35 Things People Assumed Were Normal About Their Bodies Until Someone Pointed Out Otherwise
In 2022, 38% of Americans said they or a family member skipped or delayed medical care because of cost, according to a poll from Gallup.
27% of respondents said the treatments they passed over were for "very" or "somewhat" serious conditions or illnesses, while 11% percent reported neglecting to pursue care for non-serious health issues.
However, as one recent Reddit thread shows, forgoing treatment can result in substantial consequences and can compound costs down the road.
Started by platform user Prudent_Tip4118, it asked people to share the "normal" symptom they had that ended up being an actual medical problem. Here are some of the replies.
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Not me, but one of my brother's friends in high school.
This friend was a goober; always making silly but friendly jokes that make families laugh as a whole, all and all a genuinely funny person.
One day he took my sister's glasses and was "acting like her" only to pause for a moment and then say "wait...is this how things are supposed to look?"
My man needed glasses and found out from f****n around. I'm glad the universe leaned towards him in a positive way as far as that went!
I found out recently that street lights and headlights aren't supposed to look like starbursts. I thought it was like that for everyone.
Astigmatic here. Stars everywhere at night (even with my glasses)
Load More Replies...i didn't know trees had individual leaves until i got glasses in the fourth grade. i always thought trees were just green and smudgy at the top. my mom said that, on the way home, i just kept excitedly pointing out normal things because i had never seen them before.
The school nurse at my 6-year old grandson's school recently called my daughter-in-law to tell her he hadn't done well with a vision test. When she had tested individual eyes she found out that his vision was much worse in his left eye, and told him that. He nonchalantly replied "Yes, that's the eye I can't see out of." He had never mentioned that to anyone. (He has glasses now.)
I work for an optometrist, and yearly eye exams are just as important as your annual physical exam. Yes, we can tell you if you need glasses. We can also detect some systemic diseases such as diabetes, multiple sclerosis and cancer, just to name a few. Please make an appointment for an eye exam for your children and yourself, soon!
There's a risk to calling it an "exam", though. My older sister - JUST confessed to me that when she heard there was an "exam" she needed to pass- she memorized the chart. Passed the exam! Took 2 more years for her eyes to get so bad the teachers caught it.
Load More Replies...How could he go so long without having his eyes checked? That’s crazy.
A random sharp pain above my right ear and my tongue curling slightly. I thought it was just old age. Doc recognized it instantly as something wrong with my tongue. The cancer has been cured for seven years.
It can cause tremendous pain from the trigeminal nerve.
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Depression. Apparently losing all hope and being numb to joy isn't just a part of growing up.
I dealt with severe clinical depression for 9 years. It came on slowly enough that I didn't recognize that something was wrong until my first s*****e attempt. I thought it was just part of being a moody teenager. It messes with you so much. When my doctor was trying to regulate it with meds, I'd go in after being on a certain med for a few months and he'd ask if I felt normal and I'd have to tell him that I didn't remember what normal felt like. I could only tell him if I felt better or worse than the day before.
Can't tell you which is worse, but I do remember normal... not there...
Load More Replies...Similar story for me, turns out lack of any interest or motivation and then beating myself up about it wasn’t just me being a lazy piece of s**t, I’m depressed.
Apathy. I didn't know that was depression. I always said, "I'm not depressed, I don't feel sad/down, I just don't feel anything"
I figured out what was happening to me in high school... was a big help to a point, it took till I was in my 30's before anyone believed me and I was able to get the real help I needed...
Never knew what depression was, I mean, intellectually, yes. But never experienced it. Until in my 50's I got histamine intolerance. Depressive moodes are... interesting. At least with healing earth (which helps getting rid of too much histamine in a natural way) stopped making this a regular occurance. Still, knowing about something and living it, that's nothing you can compare.
When I was in fifth or sixth grade, I remember telling my mom one day that I felt like I wanted to cry but didn't know why. She said oh that's depression, like it was a normal everyday thing that everyone experienced. I was well into adulthood before I found out that many people don't get depressed like that. ...including my dad.
It took my lungs collapsing at 17 years old before doctors realized I wasn’t breathing in deeply enough to expand the bottom half of my lungs for basically my whole life. They asked why I never complained about shortness of breath. I never knew breathing was supposed to be easier than what I was experiencing.
As someone with asthma, I definitely understand the feeling of not being able to breath to the fullest. If you can't breathe normally, get it checked out!
How would they know? If you have asthma, you have comparison periods of being able to breathe normally.
Load More Replies...That was a bit of a silly question from the docs. If you don't have a comparison of before/after, how do you know your breathing isn't average/regular? It's regular to you. It's like a doc saying: why didn't you tell anyone your head is busy all the time? Because to me, that's the standard (adhd).
Hi, fellow ADHDer! Yep, that's the frustrating part - no matter how self-aware you are, you'll only have yourself to compare to. That is, until you start talking to other people and realize, "hey, maybe not everyone is like this?"
Load More Replies...When I was about nineteen, I randomly heard on NPR that it takes the average person around 20 minutes to fall asleep and I went "oh s**t" because apparently my bar for having sleep issues was way, way too high. To me, a good night sleep meant I fell asleep within two hours of going to bed and it wasn't "trouble" until I hit three hours. And once I communicated this to my doctor and was finally able to treat my crippling insomnia with medication, my depression and anxiety suddenly got way more manageable as well.
For me it's more like "It takes people 20 minutes to fall asleep?" I'm almost always asleep within 5 minutes of putting down my book or phone and turning off the light.
Load More Replies...This still confuses me. It always takes me a long time to fall asleep, and I'm always tired, and the doctor doesn't take me seriously enough to really discuss it.
Same. Every doctor has told me that it's normal to be tired all the time.
Load More Replies...Me looking at this at 4 AM...well, guess I should talk to my doctor about the sleep issues after all.
takes almost an hour to fall asleep and i wake up every hour or less and have hard time falling back asleep. i also have sleep paralysis which sometimes makes me afraid to fall asleep fully in case i suffocate in my sleep. too many times woke up gasping for air and just stayed up the rest of the night.
*sigh* sorry folks but y'all not gonna like what I'm going to say. If I don't fall asleep within 5 mins then I just read for a bit and I'll fall asleep with the light on and the book in my hand. When our kids were born, I'd usually do the night bottle feeds as I could go back to sleep within a few minutes of my head hitting the pillow.
i have terrible insomnia and they never help me. they just say get a better schedule, don't drink caffeine, don't do this or don't do that. I follow all their rules except a set perfect schedule cuz my life just doesn't support a perfect rhythm. And here i am years later still taking 2-4 hours to fall asleep sometimes only getting 1-2 hours a night.
I thought I pulled a muscle playing with my dogs one day. One week later I finally go to the hospital because the pain is getting worse. Turns out I suffer from a genetic blood clotting condition and had a two foot log clot in my leg and multiple pulmonary embolisms on my lungs. Doctor was legit surprised I was alive.
It truly is. I've heard "Why aren't you dead?" too many times. Still not dead, though!
Load More Replies...I have a genetic condition that also causes blood clots and I lost my friend to pulmonary embolism when she was just 35. This is very scary for me, and the reason why I made sure I had the covid vaccine when I was pregnant! (Covid causes waaaaaay more blood clots than the vaccine and it was impossible to avoid getting it with another young child at kindergarten.)
My wife in her 30s got the vaccine and a few months later thought she had pulled a muscle in her leg as it was a little painful and very swollen. Turned out to be a blood clot and pulmonary embolism. Thankfully we caught it quickly and she's fine now, but has to be on Xarelto for the rest of her life.
Load More Replies...For me it's factor V and factor VIII (elevated, not deficiency - that's extremely rare)
Load More Replies...I have factor v leiden gene mutation. Itkilled my brother and has tried to kill my mom many times.
General stomach pain that I dismissed as perhaps constipation, but which would - every few years or so - send me to emergency worrying that it was my appendix. I was kicked out of emergency departments at different hospitals multiple times, because it was not. I moved to a new city and was lucky enough to score a decent family doctor who took it seriously. She told me she was rather impressed with the amount of "referred pain" I was having and that I should go straight to emergency. I replied that there was not a hope in hell I would subject myself to that kind of humiliation again. No way. She sent me for a CAT scan and lo and behold, it WAS my appendix. She referred me to a surgeon, and on the day of my surgery no one in the hospital seemed particularly interested in my condition, I think most of the medical staff thought I was having unnecessary surgery though, curiously, they were MUCH nicer to me afterward. I recall a lot of people standing over me in the recovery room. The surgeon called me to come in for a meeting a couple of weeks later, and when I walked into his office he had an odd expression on his face. He told me my appendix was many times the normal size, probably because it had been infected and healed over the years, building up scar tissue. He asked me if I minded if he wrote it up in a medical paper or a textbook (I can't remember exactly which - he taught at the university). I gather at the time "grumbling appendixes" were a bit of a unicorn and there had been much debate over whether they were real. So I guess my appendix settled that argument in the medical community once and for all.
This is so important. The sheer number of medical professionals that will dismiss a person (women especially) because the symptoms are atypical is staggering and we need to do better.
I stopped going to the ER for kidney stones. Nurses and docs treat me like a d**g seeker. I’d rather die at home in pain than be subjected to ER staff ever again.
My urologist has had kidney stones himself, that helped in being taken seriously
Load More Replies...I had a very similar experience. Had horrible stomach pain after lifting some stuff that felt like I'd torn a muscle in my stomach, went to the hospital and was told it wasn't my appendix and that there was nothing wrong with me. Pain went away a few days later. A couple years later moved states and pain came back. Went to the ER but the wait was hours and I felt embarrassed so I just went home and a couple of days later I was fine again. Fast forward a couple more years, pain is back after lifting heavy equipment again, I write it off as a pulled muscle and figure it will go away soon. That afternoon I'm walking to the bathroom and I collapse on the floor. Ended up at the hospital and they do a CT, turns out my appendix had ruptured. Had surgery that same night. It's insane that my appendix was bothering me on and off for six years, but because I was turned away from the first hospital it took it rupturing for me to feel confident enough to seek treatment again.
High pain threshold makes people not take things seriously when they should be taken seriously.
Doctors not taking you seriously is one thing but I had appendicitis for a year before my *parents* took me seriously - only when it burst, I got peritonitis and sepsis. Thanks, parents! I had had bowel obstruction and been very sick for ages.
After 40+ years it turns out I'm not just weird or liked things most didn't. Finding out you have Autism that late in life is hard. Knowing that 40+ years of life could of been easier if I only knew is very upsetting.
I, at 61 am wondering about this. One of my earliest memories (less than 5) is going somewhere that was full of down syndrome kids, don't get on well with people. Have been called aloof and unemotional. Wonder how folks connect with each other when I cannot. Diagnosis won't do a damn thing for me now, fixing to retire. Mom died in 96, would have been handy info to ask about it.
Geoffrey, getting a diagnosis may not fix anything but I can tell you that for myself being diagnosed at the age of 42 it at least helped me find the explanation for so many things I thought was "wrong" with me throughout my life. Getting the diagnosis was actually such a relief. It has helped me learn to accept myself better, and realize that after decades of being called "weird" and "odd" that's just who I am and how my brain works, and I love myself oddities and all.
Load More Replies...16 starting to think in autistic.. my parents don't believe me tho :/
They won't want to believe it- they'll feel guilty if they do. No that does NOT make sense - it doesn't have to for it to be true! A good doctor should be able to help - all of you.
Load More Replies...Late 20s, early 30s here. Late diagnoses are both upsetting and relieving, to finally have something you can point at and say "Oh, that might be why" and learn how to work around it instead of trying to climb over a hill you didn't know was there.
This exactly. The sense of relief alone is worth it.
Load More Replies...Think my dad has this same realization recently. He's in his 50s. Me and my younger brother both realized we're autistic and had my dad realizing he is too. We've gotten diagnosed now, but my dad doesn't think it's worth it for him at this point. Really helped us all to have learned now, though.
So many of my relatives have been diagnosed with ASD or ADHD late in life, including my mum at 60! My sister was diagnosed with ADHD at 6, but not ASD until she was nearly finished high school, too late to get any extra help with that. Luckily she was able to do an applied learning certificate to graduate (stupid state doesn't do this anymore, have to do regular school certificate with other 'options'. I don't see how it can work.)
I got my diagnosis of autism at 65, I'm a woman and I had to fight to even get to see a neurologist. I wanted to either get a confirmation of autism or whatever other diagnosis I had, because I knew I was not like others and it has made my life more difficult than it should have. The need for a diagnosis for me was necessary, to get the help and understanding I have needed all the time but didn't get, I was just seen as weird, got used and abused and now have cptsd because of it. I think a diagnosis is more important when we get old, to ensure better care.
I thought I was just stupid and other people thought I was badly behaved and rude, until I was about 16 and my mother stumbled across a newspaper article which was a major lightbulb moment. She went to the library for a certain book, read it, then came to me and said "I think you have Asperger's Syndrome". She was right.
I realised and had diagnosis as an adult too. It has been very healing and liberating and such a relief to be able to stop trying to "fix" myself and just enjoy my strengths and get some support with what is challenging. There's that same grief that OP describes about the years without knowing. It's a big thing to process. It's estimated it may be up to 80% of autistic adults are still unidentified. There are tests here if anyone is interested https://embrace-autism.com/autism-tests/
My family told me I would randomly “space out”, although I never remembered, all thought it was normal. Turned out, I was having “absence seizures”. We only found that out at a routine doctor’s appointment, just conversing with the doc, when I guess I just came to and the doctor said she wanted to get a bunch of tests done. Been an epileptic for almost 17 years now. Edit: I was shocked, tbh to see how many of has or had what I have. Unfortunately, my Epilepsy has evolved into tonic-clonic seizures, I rarely have absences anymore, but had one focal back in November. For anyone who has friends and/or family who has seizures and Epilepsy, thank you for being there for them. Just know, that we appreciate you all. For all that HAVE seizures and Epilepsy, UNITE!!!
Oh s**t is that what I have? I've been told I zone out or im ignoring since I was a young child. They called it day dreaming or spacing out. Sometimes in kinda aware, like I feel like I need to stare off in some random direction for while. Like I'd tell ppl I'm not staring at you i just need to be like this for a minute, all monotone like. Guess I ought to get that checked out
My dad had epilepsy but he had grand mal (full body) seizures followed by extensive postictal (confusion) periods. Thankfully I only witnessed one. Scariest thing I'd ever seen I was 10 at the time.
My daughter’s very first memory is me having a grand mal when she was 3. Talk about mom guilt.
Load More Replies...I have epilepsy, people say my seizures are scary. I have absence seizures, focal seizures, and tonic clonic seizures. I've been epileptic for four years now, and it's been a /journey/
My husband has epilepsy. He had a seizure the other day for the first time in a few years. I hate them. It's terrifying to watch and feel like they last forever
We had a student have a seizure in the library, he kept insisting he just dozed off, and we were like, no, you were 100% having a seizure and we aren't letting you drive yourself home.
Wow, if he has epilepsy he shouldn’t have a license!
Load More Replies...When I was in University, there was a girl I heard about (she was in high school) who had epilepsy and decided she wanted to have a bath. She had a seizure. She was dating someone in my brother’s circle of friends. Who I was teaching overseas, one of my kindergarten students had a seizure. Turns out he had febrile seizures but it wasn’t well communicated by the parents. Thankfully it only happened once, but it was scary!
My sister thought that her random "short pauses" were something everyone experienced. One day she had a grand mal in the middle of one of her college classes. She went and got checked out and it turns out she's been having petit mals since she was an infant. For context here, she got very very ill when she was only a few months old and had a number of seizures that resulted in her being hospitalised for a few weeks.. back then nobody realised that they should be looking for signs of seizures after she was discharged from the hospital. Sadly, her seizures have gotten worse and she's now on a pretty tough medication. I always worry that one day she'll be driving down the road and something will happen. - be safe out there people, and if something seems off with your child, please don't just chalk it up to them being a kid who doesn't listen.
How can she have a license when she has a history of seizures?
Load More Replies...That it was completely normal to have about 10 to 20 or so mostly creative hobbies that one purchases a bunch of tools and supplies for and randomly dabbles in on and off for several years if not the rest of one’s life, or completely drops out of sudden disinterest. After all, my great great grandparent potentially did it, my great grandmother did it, my grandpa did it, my parent does it, and I do it. Turns out the ADHD runs *very strong* in my family.
Welcome to team neurospicy my friend. Edit: just to be clear I was making a joke, that alone isn’t enough to diagnose anything
Load More Replies...the more i read about people's experiences with ADHD the more i think i might actully have it or something similar. this sounds so familiar
Markers for ADDInattentive found in my late 30s-early 40s. Ugh. So many probs...
Sounds like my husband. He freely admits to being ADHD, but his hobbies are the clue. He is a National Kite Flying Champion, so we have "kite season", then we get into "cigar & pipe season", "guitar/music season", "photography season" and then we also have the seaon of calligraphy & art drawing.We're very much our own persons, so I don't get too bent out of shape about it unless he starts spending copious amounts of money. (No, dear - you DO NOT need yet another pipe or tin of tobacco or guitar or photo lens, etc.)
This is definitely me! Through medication and therapy I am able to focus better.
Yeah, my sister was diagnosed with ADHD at about 6, my mum was about 42 at the time, but she wasn't diagnosed until she was 60. My grandma almost certainly also had it, but she died before mum was diagnosed even. Made a lot of sense, the above description is exactly the same! Also not being able to sleep until at least 2am, because they are doing some hobby/obsession when hyper-focussed at night.
My mom convinced me as a kid that I was always just being a “big baby” about my period cramps. I’m talking like curled up in the fetal position on the floor crying type pain. Then when I had an ACTUAL baby, and the contractions weren’t as bad as some of my worst cramps, I finally realized she was just a dismissive POS.
I was told by an actual doctor that I was being a wimp about my cramps. I went untreated for years because no one believed me. Turns out I'm riddled with endometriosis and it had wrapped around my tubes and basically destroyed them. It's all over really - at the moment it's glued my uterus to my bowels. It doesn't show up on any tests though - the only way to confirm it is surgery. I still want to punch that doctor who said "some women just have rough periods". :(
I'm so sorry, doctors should never be dismissive of a condition
Load More Replies...When I was a teen, my dad used to tell me that my cramps were all in my mind, that they couldn't be as bad as I was saying. Then my father got the stomach flu, he proceeded to ask for my help at the time, as he was having terrible stomach cramps, and I told him the cramps were all in his head, and he just had to tough it through. It turns out that I was consistently getting cysts on my ovaries and there is even scar tissue which developed over the years; they would also occasionally burst, causing intense pain out of the blue. Dude, just because you haven't experienced, something doesn't mean that I haven't!
I'm sorry I wasn't your Mom. My daughter had horrendous endometriosis, which her Doctor was pooh-poohing as being "all in her head". She started periods early (around 10) and by 13, was absolutely miserable for a full week each month. She had complained of serious cramping, headaches & passing huge clots. I asked her to show me the next time. Holy sh*t! there was a blood clot in the toilet (sorry, don't mean to be gross) that was the size of my hand. I got her an emergency appt. with my OB-GYN and we started a series of medications and procedures to alleviate the symptoms. She ended up getting a hysterectomy after her 3rd child. MOTHERS! I beg of you - DO NOT disregard your daughter telling you her cramps are practically unbearable. We have to advocate for ALL women, regardless of their age.
THIS mom didn't. When my daughters had symptoms out of the ordinary (And I knew - my elder daughter didn't tell me for some time) they were brought to the doctor right away. No one's going to hurt until they throw up and me do nothing.
As a kid I had anxiety and my heart would race. Fast. It felt like a hummingbird in my chest and would abruptly pause and resume a normal pace after a few minutes. At age 23 I had a bad reaction to a tricyclic antidepressant called imipramine and was rushed to the hospital. They ran an EKG and that rapid heart rate was a congenital defect known as Wolfe Parkinson White syndrome. Basically I had an accessory or 2nd electrical system in my heart that would cause a “short circuit” occasionally and my heart rate would skyrocket. It was cured via a procedure using radio waves to form scar tissue around the accessory node because the impulse could not conduct through the tissue. No problems since.
He was actually diagnosed with adhd before this, and come to find out, this was what was causing those issues. First time I ever saw his dad cry was when he was having surgery to fix it. This was my abusive ex, so I was quite shocked to find that he actually did care about at least one human being other than himself. He also was diagnosed with Steve Barre syndrome about two years ago now. Poor kid almost died because our hospital kept saying there was nothing wrong when he literally couldn’t even stand on his own. Mom took him to children’s (a two hour drive) at 3am one night and he was rushed to ICU and put in an induced coma, intubated, the works. Steve Barre is basically your immune system attacking your nervous system, starting from toes and working its way up. He was having shortness of breath, so it progressed to his chest by then. If she hadn’t gotten him there when she did he wouldn’t have woken up that day. Poor kids been through it!
Load More Replies...The procedure OP had is Radio Frequency Ablation now they can also do cryoablation as well but I don't think they do that for WPW. More commonly pulmonary vein isolation ablation for atrial fibrillation
They did cryoablation on my exes son. Basically froze/burned the extra electrical pathway and he was perfectly fine!
Load More Replies...I have WPW too. It almost never affects me though. They found it randomly when I was a kid. I had an episode of tachycardia 25+ years ago but never again. The procedure to fix it is called an ablation, which basically burns away the extra connection. We discussed having it done but my symptoms aren't severe enough.
Glad to hear treatment worked; I used to work for a company that made a cardiac ablation treatment system. It's heartening to hear about this treatment working
It's rough to go undiagnosed. Glad you have had no problems since then! I had WPW starting in my teens. My mom, who was a nurse, would just tell me to sit down for a bit. Doctor after doctor couldn't diagnose it, because it wasn't happening while in their office. They just wrote it off as anxiety, stress, etc. It could strike anywhere and anytime. Loading the dishwasher, stepping off a curb, picking up a child... I remember mowing the lawn, abruptly having to lie down in the grass until an episode passed, and the neighbor running out to check on me. Finally got it diagnosed after 25 years and had a laser ablation that stopped it from happening. Be warned though... those nerve bundles can grow back and it's not uncommon to have extra electical wiring in other areas of your heart too. I started having a lot of trouble again a decade later. Had another ablation procedure last year that helped some.
Losing weight suddenly got a little easier, and I assumed it was due to my efforts. Happy with my success, I buckled down harder (funny how it's easy to keep "being good" when you're actually seeing results). I lost more! It actually got to be almost easy. I thought I was doing such a great job! Turns out it was cancer. I guess I should have known something was up, but I honestly thought I was just doing a really great job with my diet and exercise. Had 4 surgeries and treatment and I'm doing well. Now I'm on meds with all kinds of side effects, including weight gain. Yay. But I'm alive, and so much better off than many others. I've only gained a little bit back, despite working really hard not to.
Nothing is sadder than finding out that sudden weight loss is due to cancer.
No, there is, when everyone then compliments you on your weight loss and you have to explain it was from a near death experience.
Load More Replies...For me, it was the opposite. I was gaining weight and could not lose it, and I was exhausted constantly. Was repeatedly told I was lazy and to diet. Finally, a doctor sent me to a bariatric surgeon because I was getting so fat, I needed surgical intervention. The surgeon ran the preop test and found that I had malignant tumors throughout my digestive system that were causing the weight gain. 2 surgeries and 2 years of chemo, I am cancer-free.
A doctor once told me they generally don't worry about people who gain weight; it's people who lose weight that are likely to have a problem.
It can also be a sign of type 1 diabetes, which is also a terrible thing to have.
I was loosing weight and thought it was down to exercise. Turned out to be T2 diabetes.
Load More Replies...This was me. I assumed it was because of my new job that had a lot of activity but I dropped 3 pants sizes and started to get nervous. They ended up finding the cancer another way but still, rapid weight loss is never a good sign - pay attention!
A few years ago I lost about 15 pounds (without trying) over the course of 3-4 months. It stayed off for a few months, then I gained it back. During that time I had a urine test for a possible UTI (negative) and the doctor said my urine test showed I was in ketosis even though I was eating normally. They just kind of shrugged it off so I did too. My weight went back up to the starting point a few months later so I never looked into the cause. That was about 8 years ago, and all of my check-ups and blood tests have been normal since. After seeing this post I'm now wondering if I should I be concerned?
Load More Replies...My similar story was Grave's disease. Now I gain weight if I look at it since I no longer have a thyroid.
Prayers & wishes for your relieved happiness!!! Don't stop. Don't give up!!
This is the reason I would be reluctant to comment on someone weight loos or gainas being positive. They might have a medical conditioner that they struggle with
Had a slightly sprained ankle that just blew up in a day and split the skin. Turns out, not a sprain but Pyoderma gangrenosum, a rare skin inflammation condition that acts like gangrene. Nobody could tell me what it was that made my ankle flesh explode. Within a week they were talking to me about amputation. Then Nurse Molly came back from vacation and identified it as she’d seen it once before. Still have both my feet and nearly full mobility. Grateful for teaching hospitals that draw professionals from all over like Nurse Molly ❤️.
Not sleeping or eating for days but still feeling great and having more energy than your average athlete. Turns out you're bipolar!
I didn't find out I had ADHD and bipolar disorder until I was 31 and had four kids. Thought I was just annoying and easily irritated. Things are a lot better with meds and therapy
Or dysthymia...not much better, but a milder condition. Meds and therapy work!!!
I once had a bad case of strep throat and didn't eat for six days
Load More Replies...Always gotta be someone looking to be offended
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Sharp, excruciating pain in my hand. Thought it was arthritis, it runs in the family.
Nope. Bone tumor, thankfully non-malignant, slowly eating its way through my hand.
Two surgeries (one to remove the tumor, one to get bone graft from my femur) done at once, some cadaver bone, lots of excruciating physical therapy and a gnarly scar later—no more pain!
Well, sh*t. Now I’m worried about my excruciating hand pain that my doctor can’t figure out.
In most cases, it’s probably either arthritis or carpal tunnel, which are probably way more preferable than bone tumors!
Load More Replies...I should not read this when my wrist has been hurting for weeks (got an appointment next week)
Okay but... Why that picture? Looks more like a NSFW scene than anything.
Inattentive ADHD. Got diagnosed at 54 and my life all suddenly made sense. It was like riding a bike with a flat tire and wondering why peddling appeared to be so much easier for everyone else. Being told I'm sometimes too lazy or a dreamer, etc. Then learning at age 54 the existence of tire pumps and being able to keep up. Game changer. Still annoys me that all along, this medication was available and could've helped decades ago.
That's a very sound explanation. I feel that. I was diagnosed at 38. Without medication it's like a kindergarten without the teacher present in my head. With the medication, everything is as it 'supposed to be'. You're awesome like you are. Don't be annoyed by the past. It shows that you're a badass MF! You somehow made it work for you all along. You're a fighter. Be proud of that.
I am 40 in May and my adhd was left untreated (mom couldn't afford it but told me it was cause she didn't want me a zombie) i have learned to recognize my symptoms and are able to reign it in for typical tasks but not my passions and it had improved my life without medications.
Just diagnosed at 45. Was on a phone conference to get the diagnosis. She said, we will talk for an hour today, and then you'll get your Dr. and they will give a RX if needed. 15 minutes into my phone intake she stops me and says, I'm going to go ahead and put in for some meds for you today. LMAO!! I guess I do have it, never crossed my mind that I might.
Diagnosed with ADD at 48 yo. Pioneer for Concerta and Vyvanse. Stopped wondering why I was different. So happy with life!!!
I got called a "dreamer", "nonchalant", "sloppy" ( especially at tasks I didn't like ) when I was a kid. I still have to focus extra on some tasks at work. ( my boss knows I 'm going through a lot right now, luckily ) and I "phase out" on a regular basis during conversations. I've asked a ton of times to see a psychologist and my husband refuses. I can relate to a lot of adhd traits on google but I 'm not going to label myself until I get an official diagnosis.
Not meaning to pry, but how is it that your husband thinks he has a say? It's your issue; you should be the one to decide whether and how to seek treatment.
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Massively heavy periods in my 40s. I thought it was just perimenopause. Turns out it was adenomyosis.
Friggin adenomyosis is crippling. I regularly black out from blood loss. First time I passed out from it was when I was 12.
I have an OLD IUD still in my uterus....but I have adenomyosis and if I have it removed, I will suffer. I can't afford a hysterectomy, so I'm just chillin with my expired IUD.
Load More Replies...It never occurred to me that just getting on Bored Panda to pass some time would, possibly, give me the answer to why my periods, starting around 44-45, now 47, have gone from 7 days to 8-10 days of debilitating pain with clots so big I sometimes feel them and have to actually push a bit to pass them. Having something to go back to my doctor with makes me hopeful that I won't be forced to stay home due to pain and the fear of overflowing in public for over a fourth of each month.
Thank you for this. Now I know the medical term for what my mom had.
Basically, the endometrial reissue grows into the muscular wall of the uterus and it causes heavy and prolonged bleeding, severe cramping, pain during intercourse, and blood clots that pass during the period. It's absolute trash. 0/10 would recommend.
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Until I was 16 I thought everyone got stomach cramps a few times a day. Turns out I'm lactose intolerant. .
When we were kids my sister hated milk with passion but we were forced to drink some during breakfast and in the morning recess in kindergarden. She stopped drinking milk as soon as my mother gave up the fight. We all know whe doesn't drink milk and that was it. Then, I became a mother. my youngest was 5yo and got really sick one afternoon and the same repeat the next day. I realised that both times she had a chocolate milk less than an hour before. Got her checked and... My daughter can't drink milk anymore. Cheeses, yogourts and cakes are OK but not milk. I warned my family about it and my sister had some questions for my little one, recognised why she was refusing to drink her milk as a kid. Turned out she was also lactose intorelant.
I developed it as an adult, but I am pretty much the same - most types of cheese, yogurt and butter are fine, milk is not. Cream or mascarpone are even worse than milk for me. I relaised that one after eating cake with these as a filling, and feeling bad afterwards, now I am careful with what types of cake I can eat too.
Load More Replies...I know a woman who was force-fed a large spoonful of honey every day by her granny, even though she cried and told her that her tongue was stinging. Granny used to ignore it as nonsense because "you don't like it, but it's good for you"! Turns out she is actually severely allergic to honey, and it's a miracle Granny didn't finish her off.
I myself get a light buzzing feeling on the tongue from honey. Do you know what causes this?
Load More Replies...Took me until my late 20s to learn that doubling over in abdominal pain was not normal. Wish my parents had mentioned that my dad didn't like cheese. Would have made. My entire childhood better.
Sooo many people have issues with dairy but don't realise and its not just cramping. I had a rather passive aggressive housemate in my 20s who had toxic gas but refused to believe it was anything to do with her consuming dairy products. 20 years later and she announces that she's realised she's lactose intolerant, Im proud of myself for restraining myself from commenting!
Oh that's definitely me...I love dairy too. But if I'm going to be around people I stay away. Not trying to kill anyone lol : D
Load More Replies...One of my brothers and my sister were lactose intolerant as babies/toddlers but grew out of it. I wasn't, but lucky me it his me at 28!
I've had a milk allergy all my life, I didn't know until I was 25. At 21 my daughter was diagnosed with lactose intolerance (8mth old at the time) Dr thought that's what I had since birth and that it was genetic, at 25 my son was diagnosed with a milk allergy after it caused severe eczema and they finally figured out what was up with me. Dr's had my mother watering down my formula, I could never go without a bib as sick was always hanging out my mouth, bad eczema, nappy trouble to the point I'd scream in agony trying to go. They said to use half the formula (i.e 4scoops to 8oz water instead of 8 scoops) and to feed me more solids (9mths old and badly underweight before they believed i was poorly and stopoed calling her a paranoid 1st time mother even tho I was her 2nd child) Solids wasn't easy because I would only eat fish fingers, wotsists and oat krunchies cereal.
You know how you get all congested after excercising, and wheeze for a bit before everything settles down again? No? Yeah, that’s because most people don’t have excercise induced asthma. I was in my 30s before I knew that was a problem and not normal.
Daughter has that. Was diagnosed in middle school. Couldn't figure out why she was coughing constantly, especially after a basketball game
This one still aggravates me. I love sports and was a very good athlete, but my participation was limited because I often had trouble breathing. I wasn't diagnosed with EIA until college and my athletic career was almost over.
TIL that exercise induced asthma is a thing. I definitely had this as a kid. I used to be very wheezy after running and had to take a few minutes of deep breaths to settle back to normal breathing. It doesn't seem to happen these days (I generally avoid running to be honest).
I had regular asthma as a kid, needing a nebuliser often, (until I was about 4) but had no more attacks so parents thought I was cured (I don't know how, especially as mum was a nurse, though admittedly only newly). Then in primary school I go into cross country running and found it was really hard to breathe and asked mum about asthma. She said I was being silly, but I insisted, and she finally took me to the gp. Despite him being a terrible doctor in most cases, he did at least send me for stress tests and diagnosed exercise-induced asthma. He still wasn't great, never said anything about spacers (may not have learned about them, this was the late 90s, but he was well past retirement age) so I didn't use them, even after having an attack when on a camp and the first aid person giving me one to use. I finally was convinced to try one by a pharmacist when I was buying an inhaler off-prescription, but didn't use it much as I didn't think it made much difference. I had learned about...
...in my first aid training for teaching, but still thought it was mostly for kids. Then I had a particularly bad attack when I was 30, combination of exercise, stress and allergies all at once and I didn't have my spacer with me, only the puffer. Worst attack I've ever had, mum ended up calling an ambulance. They made me use a spacer with my puffer and even in the time between my house and the hospital, my breathing was a million times better.
Load More Replies...Same!! I just thought the boot camp exercise class I was in was super hard for *everybody*
I was in my 40s when I was diagnosed with exercise asthma. It made so much sense when I thought about growing up. I loved sports but was always congested after running. About the only sport that didn't challenge my breathing was swimming. I blamed it on growing up in the 50s when everyone smoked and breathing in all that second hand smoke
Burn-out. I remember saying it was too much and just.. continuing. "Guess it was fine" *he was in fact, not fine* That moment when your psychosomatic issues get so extreme you can no longer leave the house. And recovery is so slowwwwwwwww..... Still going through it. Doing much better than before but nowhere near good enough. -infinite/10 experience, do not recommend. Take care, y'all, too much is too much.
Our healthcare system and our work culture do not allow us to take care of ourselves without being made to feel guilty or punished for taking the leave earned by our employers.
I've been finding it harder to leave the house. This has been going on for over a year. I had to quit my last job because of anxiety attacks
I've been there, three times. It's horrible. Knowing where it comes from is half the battle. Take as much time as you need, and then some more than that. Don't listen to what anyone thinks that's good for you, other than yourself. You're doing a great job. Keep it up, but only at your own pace, by your own rules.
I almost cried the first time I tried medication for ADHD, my mind was so quiet and peaceful EDIT: There’s a lot of questions in the replies. I’ll try to answer a few here. I’m also on mobile so sorry lol. When did I get diagnosed and how? I think I was like 20? I was able to strongman my way through an associates degree without knowing I had ADHD. This was during covid. My career started shortly after. A few months later, I hit the worst period of burnout in my life. I was so forgetful I was terrified I was developing early dementia, I took so many naps I was scared I had narcolepsy. I straight up did not see other cars when I was driving. I lost things frequently and I couldn’t keep up with laundry or dishes for the life of me. I was miserable. Oh and my great new job? 8 hours a day at the computer, work from home. Trying to make myself get something done was almost physically painful. I just kept wandering away from my desk. I was so distraught I finally mentioned it to my doctor. I had originally made the appointment for something else, but as our time ran out I decided to throw it out there. I was worried she’d think I was stupid given how many people try to self diagnose via the internet, but I had really identified with a lot of content I saw online. She gave me a referral to see the psychiatrist. I had heard a lot of stories about people who had to fight for their diagnosis, but my appointment with the psychiatrist was great. We just kinda talked for a bit about the symptoms I was experiencing and she was like “yup that’s adhd”. She also said that she sees cases like me all the time, kids who do okay undiagnosed until they reach their tipping point and just completely fizzle out. Especially girls/women. What medication do I take? I’m on 30mg of Vyvanse now, while it has been life changing, there’s some side effects I’m going to bring up at my next appointment. I’m not sure if I’m on the right medication or dose. To my understanding, medication should just make you feel like “you but more productive”, but I’m having problems with irritability and my husband accidentally let it slip that I’m “more fun” when I don’t take it, and he’s not wrong. Sometimes I miss my pre-vyvanse personality. He still supports me 100% though, medicated or unmedicated. Anyways, if you made it this far thanks for reading. I don’t have access to a therapist so typing my experience here is kinda therapeutic.
The having to “fight for a diagnosis” part is so frustrating. You’re so incredibly lucky that both your GP and psychiatrist actually listened to your proposed diagnosis. I have some annoying mental health struggles which, after suffering on my own for over 10 years, I successfully self-diagnosed. I was actually so relieved to know what I have because that actually made me understand why I was the way I was. Last month for the first time in my life I consulted a psychiatrist and without even asking my full medical history, she discredited my self diagnosis. I myself am a graduated medical student so I know the hows and whys of psychiatric diagnoses but my psychiatrist just doesn’t want to admit that her patient can be right. It’s so frustrating. I’m waiting to just go ballistic on her at my next appointment because the antidepressants she simply prescribed me aren’t exactly helping me out fully and it’s making me miserable.
Yes! Do not put up with that psychiatrist's cr@p!!
Load More Replies...I got diagnosed with my daughter because I kept telling the doctor, "yes, she has the problem, but everyone else does, too. " apparently not everyone else did those things.
Yup that’s why it took so long to figure out my whole family is ADHD or autistic. Everyone just assumed it was normal. Nope, me, mom, and brother are ADHD, and me and dad are autistic.
Load More Replies...I got diagnosed with adhd recently but hopefully soon I'll start the medication
I talked to my doctor yesterday and I’ve started medication for ADHD traits today! 😊
That's kind of crazy to read. In my country you can only get a diagnosis through a psychiatrist and they'll do a lot if testing. Only then can you get medication
Load More Replies...I have ADHD and while it’s not a come-to-Jesus my-brain-is-finally-quiet moment (I think it’s bc I have autism too so they don’t work quite the same), vyvanse helps a lot with my impulse control, emotional regulation, and executive function. Unfortunately, it’s also an appetite suppressant and I will often forget to eat until I get dizzy…
I had the same issues. I remember in elementary completely blanking out and then coming back into the teachers directions and I had no idea what to do. It was a horrible feeling for my little self. I would space out and day dream so damn much. I did graduate top of my HS (granted it wasn't very competitive) and did great on my college entrance exams. Sometimes just being smart and able to grasp concepts quickly does make up for lack of consistent studying. Then in college with Chemistry 2 and Physics 2 is where I started falling behind. Got depressed and got treatment for it and that's where my ADD was diagnosed. Now as an adult I stay away from the medication since I realized it wasn't actually helping me and only causing physical problems, but knowing my problem Im able to manage it.
Vyvanse was horrible for me. I was irritable, had the shakes, and couldn't eat when I was on it. They switched me to 27mg Concerta and my life changed! Love it!
Only reason my mum got tested at 60 was she was listening to my sister go through the questions and was answering them all the same! My sister shouldn't have even needed to do the test again, she was diagnosed at 6, but the government changed the rules sometime during Covid that adults with ADHD had to be retested before being given a new prescription (cue moths of hell as she had no meds but no one was giving appointments). Unfortunately, Vyvanse and dexo-amphetamines haven't worked for her, in fact I think she has been worse but has taken a while to find a new pscyh who will consider anything else.
I thought I had bad period cramps. Then I thought I had acute food poisoning. Turns out I had ovarian torsion and my ovary was slowly dying over the course of a few days.
Ovarian torsions (and testicular torsions) are extremely painful and if not treated promptly (they’re usually considered medical emergencies), you could lose the ovary/testicle which will obviously significantly affect your reproductive health. If you suspect you have a torsion get to the ER ASAP!
my mom had to have emergency surgery for this exact thing after being dismissed by ER docs TWICE telling her that her excruciating, ER-worthy pain was “just constipation.
Load More Replies...What are the symptoms? All these ovarian/gyno issues are really freaking me out.
Me too, just over a year ago! Thankfully I realised (or rather my dad did) it was more than period pain before the ovary died. They removed the cyst (10x10cms!) and righted the ovary and I didn't even have pain after, and reproductive health apparently all good.
Was always told periods are painful (ex: cramps). So for years I thought my incredibly debilitating period pain was me being a little b***h about it. Turns out I have both PCOS and endometriosis and, of course, fertility issues. FML. Edit : word.
PCOS here as well, which was a big cause of my obesity as a child/teen and made school hell, especially with the abnormal hair growth too. Got a gastric in 2013 though and have been at a normal weight for a long time. Still have irregular periods but that's not a concern to me.
PCOS, endometriosis and fibroids here. Fought for years for a doctor to really listen to me, then 2 years ago I got a new OBGYN and she was immediately like “we’re doing a hysterectomy in 2 weeks, something is definitely going on.” They ended up removing 10lbs of bad news from my body. I had no clue just how good life could be when you’re not bleeding and wishing for the means to rip out your inner organs!!
Load More Replies..."Just take some Advil. Nothing I can do about it." I hate doctors sometimes!
I've probably gone through hundreds of bottles of Advil since I was 11 and got my period. I could take 800 mg at a time and it wouldn't touch my pain. One doctor told me that "some women just have rough periods". Yeah no. I'm riddled with endometriosis and fibroids. It's NOT normal to feel that way when you menstruate. Thankfully I found a new med that keeps me from feeling like I'm dying all the time and I've been able to cut back on the Advil abuse.
Load More Replies...This is my wife. So glad she finally had some answers after a lifetime of confusion
Diagnosed with Endometriosis at 19. Now in 40's, and birth control no longer managing it. Had a very severe endo "attack" (nothing new) from right ovary, bringing pain like no other time with it. Pain hung around for another 3 days. Finally gave in and went to ED - was a ruptured appendix. Emergency surgery - not sure they got all pieces out. Dear Dr: Could us sufferers get a little lortab to mitigate these times, so we know any 24hr+ ongoing pain needs medical attention? We'd just like to feel like a "normal person" now and again. TIA - every woman with endometriosis
Bent over to pick something up and felt a twinge in my groin (I’m male). I thought perhaps it may be a hernia. I wasn’t too concerned about it then things started to ache a bit. I went to the doctor only to find out I had testicular cancer. Fortunately after we cut out lefty and got all the results back from pathology it was staged at 1A seminoma. Meaning the surgery alone was all the treatment I needed.
I would give my left nut to know what that means.
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I thought I was constipated for a few days. Hurt like hell. Turned out to be diverticulitis and a perforated colon. My wife called the ER and they brought me in without triage and sent a chaplain. I lost a foot of my large intestines and almost died.
I agree. So miserable 😫 I am very careful of what I eat now.
Load More Replies...Same exact thing happened to me. Now I have a colostomy bag...not fun!
My sister had the same thing! When she told me her symptoms I honestly thought she had cancer and was going to die. Glad you pulled through!
That pulled muscle was actually a collapsed lung. After days of hot baths, massages, trying to relax-nah, nothing helped. No wonder.
Two years ago when obtaining an X-ray for a general health checkup, I discovered that part of my right lung is basically non-functional. The radiologists had no idea why there was a shadow (consolidation) in part of my lung. They kept repeatedly asking if I have or have had some infection and kept making me change position and adjust the hospital gown in case they were causing the issue. In the end when no one could figure it out they just asked me to consult a lung specialist and present the X-ray. He made me obtain a chest CT scan. And that’s how I finally found out that I have a rare congenital (from birth) heart condition in my early 20s. That part of the lung which is basically useless receives oxygen as normal but the vein that should drain it into the left side of my heart instead drains into the right side of the heart, essentially wasting the oxygenated blood from that part of the lung. I never experienced any significant symptoms and I still don’t have any issues.
My daughter was born with a lung sequester that received blood from the aorta... Was diagnosed before she was born . Fixed with surgery when she was 1
Load More Replies...I just pulled a muscle in my back and the pain is excruciating. Nothing seems to help. Insurance doesn't cover a chiropractor unfortunately. Glad I went anyway, found out I have Degenerative disc disease.
My mum has that I think. Constant pain, and she has lost 3 inches. She was already very short!
Load More Replies...I recently had a pericardial effusion - which is a build up of fluid around your heart. I stupidly thought I coughed too hard or something and that's what was causing my pain. So I didn't go to the doctor until 3 days later. That same day I ended up in surgery to put a drain in my chest to get rid of the fluid so it didn't stop my heart from beating properly. Yeah, I'm an idiot. ;)
Oh my goodness you're very lucky tamponade can be fatal because it happens so fast!
Load More Replies...My brother in law had a collapsed lung. My husband was visiting him in the hospital and made a stupid joke. My BIL laughed so hard his lung un-collapsed.
How can you call it a stupid joke, when it did such a great job?
Load More Replies...I'm likely not articulating correctly, but I thought my not going outside and fear of people was me just adjusting to living in a new country. Turns out I have CPTSD from my childhood. I've been living in the new country for a decade and if anything, I have gotten worse. A visit to my parents last year after many years away kind of "broke" me, in a sense, and long story short I am seeing a psychiatrist in a few months (he comes very highly recommended so there is a wait) to try and get this fixed. To anyone reading who has kids and is living in domestic violence: this is one possible outcome. I don't talk to my parents anymore. I know it's hard to leave, but please think of your children and their well-being. If you can't think of your children's well-being, please consider whether you want a relationship with them when they're adults.
I was nearly 40 before I realized how much my parents' abuse had affected me. I went no-contact and most of my stress went with it.
It took my daughter pointing out to me about some shared behaviours and her mentioning that she has borderline personality disorder for me to go get tested. Turns out I have it too, and finding out that a lot of what my family did was emotionally abusive has really ruined a lot of childhood memories for me. Thanks mum 😣 Like Sunny I have gone completely no contact with my mother and I’m starting to feel better
Load More Replies...I cut off my mother 20 years before she died. Best decision I ever made. I have also been diagnosed with CPTSD due to childhood trauma. I would never wish my parents relationship on anyone. In turn, I would not wish my broken self on anyone else. Ever.
Noooo don’t say that! You have Pandas here who understand *hugs*
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I kept telling my OB I was worried about my legs/ankles swelling in the later part of my pregnancy. They dismissed it—told me all pregnant people experience it.
At 39 weeks I got sent to the hospital for extra monitoring on the baby due to an irregular test . She ended up being fine but my blood pressure was crazy high. I was induced that night and then given an emergency C-section due to severe preeclampsia.
Not a fun start to my baby’s life but she’s here and healthy so I can’t be too upset.
How can an OB just dismiss a clear sign for preeclampsia? That's so neglectful!
Right? Here (Switzerland), they routinely monitor pregnant women for that. It's one of the most well known complications that can happen during pregnancy.
Load More Replies...It was retroactive, but when I wore prescription glasses back when I was 24, the first thing I said was "people are supposed to see this?" Everything looked like the sharpness meter on my vision was maxed out. I just kinda thought nobody could see details in things past 20 feet lol.
I got glasses in 6th grade after the encouragement of one of my teachers. The first thing I said when I put them on was "there are leaves on the trees!" My mom cried.
The leaves were the first thing I remember being in awe about too!
Load More Replies...After begging my parents to get my eyes checked bc I couldn't see the damn board at school and them telling me I was lying I just wanted to be special like my siblings, turns out I needed glasses and yes the very first thing I did when I got them and put them on on the ride home, I was shocked! I was like omg the greens are so green the sky is so BLUE, y'all see like this ALL THE TIME?!? My mom just laughed. I was 17 at the time, like ffs I could've done so much better in school if I could've just effing see and maybe if my parents ever believed me...
Got glasses in I think 4th grade. Eye Doctor was next to a field, behind which was a Walmart. Walmart and the field were vaugely the same-ish color. Sorta. Not really. I said one thing that made my mom feel bad it took that long to get me glasses - "There's a building there?!"
My mom recognized I had a vision problem in first grade. I could read just fine when I had a book in my lap but I couldn't read from the blackboard in school. (Yeah, pretty clear from that.) She picked out some awful PINK SPARKLY CAT'S-EYE glasses for me! I've hated pink for forever! Next time I needed glasses I got to pick, and I chose one with a rich brown at the top of the frames and white at the bottom.
Please realize I'm super glad my mom was proactive!!
Load More Replies...Until the age of 8, my brother had never seen a straight line. He knew about them and he knew using a ruler would make something that the teacher would accept. Turns out he has 2 left eyes (your eyes are implanted a bit different in order to see stereoscopic).
Two left eyes. I never heard about that, but I can see why it could cause problems.
Load More Replies...I got glasses in 3rd grade and the first thing I did was look out a window and say wow
I was so young when I had my eye problems picked up (at the compulsory school starting tests) that I don't remember what things looked like before. I certainly remember the trauma of eye tests and particularly eye drops though! I still can't see someone getting, or think about, eye drops without my eyes watering. It's the only part of medical dramas I can't watch!
Sometimes it is difficult to find out if there is anything wrong with children's eyes unless it is very evident. We had a girl in kindergarten class who did rather badly, but one day I noticed, that when she looked at the board she kinda half closed her eyes. I suggested to the teacher to move her closer to the board (she was sitting in the third row), and it actually helped. But nothing was found wrong when she had her sight tested!
I was in grade school. I said how nice it was that walk and don’t walk were different colors so you could tell them apart. She said, “Can’t you see the letters?” I replied, “No, can you?” I got glasses pretty quickly after that.
Used to drop my makeup all the time when I was getting ready in the morning. Ugh, so clumsy. Ended up being myoclonic seizures.
My dog has full-body myoclonus from neurological damage from having distemper as a puppy. Not quite the same as the seizure form, as his are nonstop. I can only imagine how terrifying it must be for a human to have myoclonus/myoclonal seizures!
I'd have these really minor facial twitches, like a single small muscle in my upper lip or eyebrow. Nothing even severe enough to be visible by others. However, they'd last for a few weeks straight, even while I was trying to sleep.
I didn't think twice about it. They always went away on their own, after all!
After I suddenly went blind in my left eye and got diagnosed with multiple sclerosis, I connected the dots.
Edit: Facial twitches are normal! Just because you have twitches often doesn't mean you have a problem, especially if you don't have any other reason to believe you have multiple sclerosis or any other disease. My twitches were CONSTANT for WEEKS. And even then, there are other, less serious (and probably more likely!) things that can cause that. Please don't let my comment stress you out.
A multiple Sclerosis relapse is characterized only if the symptoms are permanent during at least 24 hours. And there still are many, many other explanations other than MS.
I had one of those twitches just the other day, in my eye, but haven't had one in years, so to suddenly see this post about them made me chuckle. Mine are just the normal ones though, nothing actually serious.
I used to get muscle twitches all the time especially around my mouth and eyes, more than was 'normal' but no one seemed concerned, even though I worried it would affect me driving and I sometimes couldn't smile for photos. They have mostly cleared up now I take Lyrica for my fibromyalgia. I still get restless leg syndrome, but I also take a lot of magnesium and tonic water to help with that, and it mostly affects me at the end of the day.
I hope you're getting effective treatment. I believe new ones are available for MS.
Apparently your belly button isn't supposed to hurt. It was an umbilical hernia. :(.
I didn't know there was a problem when I went from an "innie" to an 'outie' until the wife noticed. You're not supposed to be able to push in your belly button like that. Surgery took care of it, no strangulation, thankfully.
My dad had that for 20yrs. He just assumed he'd developed an outie from age related weight gain. Wasn't until he was having gall bladder surgery that the surgeon spotted it and referred him back to himself for another surgery once healed from the first.
Load More Replies...oh, no; "hernia" and "strangulaton" are not two words you want to hear at the same time..
Load More Replies...I didn’t realize other people didn’t hallucinate. When people would say “did you say something? I thought I heard someone say my name.” I thought it was the same thing as me hearing voices. Apparently when people think they heard a voice that wasn’t there, that was very different than me screaming and crying and praying because I heard a scary voice say awful things and didn’t know where it was coming from.
There's so much more work to be done to understand how the brain works. If I had my time again, it would be fascinating to work in neuroscience.
I had this in my teens. It stopped for years and now it's coming back with visual as well
Finally one I can answer! Was diagnosed with a habit cough, but then I started developing intense pain in my legs when walking even short distances. I had blood work done, and my doctor told me to go to the ER immediately. I got diagnosed with a blood clot in my heart, and blood clots in my legs, with heart failure and kidney failure. I had fluid around my heart, which explains the cough. I was 21 years old when this happened, and I’m 24 now. I’ll be on medication for the rest of my life that keeps my heart from failing again, and I’ll need a kidney transplant at some point in the future. My medical goal is to keep my kidneys functioning for as long as possible. Turns out that sometimes a cough isn’t just a harmless tic.
My mother has had a persistent cough since the early 70's. Doctor's were never able to figure out why.
Any cough that lasts longer than 3 weeks needs to be checked by a doctor. Even if it's intermittent over the 3 weeks
Slogging through life. I felt like everyday was like treading water. Turns out my thyroid gland wasn’t working well. I got on levothyroxine and within a day I realized “this is how people do things, holy s**t”. Life changing.
I'm on Levothyroxine for Hashimoto's. It's definitely made some great improvements in my daily life! Better living through chemistry as my dad says.
Everything is a chemical, so no shame in that. I had a TSH value of 60 (while something around 2 is normal) before getting diagnosed with Hashimoto's. I also get substituted now, but am still tired all the time.
Load More Replies...I was prescribed that and it made no difference. So I still have no idea what's wrong with me
I guess that's why my doctor includes thyroid function in my 6 monthly blood tests, my fibromyalgia symptoms sound very similar, but she always double checks it's not something new
I smell things that don’t exist. I casually mentioned to my doctor and it turns out they’re a type of seizure. He wanted to put me on meds. I said I thought that was a bit much and didn’t want them. But according to him (and later, a neurologist) they can turn into grand mal seizures. So I’ve been on anticonvulsant meds for 20 years.
Uh, this happens to me, a lot. I have always thought it just heralded a migraine, as I almost always get a migraine after smelling phantom smells. I… think I should probably mention this to my GP.
Olfactory hallucinations can be part of the migraine predrome. I get a burning smell before bad migraines.
Load More Replies...OK, this actually happens a lot to me. I always ask my coworkers if they are able to smell "XYZ" and I always hear no. I am pretty good with my nose and my palate. But now I'm wondering if it's just me?
I should probably stop reading these... I get this too. Suddenly smell something that isn't there. Like, I'll wake up because I can smell smoke and I think something is on fire. It doesn't happen only when I'm asleep, when I'm awake too. And my nose is veery sensitive to smells
What?! Me too! The smoke one especially. And now I think I'm going to lose everything in my house. I also smell cheese when I get a pneumonia.
Load More Replies...
Suddenly getting dizzy, heart racing, hearing fading out, eventually throwing up and passing out if I go too long without food.
Didn’t learn till my mid 20’s that not everyone had piles of snacks everywhere they went so they didn’t end up on the floor.
I’ve been tested for diabetes five times and it’s not that so who knows. Just can’t get too hungry or I’m f****d I guess. .
Sounds like hypoglycemia, which is a separate condition from diabetes. I have reactive hypoglycemia which means I get these same symptoms when experiencing times of illness or extreme stress. It happens very fast too. Thankfully I have gotten pretty good at recognizing the crash that is about to happen and getting myself in a safe location and sitting/laying down.
I have similar symptoms but my blood work always comes back normal, so the doctor just shrugs and is like "Well, everyone gets hangry."
Load More Replies..."Get safe, get cold, get flat, get low. Eat something fast and something slow." (fast/slow sugar absorption, that is.)
Yep, hypoglycemia. Docs would test me for diabetes constantly and since it wasn't diabetes I was "fine" and no explanation Wasn't until I actually did develop diabetes (separate issue) and talked to a nutritionist that they went "um, your doctors are all idiots, that's textbook hypoglycemia"
I'm diabetic with type 2. I'm also hypoglycemic and I get terrible shakes when my blood sugar drops through the basement. I also have snacks available, they're usually fruit and protein.
I've been dealing with hypoglycemia since the mid 80s. I manage it by eating several smaller meals a day instead of three larger ones. Still, occasionally things go awry and I get shaky and cranky. If my wife sees this and I don't recognize this, she just says, "Shut up and eat something!"
Hypoglycemia is no joke. FR. People think because I'm fat I can't possibly have this🙄
This is so weird. I literally just experienced this tonight. Twice in like 30 minutes. I had gastric bypass surgery so I thought I was just dumping (not as gross as it sounds, just means my sugar drops quickly) but then it happened a second time. I nearly passed out. Thankfully I have a Dr appointment Friday so I'm going to bring it up
Had this when I was younger and very fit, no diabetes just working too physically hard. I drink wine now, you’re welcome.
Had what I thought was a pimple on my armpit that I ignored. Wasn’t overly concerned, thought it was something that would just go away. A few weeks later, I came down with what I thought was some sort of flu. The flu lasted longer than normal so I decided to go to the emergency room to get checked out. Turned out that I had a large tumour in my chest caused by lymphoma and the ‘pimple’ on my armpit was actually a swollen lymph node.
OMG just today (since several hours ago now) my armpit was feeling sore and I touched around and felt a pimple of sort which is what was causing the pain (as it was getting squashed when my arm is hanging down). I’ll wait a bit and get it checked out.
If it’s smaller than 1cm, doesn’t hurt unless you touch it, and doesn’t grow or change dramatically, it’s almost certainly just a zit. Don’t touch it, maybe put a little cream on it. You’re probably fine.
Load More Replies...Was declining in strange ways at work. Thought it was my 30s catching up to me...nope heart went to 10% output and had a heart attack at 33.
That weird lump on my neck that appeared out of no where was skin cancer. I’m now sitting here with 8 stitches waiting for the all clear from pathology 🤞🏻.
Mouth would be itchy when I ate most fruits, parents told me to stop being dramatic and making excuses to be picky. I have OAS and have an epipen now. Also had terrible cramps and would get my period for a whole month then not for three as a teenager. My Dr said that could happen sometimes and put me on bc. Turns out my cramps were chronic cysts from pcos, my body is over producing testosterone and it was affecting a lot of other aspects of my health.
Pcos sucks. I'm convinced I was only able to get pregnant when I was put on birth control because my hormones were corrected.
I always thought everyone’s feet hurt when they walked after a few minutes. Turns out I have completely flat feet. My husband figured this out when I was in my 20s.
Hahahahahahahahahahahahahaha I thought that was normal? But it only happens to me after some hours so I think my feet are just mostly flat.
Oh that's normal, just if it happens after a few minutes then you have flat feet. It happens to be too and I have a high arch.
Load More Replies...Overly arched feet are a bastard too, at least flat feet are touching the ground. The positive is that I can run,jump,skip in high heels 👍🏻
I didn't find out that I had flat feet, or that my feet weren't normal, until 7th grade. Walking through the locker room after showering in gym class, I noticed that all the other guys wet footprints had the classic footprint pattern (toe pads, ball, space, then heel pad), while mine was one big blob. I wear orthotics now and have suffered from plantar faciitis, which can be caused by flat feet, but my feet still hurt quite a bit sometimes.
I have the wonderful combination of small, wide feet with absolutely no arch in any shape or form. My feet have hurt since I was a kid. Due to funky bones, custom orthotics or shoes would be ideal but it's super expensive to get them made. I just stretch out my shoes the best I can and hope for the best.
Cheap arch supports only cost $10 to $30. Don't expect them to work straight away, after about a month they'll adjust to the shape of your foot and will last for up to 5 years.
Load More Replies...I don't even understand arches in your feet, like where do they come from? how do they form? is everyone just lying when they say it's normal? I don't have that many problems with my flat feet
I was having another stressful argument in 2003 when I heard a ringing, my heart started beating fast, and I couldn't understand speech nor speak myself. This was for around 30 sec. I knew something was wrong and called the advice nurse. She laughed at me and told me I had a panic attack. No I didn't. Turns out it was a petit mal seizure. I know because I suddenly became epileptic at 27. I was told they didn't know why, but now I realize it was stress induced.
I was on my grad trip and had really intense pain around my neck and shoulders. Over the course of two days my limbs lost sensation and for some reason I thought it was a trapped nerve in my neck ? It wasn’t until my face went into paralysis did I go to an ER and get diagnosed with Guillain-Barré syndrome.
Headaches, sinus congestion, brain fog, coughing… I’m allergic to chemicals and fragrances.
Perfume is awful. Hold nose, hand over mouth, and RUN through the perfume section of each department store. Either that or stop breathing.
Brain fog can be a symptom of allergies? I'll add that to my list, already fibromyalgia and anxiety cause it
All of my life, I was the last person running in P.E. I could run, but not at the pace or the consistency of everyone else. Anyway, every time I told someone that I got a burning can't breathe feeling, they'd tell me I was "out of shape." And "needed to train harder." So I thought everyone gets this feeling, and I'm just being lazy. Also, it seemed to p**s off middle-aged P.E. teachers, like I personally planned to challenge their authority? I had coughing attacks at night once and went to the doctor to find out I've always had asthma.
Had the same...but it's thalassaemia (beta minor). But because I'm Swiss nobody thought about that. I diagnosed myself when I learnd my prefession as a laboratory technician. My haematologist was flabbergasted 😆
I don't mean to be the Ignorant American here...but what does being Swiss have to do with thalassaemia?
Load More Replies...Ditto. I only learnt I had asthma when I attended a research study on asthma as a "control", as someone who didn't have asthma, at about age 50. They kindly informed me that I did in fact have asthma. I'd thought that everyone was like that.
Ok, this is a serious question so please don’t laugh. Is it normal to have a burning sensation in your chest after short periods of heavy exercise? I get a tight burning sensation and a little short of breath after running pretty short distances but it doesn’t really happen with other kinds of exercise. I am also horribly out of shape but this has happened as long as I can remember.
I get that after exercise, I have exercise induced asthma. If you can't hear a stridor (wheeze) it probably isn't asthma, but could be something else, so I would check with your doctor. They might put you through a stress test to diagnose something.
Load More Replies...Had a girlfriend ask about my “third testicle” which I had convinced myself was just always there. A couple years later I had a physical exam and the nurse casually asked when I was going to take care of that inguinal hernia. Oops.
My Doctor told me my calcium level was too high. I was like "So?". Turns out that's a sign of hyperparathyroidism. Which, oddly enough has nothing to do with the thyroid. Nope, the parathyroid is right behind the thyroid and has four little glands that control your calcium levels. Too high or too low and you're super f****d up. Primary hyperparathyroidism is usually caused by a benign tumor on one (or more) of your parathyroid glands. The cure is surgery. The good news is after surgery you should have a laundry list of symptoms resolve. Google it, it's wild. So if your doc says too much calcium, it is a thing. And I'm really not taking this lightly, some people have a really hard time being diagnosed. You need a good endocrinologist and primary care doctor. And then a good surgeon.
My mom almost died because she had this and didn't take the symptoms seriously. I finally forced her to see GP (had to threaten her with calling ems) and was very scared for a while but she's one year post surgery and doing great. If you don't have a primary care doctor, get one!
For a couple of years, I sarcastically bragged about my ability to fall asleep anywhere within 5 minutes. Car rides, couches, book on my face, etc Turned out it was sleep apnea I felt SO good once I got treated for it, leveled out a lot and am so glad my husband had me get checked out when I was too tired to figure it out myself.
I have pretty bad sleep apnea. I’m awful about using my CPAP machine though, as it’s so incredibly uncomfortable that it’s hard af to fall asleep while your nose feels like it’s getting forcefully violated with stale warm air. :/
Also ask your specialist if you can try a new machine. My CPAP has a cooling code, I think, as I don't get warm air. You could possibly also turn off the humidifier part, although you might then get overdry mouth and/or nose. Do keep trying! I was falling asleep in dentist chairs etc before I could find one that worked for me. Try a different nasal mask as well.
Load More Replies...My ex-wife made me go for a sleep study because she said I would stop breathing in the middle of the night. Turns out, there are two causes for sleep apnea. One is your tongue resting on the back of your throat, cutting off your airway. The other is neurological (you just "forget to breathe"). I have both, apparently. I still remember waking up the morning of the sleep study. OMG... I felt so ENERGIZED! It turns out, I stop breathing on average every 3 minutes, I had never in my life until that moment actually gotten a "Deep sleep". Now, CPAP every night, and I'm out like a light. As for the neurological part, I keep a small fan on my desk at work blowing in my face, which subconsciously reminds me to breathe. My life changed that day for the better.
Try a different style mask, or even pillows. They make a difference depending on the position that you sleep in. Many Sleep Centers try to put you on either the least expensive one, or one that they get a kick back from, or something like that and for many people those don't work
Similar to mine. My husband noticed I stopped breathing at night in my sleep. With the cpap I did not fall asleep everywhere anymore. I did not have the feeling that I was always particularly sleepy or sluggish though.
I really hope I never get sleep apnoea and have to use a CPAP. My brother used a bi-pap (pushed air in and forced it out) and I held it over my own face once and it terrified me, I stopped breathing from the shock. I'm sure I would get used to it, but hope I never have to find out.
I can usually fall asleep in bed at night time within 5 mins. I totally relax my body and regulate my breathing. I can't fall asleep within a few minutes at any time of day though, so I don't think I have sleep apnea
No you probably have not. If you had, you would just be sleepy in certain situations and dose off. Like being a passenger in a car or sitting in a dull meeting.
Load More Replies...I just found out I had almost no sense of smell for most of my life. I was diagnosed with hypothyroidism, started taking the necessary medication and suddenly it’s a whole new world of scents across distances that I didn’t know was possible.
I never lost my sense of smell but one of my early Hashimoto's symptoms was everything smelling off -as in things smelled rotten. It was awful.
Sometimes getting tingly feet. I thought I was just worn out from the day or anxious. Nope, Multiple Sclerosis. If you get numbness, fatigue, headaches that ibuprofen helps but not paracetamol, tingling in your hands or feet, off balance, forgetful, brain fog, please get checked out. Especially if you have ADHD as some of those symptoms can be written off as ADHD. Edit: How I got diagnosed - all the symptoms I put down as something else; my ADHD, anxiety, having a toddler, getting older. This time last year I started having seizures (the pee your pants, jiggle on the floor type). The neurologist put me on anti-seizure meds thinking it was epilepsy while I waited to get an MRI. The MRI showed I have white matter lesions (basically scar tissue) in my temporal lobe that had become inflammed (temporal lobe is where most seizures come from). Seizures arent very common in MS but still a possibility. Confirmed with a lumbar puncture. Find an MS checklist from a reputable website, fill it in and take it to your appointment.
If you just have the tingling in your hands and feet that might be neuropathy and you might have diabetes. None of these other symptoms are indicative however! Don't freak!
Constant nausea in the mornings even if I've only had water to sip on. Nope, stomach ulcers due to stress and anxiety levels being through the roof for a sustained period of time. I would be at work 4 - 5am start and go and dry wretch over the loo a few times, people asked what's up and I'd say "eh I'm just having the morning nausea" (I had it for years at this stage, and no, not preggers, no chance of that!). Wasn't until one coworker was like "that isn't normal but you seem like it is", my dumb a*s was like "wait, you/normal people don't get nausea often in the mornings?". "Nope, go to your dr". One endoscopy later and I'm on medication and an altered diet. Rarely get them pesky ulcers now!
stuff like this confuses me... it seems like at some point in your life you would have been around people in the morning who would not do this. like how did you find that "normal"... i am seriously curious because it just seems like something you should know is not normal.
Stress and anxiety do not cause ulcers. However, they can cause longer healing times and make you more likely to get an infection (which is what causes ulcers-infection).
I used to get reflux most mornings in high school. Had a gastroscopy and they said it was gastritis with no obvious cause, put me on meds and left it at that. I was on meds for it for years, until I stopped getting it around the time I started on meds for my fibromyalgia. I don't know why that helped, but after getting problems again almost a decade later, I worked out it is caused by IBS. I now avoid onion, garlic, potatoes and numerous other things and it's mostly gone again.
A painful toe that was a bit "weepy". It was aggressively ingrown and I had to have surgery under localized anaesthetic.
Chest pains while running. I thought I was just out of shape! Turns out I have an irregular heartbeat.
See this would freak me out because I get tight burning pain in my chest when running (but not from any other exercise, it’s weird), but I have to get annual EKGs for meds I’m on. Yay?
Feeling like you're going to pass out/passing out every time you stand up, and getting a very intense headrush isn't normal. Apparently I have low blood volume and was anemic. I no longer get the headrush because I got treated for anemia. Edit: also having your tongue tingle when you're not allergic to anything/havent even eaten anything apparently isn't normal, but my doctor cant figure out the cause..
OHHH so THAT’s why I get lightheaded and dizzy and my vision blacks out when I stand up to fast. I do have anemia. Huzzah for heavy periods.
I get the tingling in my tongue too sometimes... This list has officially made me a hypochondriac
I wish the iron tablet I'm on would stop the dizzyness. It doesn't happen as often as it used to, but hasn't gone away completely.
Coughing up blood. In my defense I was told a lot of blood was something to return to the hospital for, I guess I don’t know what constitutes a lot of blood. Was hemorrhaging into my lungs.
I would have thought coughing up ANY blood would be cause for serious concern
If it’s a few flecks, AND you’ve had throat irritation or been coughing a lot, it’s probably just your throat is a bit raw and sensitive. If it’s whole drops or blobs GO TO THE DOCTOR
Load More Replies...Starting 15 years ago as a freshman in high school I had migraines, nausea, extreme tiredness, constipation, skin rashes, randomly would throw up, stomach cramps, weight loss then weight gain 2 years before diagnosis etc. I always had a reason or excuse migraines—neck arthritis, tiredness—full time college student with 4 kids, nausea—ate too much or to greasy food, skin rashes—hormones. I also was chronically anemic, low calcium, low vitamin d. All of a sudden one day woke up with worse pain of my life in lower left quadrant then started non stop vomiting thought food poisoning. Well 3 er trips, being admitted for 3 days, 2 cts, 3 ultrasounds, hospital refusing GI consultation “because it’s probably just ovulation pain”. I got in with GI had an endoscopy and colonoscopy within a week. Results came back Marsh 3b celiac disease, I feel so much better gluten free haven’t felt this good in 15 years and all my symptoms went away as long as I don’t get glutened.
I only realised my gluten intolerance was actually coeliac's because the dietitian (that I was seeing for a completely different reason) put together the facts that I knew I had one faulty gene, already diagnosed with one autoimmune condition, had chronic low iron and vitamin d levels and was lactose intolerant. I had already been eating gluten free for years, after starting on a low fodmap diet for IBS and realising I reacted to sourdough bread, even though it should have been okay. I think the gene decided to kick in after I stopped sharing a house with my brother who is ceoliac, where I ate gluten free except for snacks, and started eating more of it again.
Load More Replies...Mate of mine when I was 18 had a very sore chest, went to the docs and got antibiotics for a chest infection. Didn’t clear it. We went an away on a summer hol (Ibiza, I leave that to your imagination) , a big group of us, we imbibed a LOT of alcohol and ‘recreational’ stuff. Came home, she’s still struggling, sent off for x-rays of her chest. Nope, nothing there. Turns into chest and stomach pains. She’s properly ill. Doc asks her about her depo injections (birth control), she says she’s upto date and not missed a single injection. He suggests a pregnancy test anyway. Yup positive test for being pregnant. In fact VERY pregnant. Baby boy born four and half weeks later. She’d had antibiotics, alcohol, ‘recreational’ fun, an x-ray and basically been an 18 year old lass having fun. She wore size 8 jeans and bikinis right upto 7 and a bit months, no signs of being pregnant. Her and her partner had a very short time to get used to the idea! No issues for baby thankfully, he’s now 31.
Happens more often than you'd think. I once did a temp job to cover for a girl who called in sick with what she thought was a stomach bug and had a baby the same day.
Load More Replies...Intense headache and a super runny nose … turns out to have been a tear in the spinal cord covering and was leaking spinal fluid through the nose.
Thought I had mild indigestion that lasted over 12 hrs. Was a heart attack
Should probably stop reading these before I self-diagnose cancer or something
Many of these stories have to do with an uncommon condition undiagnosed, or doctors who don't listen. Those may be connected. I roomed with an upper med student in grad school, we traded war stories at dinner daily. A Med School story I expected to see here, but haven't: Medical students are renowned for getting every disease they study. They learn early about the mind confusing things- they've done it. And they are taught this rubric when studying Diagnosis. "Common conditions are ... common: rare ones- are rare. When you're under the bridge and hear hooves overhead - think "horse." Not "zebra"." Good advice, of course. Unless- you're the zebra. I and my family are now certified zebras. I have baffled the entire Mayo Clinic; 3 separate times. My GP- had to take me aside to tell me- "I know this. You are sick." Yeah, good to know. You WILL find a doctor who believes you- keep looking, and try "zebra" on them. Me- Ehlers-Danlos; wife- polycythemia. On beyond zebra...
I just recently learned that your skin isn't supposed to tingle after using moisturizer. I've gone through more than 50 years of my life thinking this happens to everyone!
Very high pain tolerance has been more of a curse than a blessing. Severe ear infection I had no pain or fever. Woke up one morning having a little trouble hearing out of my right ear and it felt wet. Put my hand up to wipe the outside and it was blood. Ruptured ear drum and permanent 20% hearing loss in that ear. I also woke up one morning with weird unpleasant taste in my mouth and the back of my throat felt kinda swollen and weird when I swallowed. No pain though. Persisted a few more days then I got a rash on my chest and stomach. Spiked a fever so I went to the ER. Doc must have asked me six times if I had any pain in my throat and just looked surprised when I said no. Worst case of strep throat he'd ever seen.
My grades plummeted, I had no energy to do anything, I stopped doing my hobbies, I just sat and stared at the wall or lay in bed and stared at the wall. All my teachers and the school counselor said it was laziness and that I just didn’t care. Turns out it was severe depression due to being bullied mercilessly and having an absolute wreck of a home life. Who knew?
Starting 15 years ago as a freshman in high school I had migraines, nausea, extreme tiredness, constipation, skin rashes, randomly would throw up, stomach cramps, weight loss then weight gain 2 years before diagnosis etc. I always had a reason or excuse migraines—neck arthritis, tiredness—full time college student with 4 kids, nausea—ate too much or to greasy food, skin rashes—hormones. I also was chronically anemic, low calcium, low vitamin d. All of a sudden one day woke up with worse pain of my life in lower left quadrant then started non stop vomiting thought food poisoning. Well 3 er trips, being admitted for 3 days, 2 cts, 3 ultrasounds, hospital refusing GI consultation “because it’s probably just ovulation pain”. I got in with GI had an endoscopy and colonoscopy within a week. Results came back Marsh 3b celiac disease, I feel so much better gluten free haven’t felt this good in 15 years and all my symptoms went away as long as I don’t get glutened.
I only realised my gluten intolerance was actually coeliac's because the dietitian (that I was seeing for a completely different reason) put together the facts that I knew I had one faulty gene, already diagnosed with one autoimmune condition, had chronic low iron and vitamin d levels and was lactose intolerant. I had already been eating gluten free for years, after starting on a low fodmap diet for IBS and realising I reacted to sourdough bread, even though it should have been okay. I think the gene decided to kick in after I stopped sharing a house with my brother who is ceoliac, where I ate gluten free except for snacks, and started eating more of it again.
Load More Replies...Mate of mine when I was 18 had a very sore chest, went to the docs and got antibiotics for a chest infection. Didn’t clear it. We went an away on a summer hol (Ibiza, I leave that to your imagination) , a big group of us, we imbibed a LOT of alcohol and ‘recreational’ stuff. Came home, she’s still struggling, sent off for x-rays of her chest. Nope, nothing there. Turns into chest and stomach pains. She’s properly ill. Doc asks her about her depo injections (birth control), she says she’s upto date and not missed a single injection. He suggests a pregnancy test anyway. Yup positive test for being pregnant. In fact VERY pregnant. Baby boy born four and half weeks later. She’d had antibiotics, alcohol, ‘recreational’ fun, an x-ray and basically been an 18 year old lass having fun. She wore size 8 jeans and bikinis right upto 7 and a bit months, no signs of being pregnant. Her and her partner had a very short time to get used to the idea! No issues for baby thankfully, he’s now 31.
Happens more often than you'd think. I once did a temp job to cover for a girl who called in sick with what she thought was a stomach bug and had a baby the same day.
Load More Replies...Intense headache and a super runny nose … turns out to have been a tear in the spinal cord covering and was leaking spinal fluid through the nose.
Thought I had mild indigestion that lasted over 12 hrs. Was a heart attack
Should probably stop reading these before I self-diagnose cancer or something
Many of these stories have to do with an uncommon condition undiagnosed, or doctors who don't listen. Those may be connected. I roomed with an upper med student in grad school, we traded war stories at dinner daily. A Med School story I expected to see here, but haven't: Medical students are renowned for getting every disease they study. They learn early about the mind confusing things- they've done it. And they are taught this rubric when studying Diagnosis. "Common conditions are ... common: rare ones- are rare. When you're under the bridge and hear hooves overhead - think "horse." Not "zebra"." Good advice, of course. Unless- you're the zebra. I and my family are now certified zebras. I have baffled the entire Mayo Clinic; 3 separate times. My GP- had to take me aside to tell me- "I know this. You are sick." Yeah, good to know. You WILL find a doctor who believes you- keep looking, and try "zebra" on them. Me- Ehlers-Danlos; wife- polycythemia. On beyond zebra...
I just recently learned that your skin isn't supposed to tingle after using moisturizer. I've gone through more than 50 years of my life thinking this happens to everyone!
Very high pain tolerance has been more of a curse than a blessing. Severe ear infection I had no pain or fever. Woke up one morning having a little trouble hearing out of my right ear and it felt wet. Put my hand up to wipe the outside and it was blood. Ruptured ear drum and permanent 20% hearing loss in that ear. I also woke up one morning with weird unpleasant taste in my mouth and the back of my throat felt kinda swollen and weird when I swallowed. No pain though. Persisted a few more days then I got a rash on my chest and stomach. Spiked a fever so I went to the ER. Doc must have asked me six times if I had any pain in my throat and just looked surprised when I said no. Worst case of strep throat he'd ever seen.
My grades plummeted, I had no energy to do anything, I stopped doing my hobbies, I just sat and stared at the wall or lay in bed and stared at the wall. All my teachers and the school counselor said it was laziness and that I just didn’t care. Turns out it was severe depression due to being bullied mercilessly and having an absolute wreck of a home life. Who knew?
