa
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Cellulitis is far too common in boot camp. I was fortunate enough to not get any seriously painful blisters, or Cellulitis. Though so many Marines during boot camp, then combat training and MOS school had something. Don't get me wrong, I def got blisters and whatnot but I always treated them properly, with mole skin, frequent sock changes, I tried to keep them dry and from getting any worse. Most aren't used to wearing boots constantly and marching in different environments/climates. It can take your body some time to adjust.

    🇳🇬 Asi Bassey 🇳🇬
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Snake bites and cellulitis can present similarly, and may actually even coexist. So an initial diagnosis of snake bite wasn’t far-fetched. The only part I am trying to understand is how you can make such a diagnosis without an actual history of being bitten by a snake, except the victim has peripheral neuropathy.

    BrownEyedPanda
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had to deal with cellulitis during chemo. It didn't help that I was also on a steroid at the time, resulting in a lot of fluid retention, which caused my leg to leak lymph. The antibiotic took care of the cellulitis, but my leg still leaked until I stopped the steroid.

    MaggieMay85
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    In basic training in South Carolina I got an infected blister, felt like I broke my foot.

    S R Godwin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My father fought in the army in WW2. I remember him telling me that all the soldiers had to have lessons on how to care for their feet, importance of hygiene etc. I wonder if they still do that (UK).

    Hey!
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My goodness, just saw some pictures; it's horrifying.

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    #34

    Got bit by a tick the size of a pin head. Started blistering in a weird way. Pretty sure it was Lyme's.

    Went to urgent care. "we'll do a test for Lyme's to calm you down, but it's shingles" (I was 31. Not impossible but highly unlikely)

    Lyme's test came back negative the same day the area around the bite mark started to form a bullseye.

    Drove myself to the smaller ER further away. Nurse walks in. Sees me. Sits down and goes "so we'll wait for the doctor for the official diagnosis. But you're going to be in for a world of sucky antibiotics"

    So yes it was Lyme's. I saw the tick and got it off me before it was able to spread over my entire body, allegedly. Remember folks! If you find a small tick on you, save it so they can test it for diseases!

    Ciniya Report

    Brian Hawley
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It’s Lyme disease, not Lyme’s. It’s named after Lyme in Connecticut, not a guy called Lyme.

    Mere Cat
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The antibody test is almost certainly negative if it's taken soon after a tick bite, it takes like 3 weeks to turn positive. I am getting so angry reading these stories and lack of competence from medical staff!

    Auntriarch
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I know! I bet if you took the tick in with the, some of these quacks would still get it wrong

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    Robin Roper
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My son will soon be in his 3rd year of treatment for chronic tick disease. Insurance doesn't cover any of the costs because the CDC (US) doesn't believe chronic tick diseases exists. We've now diagnosed the 4th person on our rural street - no one had the bullseye rash. It exists alright and will ruin your life.

    [>.<]/
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    In The Netherlands you don't have to save the tick or wait for bulls eyes to form. If a tick was attached longer than 24 hours, you get pre-emptive antibiotocs. Just two tablets and you're good to go.

    Matthew Currie
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Nowadays it's become so common in some places that many doctors will prescribe a short dose of antibiotics without the test, if the tick has been in long enough, and a longer dose if there's evidence of an infection (look for a target-like irritation). The tests are not that reliable, and often come back negative, but once you've had it they may come back positive at the wrong time too. As I understand it, it takes a while for a tick to pass the infection, so the faster you get it out the better. If you're spending a lot of time outdoors in tick country you should do a careful check every day. If you live in a Lyme-prone area (like New England) you'd do well to look up the full info on symptoms and the like,

    Al Padilla
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And then treat it? What's the antibiotic dose for a tick?

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    #35

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories My, thankfully slow growing, brain cancer was 'pre-diabetes' and 'kid needs glasses'.

    RickyTheRaccoon , cottonbro studio Report

    Hey!
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Wow, there's a whole lot of difference between the three.

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    #36

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories Not sure if this counts, but… No one caught the deep vein thrombosis in my right calf, despite a couple of Doppler scans, and having passed out at work. Doctor said it was cellulitis. Doctor even admitted me to the hospital and put me on heavy duty antibiotics the next day. While in the hospital, started having chest pains and my heart pounded just walking to the bathroom. They hooked me up and monitors my heart; nothing wrong. Hospitalist releases me the next morning, even though I know something is wrong. Get home, and I have to rest going up the flight of stairs at my house. Two days later, at my younger son’s soccer game, I pass out twice. Rushed to the ER — turns out I had two huge blood clots on my lungs (pulmonary emboli). Put me on mega clot-busting d***s and I stayed in the hospital for seven days. I have a genetic mutation that predisposes me to blood clots, and I was on birth control pills - perfect storm. Needless to say, I’m off birth control and on blood thinners forever.

    piemom9397 , Towfiqu barbhuiya Report

    Elisabet Larsen
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    How can doctors keep overlooking L.E. in women on birth control? My doctor was convinced mine was cat allergy when I was 29. I had 3 clots in my lungs. Ended up a week in the hospital. I still have cats. And no issues 17 years later. No meds either.

    Rayne OfSalt
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    A lot of doctors still operate on the theory that women are just fragile, hysterical creatures by nature and that there's never anything wrong with them that a bit of bedrest can't fix.

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    Mary Kelly
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    the ending came as a complete shocker to me as the picture is of a dude!

    Legendbird
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Good golly. From House, apparently that's REALLY painful.

    Upstaged75
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Over the years I've found that most Hospitalists are the absolute worst doctors.

    🇳🇬 Asi Bassey 🇳🇬
    Community Member
    Premium
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Two things I find quite worrying: 1. Not one but two dopplers missed a DVT 2. Someone did not pick up ECG abnormalities consistent with a PE

    Elisabet Larsen
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    They used a bloodtest to confirm their suspicion in my case. Something called D-dimer in dansh gets elevated.

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    Xenia Harley
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My friend's daughter's friend had a stroke at 18-19. Massive one. She was on birth control pills!

    Caitlin
    Community Member
    11 months ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The number of young, healthy women who have blood clots and strokes while on birth control is terrifying.

    Diana Thomas
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Ditto. First PE episode during the start of Covid-19. May have triggered the heterozygous gene mutation I hadn't known about. On blood thinners for life now.

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    #37

    For years, doctors and teachers told me I was subconsciously faking sick because of was afraid of school. I had an immunodeficiency.

    TheSilviShow Report

    agermanhome
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    ...wheat? I said: I don't have celiac disease, it has been tested. She said I should try it anyway. I am 48 now, so this was 19 years ago . I have not had one Bronchitis during this time (okay, did have pneumonia once) and have 1-2 only colds per year, usually short and harmless.

    Laserleader
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Immunodeficiency is a side effect of all kinds of things. For a diabetic it takes longer to heal (for me 3 weeks for blood sugars to get to normal after a cold), and other factors like poor hormone balances can also increase healing time. I still wear a mask, and sanitize after touching a public surface most days... and people act like I'm a hypochondriac.

    Angie M
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I’ve been symptomatic for 4 separate primary immunodeficiencies since birth but not severely. As I got older the chronic fatigue kicked in around 10 years old. Everyone around me convinced me I was lazy and making myself sick. Even the military of course. I was able to cope until I was about 26. The military stated testing me for HIV almost quarterly. I put up with that from doctors and everyone until I got so sick my PCM was going to admit me for having k-pneumonia, MRSA in my kidneys, and sinus/ear infections at the same time. I got fed up and googled my s**t. I found out in very short order what was wrong with me. I went to my PCM and asked to be tested for primary immunodeficiencies. About 20 tubes later, and a ton of advocating for myself, I now get IVIg every two weeks and resemble a functioning human for several hours a day.

    Dawnieangel76
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I was CONSTANTLY tired & weak most of my life, childhood through early 30's (found a competent doctor). I was fat, I was lazy, I was unmotivated, I was depressed (first truth), etc. I used to fall asleep in class after gym, and honestly being fat all my life, I assumed that was it. Nobody ever told me otherwise. 32 years old, first round of blood tests with new doctor. "How are you walking around of your own accord?" I have pernicious anemia, an autoimmune disorder. I was so low on iron AND B12, I should have been hospitalized. I clearly remember as a child eating styrofoam pellets out of stuffed animals, chewing on Grampa's leather belts, crunching TONS of ice for decades, "accidentally" getting sand in my food here & there, wanting SO BAD to drink gasoline....but no other doctor my entire life checked me thoroughly enough to diagnose me sooner.

    agermanhome
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I felt tired all of the time,and got a sore rhroat, blocked nose and eventually really bad cough for about half of each month. My Mom took me to be checked fir all sorts of things including cancer and tuberculosis. Nothing was found, eventually a pediatrician just diagnosed it as "chronic, spastic bronchitis" which described my condition accurately but Said nothing about the reason. It was decided that I needed to do more Sports (which is rather hard to do when you struggle for breath) and should take cold showers and stuff (depending on what measure exactly, it gave ne my next Episode of Bronchitis or exhausted me for days, or simply made me faint). And basically, it was an Attitude Problem anyway.my teachers decided that I was from a broken home, my Mom didn't care if I went to school (she was a teacher!) and I was Just lazy and defiant. Fast Forward to when I was 29: I met my husband. He introduced me to his mom. She heard about my Problem and Said: Have you ever tried cutting out

    #38

    Flu Or Fatal: People Are Sharing Their Wildest Misdiagnosis Stories I saw my doctor when I was 25 years old because my toes were numb.

    Diagnosis: poorly fitting shoes.

    Yeah, ok, I had super stinky feet so I always bought cheap shoes. Never heels. As I aged I sorted out the stinky feet (connected to psoriasis) and I started buying nice shoes but still, my toes never regained feeling. Ahh I guess I permanently damaged them.

    Lost feeling my right hand a few years later. ER diagnosis was, and I quote what was said to me face after a physical exam and nothing else "well it's not a stroke *shrug* bodies are weird" I literally continued on with life with limited feeling/sensation in my toes and my dominant hand.

    At 37, from my knees down would go numb when I was lying down to try to sleep. Weird. It got worse and spread up my legs so I went to my doc (different from years earlier).

    Yeah, I had/have MS.

    I guess no harm no foul for the original diagnoses since I'm not diabled, right?

    dinosarahsaurus , Pavel Danilyuk Report

    Roxy222uk
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Who are these f.u.c.k.i.n.g. awful doctors? Loss of feeling in a hand and the response is 'bodies are weird'???

    Linda R
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    MS is hard to diagnose. I was lucky that it only took 3 years to diagnose mine. I also had numbness in my feet, along with left side weakness and foot drop that kept making me fall all the time. Edit: it's easier to find these days because they can see the brain lesions on an MRI.

    Xenia Harley
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    On the flip side, my cousin tells me she has been to numerous doctors and they are starting to think she has MS. She tells me her toes go numb when she walks a lot, like goes for a hike. I bend down and ask her where her toes are. She was wearing shoes too small! Um, two pregnancy later your feet are going to get bigger! She started buying shoes a larger size and her "MS" went away! (That is a scary diagnosis, not saying anything about that horrible diagnosis, but sometimes doctors DO NOT go for the obvious either!)

    Bex
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I went numb from the waist down for 3 months in my mid-20s. I could actually poke my legs w a shark fork and not feel it. One Dr send me.to the chiropractor for a pinched nerve. Nope. One gave me muscle relaxers for muscle spasms. Nope. One told me it was because I was fat and to lost 50 pounds. I had weight loss surgery and lost 110 pounds. Nope, didnt help. Still had weak legs that would go numb and effect my balance. Turns out, I had MS. Didnt get it diagnosed until I was 30

    S R Godwin
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    How about GP shouting at me that if the new anti-depressant I was on wasn't working, then I "could not possibly be depressed".....

    Caitlin
    Community Member
    11 months ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    How ridiculous. Anti depressants are known for having a low success rate. They just don’t work for a lot of people unfortunately. Hope you managed to find something that worked for you.

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    #39

    When I was younger from 7-10 I would get constant head aches. Ranging from usually pretty mild to excruciating pain. I was taken to the doctor multiple times and was told it was due to hitting the ball with my head too many times as I played soccer for 4 different teams and would have a practice or game at least every day sometimes 3 times a day. I remember one headache that felt like my brains was going to explode and my parents having trusted the doctors told me that I just had to suck it up. Around 5 years later I found out I had a kidney disease which caused me to have high blood pressure even if I ate what is normally recommended. And they explain that my headaches were caused to my untreated illness. That itself isn’t too scary, what’s scary is that about a year ago my brother who has the same disease goes to the hospital because of a headache which he described as “my brain is about to explode” and he was taken to the hospital where they found he had popped a blood vessel in his brain and needed immediate surgery or he would die. That could’ve been little 8 year old me.

    Former_Hippo6799 Report

    Mere Cat
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    A child from 7-10 playing soccer for 4 teams, practice every day, sometimes 3?! Isn't that a bit too much for a little kid?

    Charl Marx
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    As a youth football coach, yes, absolutely!

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    #40

    My GP missed that I had a collapsed left lung and 2.3 litres of bloody fluid in that side of my chect cavity. No no, no Xray required. Fortunately the shoulder specialist got one done a few days later, and a flagon of that goop was drained out of me during the day. A week or two away from a heart attack in my sleep so they say.

    Interesting-Ball-502 Report

    Bored -
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    How does a person trained specifically to diagnose people correctly miss a collapsed lung

    Jess Smith
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    There are a lot of things that can go wrong with people's bodies, you don't check every single thing or it'd take you ages to assess one patient.

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    Uncle Schmickle
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Too lazy or ignorant to request chest radiographs.

    #41

    Back in 1998 A doctor wanted to wait 6 months for a breast biopsies . I insisted on one. Guess what? Stage 1 breast cancer.

    ikesbutt Report

    Beth Wheeler
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Never ever wait when they mention a biopsy or cyst aspiration. My 1st job in a hospital was in Mammo and when a 15 yo girl comes in that had already had a lumpectomy, if that doesn't scare the hell out of people and making women getting their mammogram done I don't know what will.

    Jess Smith
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    What's a lumpectomy? It doesn't sound good...

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    Angie Falzarano
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I too was diagnosed with stage 1. I am now 5 yrs bc free. Congratulations on your many years. It gives me hope that o won't have a reoccurence.

    #42

    Told at the ER it was a migraine. Was the first of three strokes. .

    lowandslowinRR Report

    Steve Hall
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had a stroke, didn't feel anything. Went blind (temporarily), last all feeling in one side, but no pain at all.

    Lou Cam
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I often get migraines like that, the aura, the numbness and feeling out of myself and no pain. I'm predisposed to strokes (all grandparents died from stroke and both parents have had them) so it's a bit scary thinking if I had one I'd probably just assume migraine and head to bed. At least it would be a painless way to go I suppose.

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    #43

    Oh hey, an ask I can actually contribute to!


    I started to donate plasma as a teenager, and they generally do a screening test for various diseases to make sure your plasma is safe to use. Lo and behold, I got a positive result for something scary. 


    Or rather, 10-20 scary things. All at once. HIV, HPV, the entire hepatitis alphabet - their entire catalog of things they test for!! This as a girl who'd only ever kissed guys, and had never had blood transfusions. 


    I went straight to a doctor, got a ton of tests done, and I was obviously clean, but I can never donate plasma again because of that one, faulty test. Scary waiting for results anyways. Because like, what if?

    LittleMissFirebright Report

    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I hope there's not some poor guy whose test results they actually were and they went without diagnosis.

    Jane Doe
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    You were not positive for those diseases but had a positive NAT for them a NAT is not a confirmation of a positive just that 1 of the 100 samples that was tested was positive they tell you about all the diseases tested for cause they don't have a confirmatory result. The 100 samples are split into groups of 10 and the group that has a positive is then tested individually to get a confirmatory result. Since it's not confirmed they are required to inform you that a positive result for everything due to HIPPA till it's confirmed also plasma centers are not a medical center therefore they can not and are not telling you that you have it just that a positive result came back. Resources: current plasma center nurse.

    Undercover
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The granny of my bf was diagnosed with HIV after running some bloodwork for recurring UTI. Remember, granny was an 75 year old rancher's wife, married for over 50 years in a tiny village and mother to a bunch of children and massively overweight, no transfusions ever. So nobody you could imagine being a hot cougar sleeping around. Afterwards it came out her blood was swapped in the lab. I wonder if they ever found the right patient to tell him/her he/she was HIV+..? 🤔

    BookFanatic
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    My best friend went to donate blood and was told she had AIDS. Spoiler alert, she did not. But she, too, is now on the "cannot donate" list for life. Also made for a couple very intense conversations with her fiance.

    Beth Wheeler
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is strange, when you donate plasma they put labels on the tubes they send to the lab for the tests. It sounds like somebody got the labels mixed up or was reading the wrong chart. They also do those labs 3 or 4 times a year. I have been donating plasma for the last 6 years and the only time I haven't been able to do it was when my protein was low. Try going to a different plasma center. I go to KED but there are other places.

    P1 No-Name
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    How terrifying, I am sorry you went through this, but overjoyed to hear you are well.

    Al Padilla
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And a related instance. I had a patient with hemochromatosis - a hereditary disease in which the body absorbs too much iron. Then the excess iron can damage organs and shorten life. The treatment is "therapeutic phlebotomy" - they remove a unit of blood at regular intervals, and it works just fine. But that's fairly expensive. And this patient had rare, type AB Rh-negative blood. But the ICD (international Classification of Diseases) considered hemochromatosis to be a blood disease, which it is not. Nevertheless, the Red Cross can't accept blood from somebody with a blood disease. But it's an intestinal defect! Had the patient go to the Red Cross near where he worked, and not check the "I have a blood disease" box. Win/Win. Patient gets treatment for free (plus a donut) and patients have access to his rare blood type. The ICD has since been revised.

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    #44

    My pediatrician told my mom I had flea bites. It was the chicken pox.

    Good_Chair_8528 Report

    Christine Stewart
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    When I was 19 and in college, I started to get itchy red spots on my skin, I thought they were mosquito bites. One of my roommates said, "You don't get mosquito bites on the bottom of your feet!" I went to the student health center- 'It looks like chicken pox- get out of here and stay isolated for x weeks!" Thankfully, it was start of summer vacation so I went home, where I wouldn't expose any possible vulnerable students!

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    Shea Fujishima
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Pediatrician diagnosed my son with heat rash.. it was lice.

    BrownEyedPanda
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    DAAAAAAANG, there are some seriously STOOOOOOPID medical "professionals" out there!

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    #45

    I was told for *years* that my breathlessness and palpitations were due to anxiety until I got refered to a specialist who diagnosed me with atrial fibrillation.

    Mikon_Youji Report

    Jude Laskowski
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had the same symptoms and I kept thinking it was anxiety because of my boss who was making my life miserable. As I arrived at work one morning, our day nurse was already there. I almost passed out and she checked my vital signs and put me in a wheelchair and pushed me down the hall to the ER. It WAS Afib, and I spent 4 days in the hospital getting meds and was on a gurney going for a procedure when my doc noticed that I had spontaneously converted. I went home with meds and a follow up scheduled. I quit that job, and never had another problem.

    #46

    I was diagnosed with Bipolar II by a doc who spoke to me for maybe 5 minutes in an emergency room. I’d never had a manic or hypomanic episode in my life. They put me on lots and lots of d***s that really messed me up. It took almost a year to get correctly diagnosed with an anxiety disorder and CPTSD. And another year to wean off of all the meds and onto the new, correct ones.

    la_metisse Report

    Xenia Harley
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My cousin's husband ended up on a psych ward because he had terrible headaches and went to ER. Spent two days there, until finally diagnosed with meningitis! They could have killed him!

    Mary Kelly
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    same thing happened to my frien's sister, who had type I diabetes and was panicing b/c she was going into a coma...her brother had to threatn phsical violence to get her out of the metal ward and have herblood sugar under control

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    #47

    My ex had a upper respiratory infection misdiagnosed as anxiety.

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    Beth Wheeler
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    How in the world did some idiot come up with anxiety for a URI?

    BookFanatic
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I had an URI misdiagnosed as a lung blood clot. That was fun. Luckily they realized their mistake after only 3 hours in the ER. /s

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    #48

    I had a GP claim the abdominal pain I had was because 4 months prior I had a few drinks at my friend's birthday. 2 years later diagnosed with Crohn's which has been incredibly difficult to manage.

    zieaendaire Report

    Huddo's sister
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Crohn's is a nightmare condition! I feel hard done by being Coeliac and on a Low FODMAP diet but Crohn's is way worse.

    detective miller's hat
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Crohn's SUCKS. My sister and I both have it. It's a constant cycle of upset stomach and anxiety over the location of bathrooms, which causes more upset stomach.

    Captain Awesome
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It took me almost a year to get diagnosed with Crohn's. During that year I ended up hospitalized about one week a month for obstructions. NG tubes, X-rays, ultrasounds, surgical consults, MRIs and about every other test they had. That was 7 years ago. Still have unmanaged Crohn's and have had multiple resections. This has so completely wrecked my life in every aspect it's crazy.

    #49

    I had a false positive on an AIDS test once. Two months in hell :D

    I will never EVER test myself in a private lab ever again.

    gerginborisov Report

    Roxy222uk
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    False positives are always a risk with clinical tests. Every test has a recognise rate of false positives.This can lead to unnecessary treatment (which always carries risks) and even thoughts of suicide. Having a clinical test therefore has a risk in itself, which is not often admitted to when we are being told we should have one, particularly the routine ones rather than those recommended because of symptoms. This isn't to say people shouldn't have routine clinical tests, but that they should have the information to make a informed choice.

    Jess Smith
    Community Member
    1 year ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    It's not a risk because of clinical tests per se, it's simply because of math. Suppose there's a condition 100,000 people get tested for per year, of whom 90 have it; but it's quite deadly and there's no real way of predicting it well other than testing, so it's somewhat necessary to have a lot of people who don't have it take the test. It has a .1 percent false positive rate - one in a thousand. Quite low. But that still means, of the 100,000 people, assuming no false negatives, the results break down as such: 0 people who have it and the test says they don't, 99,810 people who don't have it and the test says they don't, 90 people who have it and the test says they do, and 100 who don't have it and the test says they do. In other words, if you are diagnosed based on the test, with a .1 percent error rate, it is still more likely that you don't have it than that you do, because, put simply, when one or more of 'tons of people take the test' 'very few of the people who take the test have it' and 'there's a reasonable false positive rate', no matter what the subject is (accuracy of scientific findings? lists of suspected terrorists? clinical tests?) there are going to be quite a large proportion of false positives, and sometimes they overwhelm the true positives. This is actually a major part of the replication crisis in science - there are more wrong hypotheses than right ones, so even something that filters out 95 percent of the crud (as standard p-values are intended to do) can still let in more crud than non-crud.

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    EJN
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Which is why you should follow up any result like that with another test.

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    #50

    I had super dry itchy skin on my shins. My doctor said is was ringworm. It was in fact, just dry itchy skin.

    loritree Report

    BookFanatic
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Same. Except I was told the germs that made my legs itchy lived inside my nostrils. I'm still not sure how my parents listened to that with a straight face.

    Kathrin Pukowsky
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    If that had been true, I'd've had one request: To see how you sneeze. That would've been a marvel to behold, no doubt.

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    Candy Sheppard
    Community Member
    1 year ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Ringworm and ground itch can be cured in less than a week by painting the area with nail polish and keeping painted until it is gone