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Article created by: Ilona Baliūnaitė
According to a report released by the Johns Hopkins Armstrong Institute Center for Diagnostic Excellence, an estimated 371,000 patients die, and 424,000 are permanently disabled each year because they are incorrectly diagnosed across a range of care settings.
Overall, the paper suggests medical providers misdiagnose diseases roughly 11% of the time. However, it's important to highlight that different conditions are missed at different rates. For example, only 1.5% of heart attacks are misdiagnosed, but spinal abscesses are wrongly identified 62% of the time.
To hear from the people themselves, TikToker @mrsedwardsplusafew asked her followers who have gone through something similar to share their experiences. Continue scrolling to read about them and don't miss the conversation we had with Dr. Iris Gorfinkel!
Image credits: mrsedwardsplusafew
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#2
My beautiful 14 year old daughter, Phoebe, was diagnosed with migraine in A&E on 7th Feb 25, discharged still in pain and died in our car 1/2 hour later 💔 She had a brain tumour
#3
I took my 1 day old to A&E and I was told I was a overprotective new mum, and my daughters "movements" were normal reflexes for a newborn. turns out she was having multiple seizures every few seconds and had brain damage from lack of oxygen at birth. I refused to leave, until someone took me seriously though!
#4
diagnosed with being FAT when I was dislocating my knee in constant pain, turns out I had Ehlers danlos syndrome
#6
My dad suffered a head injury and then constant headaches for 6 weeks. He went to the gp 5 times in them 6 weeks. The gp told him he was suffering from miagraine or concussion. My dad infact had a blood clot the size of a tomato on the left side of his brain. Was only rushed to hospital on blue lights when he stopped walking and talking. Very traumatic very distressing still not over it
#7
34 weeks pregnant vomiting blood hospital said 4 times it’s normal and blood is from vomiting so much. Appendix burst had 1 hour to operate before me and the baby died🙃 tried to sue
#8
"it's just a period" "it's normal to bleed after delivery" "it's just a bit of cramping" - my placenta was left in
#9
Referred to gynae for severe tummy pain, told me there was nothing wrong I was just fat. Turned out to be an ovarian cyst that was 13cm in diameter and was squishing all my other organs
#10
Told by male docs for a year that my nonstop period was Menapause and I "just have to get used to it". Was eventually diagnosed by female doc as stage 2 Uterine Cancer. Radical Hysterectomy required
#11
"it's normal to gain 5 stone in 6 months" then told me to stop eating crisps.... it was a tumor
#12
“You just have covid” - my body was in fact shutting down from severe preeclampsia and HELLP syndrome where me and UNborn baby were told we have 12 hours to live…MAX
#13
About 17 years ago my gran found lumps, doctor told her it was shingles, after a few months of being in utter agony they realised she had bone cancer and that it was eating away her rib cage and spine, she had radiation to try and reduce the tumours. She passed away around 6 months later
#14
I kept collapsing, the doctors said it was anemia. Collapsed at work and was rushed into hospital. I HAVE A HEART CONDITION AND COULDVE DIED
#15
Had a really bad kidney stone. I was [urinating] blood as dark as black ink. The doctor told me it was just blood from my periods
#16
I was misdiagnosed with arthritis, and then fibromyalgia. I have ehlers danlos syndrome. They just assumed joint pain meant arthritis
#17
my intracranial pressure was so high i woke up blind in one eye…went to the hospital and they said it was ANXIETY and sent me home…ended up having brain surgery 3 months later
#19
told i was having anxiety attacks in a&e and to leave me be… 2 hours later i was intubated in icu and diagnosed with epilepsy
#20
my daughter had chicken pox and was unable to walk, talk, or wee and had a temp of 40. she lost all feeling from waist down. I took her to a&e 3 times. was told it was flu
#21
Daughter was 7 and was constantly passing urine, drinking & sleeping. 1st, 2nd & 3rd doc said viral and I was paranoid . By 4th visit she was blue lighted to hospital & diagnosed with type 1 diabetes
#23
One of my best friends was literally dying in front of us. She was told by nurses she should get her act together, cause her daughter needed her. She couldn't keep food or drinks down
#24
Was diagnosed in 2008 with depression and anxiety, but I didn't find that out until 2023. In 2008 I had filled out a form and been told, "have you ever tried not to think like that?" and left ashamed
#25
"it's just an ear infection" no actually it was a cholesteatoma that eroded 2/3 of my hearing bones & was eroding my mastoid/facial bones & that's why i couldn't hear out of my left ear for 6 years
#26
Migraines - turns out my brain was being squashed by excess fluid and also starting to fall out of my skull
#27
Diagnosed with extreme morning sickness in pregnancy as a lesbian on the pill with multiple negative test results
#28
my grandad went to the doctors as he was slurring his words/ couldn't walk properly just very ill they told him ' oh it's just your diabetes get your blood sugar up' 2 days later and he ended up spending 6 months in hospital over having an abcess infection on his spine and has to get a bit of bone near his neck taken out and almost died , the hospital also tried discharging him after a week being there as they thought he was just dehydrated , luckily we refused to take him home and then they properly did tests and everything
#30
A mass in my stomach and intestine that had put many holes in my intestines and executive liver disfunction being diagnosed as constipation
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