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One of the most important things in life is a person’s health. Recent times have shown how crucial it is to take care of ourselves to prevent our health from deteriorating. But even if people lead a healthy lifestyle and are aware of their habits, there are some diseases that change a person’s life forever and these are chronic diseases.

According to the National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP), chronic diseases are “conditions that last 1 year or more and require ongoing medical attention or limit activities of daily living or both.” Such health problems become a real everyday struggle that can be difficult for others to understand. Having this in mind, a couple who call themselves Chronic Illness Advocates started sharing inspiring messages to educate and encourage people to start a more open discussion about chronic illnesses. 

More Info: Instagram

#1

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Chronic Illness Advocates Report

Ana.V.
Community Member
4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

Yes! Toxic positivity only makes us feel worst.

ejfs
Community Member
4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

THIS. I've spent most of my life being told to "drink more water, go outside, take some exercise, eat less chocolate, don't sleep so much". Nobody ever says "hey, I know it's a bad day, well done for getting out of bed". :(

Cass
Community Member
4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

Well done, no matter if you managed to get out of bed this morning or not. Your health matters. You matter. You know what you need better than anyone else. Keep up the good job.

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Maiun
Community Member
4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

They haven't got a clue. I'm sick of being told some diet or homeopathy will make me better. Really? Going to grow back the colon I had removed at 15 (I'm 48 now) or stop my Crohn's from fighting the rest of me? Idiots haven't got a f*y king clue about life with chronic pain or illness.

Lucas
Community Member
4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

I tried explaining my issues around exercise to someone and they were convinced that aqua-aerobics were the answer! Just get in a pool and have even more resistance for my limbs instead of much easier air..! Why are people so convinced that they know and why don't they listen?

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Tamra Stiffler
Community Member
4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

This is why I never give unsolicited advice to people who are suffering. I am not a doctor, I don't know what they're going through. But I can listen, be present, and offer support and kindness.

Id row
Community Member
4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

And people who say "Oh, just eat healthy and do yoga and it'll make a huge difference!" Yoga would probably kill me and my disability has nothing to do with my diet, but thanks for that valuable info.

TheartfulDutchGinger
Community Member
4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

my dear friend died at 43, he had an aggressive form of MS. One time someone said 'but many people live years and years with MS, he needs to be more positive' . Sure that will get him to walk again, just thinking he can walk. He was the most positive person I knew, but that didnt help him in any way to overcome what MS was doing to him. People can be so well.. dumb sometimes.

purple zebra
Community Member
4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

So wish someone had taught me that before I learned to put myself last.

Gini Sarver
Community Member
4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

the worst part of this is that those ppl sayin this 💩 are the ppl who should support/lift us up

littlesaresare
Community Member
4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

This is why actual disabled people hate the whole "it's not disabled, it's differently abled" and "you can do anything a healthy person can" mentality. No. I am disabled. I CANNOT do the same things that you can do. That is the entire point. Denying my limitations is just another form of shaming me into 'being better'. It is toxic and hurtful and makes us feel like s**t.

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    #2

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    Chronic Illness Advocates Report

    October
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This! I have several auto-immune issues that (amongst other things) drain my energy. I allways feel guilty/lazy for not having the stamina that others have. And on the rare occasion that I talk about my diseases, people respond with "But you look great".

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I relate to this so much. Invisible diseases and getting used to hide the symptoms make that most people dont believe in our suffering. Including relatives and doctors.

    Steffi Love
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    That's what I needed to read today. I feel a lot less alone.

    snipergun
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I know it's true. And it shouldn't be. You're not failure nor guilty. And I know it's not much, but there are people on this world who are trying to make things better also that you don't have to feel like this.

    GoddessOdd
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I can relate to all of these. I also feel like a burden, because relatives often stop in to help me, and I am younger than they are. I keep thinking that I will overcome, and hopefully, I will.

    Mz Phit
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Ok, feeling like I'm looking at a mirror now... these all ring true. Chronic pain/illness for 10+ years now... still no diagnosis. Ridiculous frustration

    Got Myself 4 Dwarves
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This hits too close to home. Fibromyalgia is a d**k

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    #3

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    Chronic Illness Advocates Report

    Terilee Bruyere
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thank you sir and right back at ya.

    Ozacoter
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thanks. This made me tear a bit. I am feeling today so feverish and nauseous :(

    Id row
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Having chronic pain means you won't feel better soon. Someone with chronic pain should know that.

    Ladyvischuss
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    If I was a dog I would have been put down by now. People laugh at that but many animals are treated better than people. No one thinks that they are faking.

    Tanya Venter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thank you. I have Chronic pain daily. I am not old. I do not look sick.

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    The Instagram page @how.u.feeling, which has 115k followers, shares pictures of Justin Cypres and Sarah Gausepohl, who pose with a board in their hands stating some powerful words meant for those who struggle with their illnesses and sometimes find it hard to keep moving forward. Some of the things they express are also directed at people who are healthy and don’t necessarily understand what it means to deal with chronic pain. Their thoughts teach these people to be more compassionate and understanding.

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    #4

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    Chronic Illness Advocates Report

    Terilee Bruyere
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is so very true. And the longer you have to hide that grimace the harder it gets.

    Gini Sarver
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    especially if it’s something that progresses over time 💔

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    Steve Barnett
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    With you. I suffer on a daily basis, mental health, physical health. Someone viewing me will have no chuffing idea what's going on in my inside.

    Ladyvischuss
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I know that having chronic pain makes me more compassionate towards other people. If someone else snaps at me in public my usual response is not to get upset, it is to just take a second to think about what that person may be dealing with in their own life. If I'm having a bad day and may appear rude to someone I'd hope that they would give me a second thought rather than just the knee jerk response of being offended.

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    Ozacoter
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    For me it hurts very differently. What before was a "oh I have a terrible headache/period" now its "meh its ok today'. But at the same time the knowledge that its going to be for the rest life makes it even worse in a way.

    Teresa Taylor
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    YES!! This is so true. There is not a day that goes by that I am not in pain. On the "scale" my daily pain is around a 3-4. For the past week or so it has hovered daily in the 6-7 range. I have iced, heated, massaged and cried. Nothing works. This is my life. I deal with it. If I go to the doctor, I'm just "shopping for drugs."

    Id row
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I look 'normal', but if someone were to step in my shoes, they'd book it to the hospital saying everything hurts and they must have gotten hit by a car and don't remember.

    Trisec
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I’ve had some issues post-cancer (9 years ago now). It is the new normal, and sure beats the alternative. What annoys the piss out of me is that not even my wife understands what this sign says.

    Tamra Stiffler
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yep. Been there, still there. It sucks.

    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Just passed my 22nd anniversary with chronic pain. It still hurts. No one "gets used to" chronic pain; what you do get used to is finding ways to deal with it.

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    #5

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    Chronic Illness Advocates Report

    Monica Michelle
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Eds and pots exercise or it gets worse for you exercise and dislocate boneand have heart issue. I feel this one

    Id row
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I've already accepted that my disability has sidelined my life plans, but I do listen to my body and only do what I'm able, which isn't much, but I accept it.

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Its crazy how it can ruin your life. I am 31 and cant work, study outside the home, improve my knowledge of the local language, go out and join clubs to make friends (so the only person that talks to me is my partner), have sex, exercise, do gardening, go hiking... It has destroyed my life completely.

    Steffi Love
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I always think that people might think, that I'm just lazy. This chronic fatigue is stressig me out, maybe because I still don't take my illness as a fact.

    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The happy medium here is "This illness has limited my activity, but I refuse to allow it to define me."

    ravina nimje
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Try to find a balance. I know its tough, I haven't found it yet.

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    #6

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    Chronic Illness Advocates Report

    Ladyvischuss
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Good days are the rarest of gems.

    Chrissy
    Community Member
    Premium
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This!!! I have MS and some times my family doesn't understand that MS does not magically go away. And when I do have a good day, I want to enjoy it not do stuff for everyone else

    littlesaresare
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Honestly, having a good day can be terrifying for a chronically ill or disabled person. Because if you dare to take advantage of a good day, people take that to mean you've been faking every other non-good day.

    Pernille Dyre
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    That is so true!! It means i'm not in bed with migraine and can smile and laugh a little bit f.x.

    Cynthia Woodruff
    Community Member
    4 years ago

    This comment has been deleted.

    Tanya Venter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    For sure. I had 2 good weeks. Rock bottom again.

    Bored Panda contacted Chronic Illness Advocates to find out more about their project. The things that they present on social media come from their everyday struggles as both of them suffer from many chronic illnesses. Justin shared that this is what gave him a spur to create something on his own: “I felt that there was a lack of awareness and positive/educational posts in the social media arena. I thought that I couldn’t be the only one feeling how I felt so I decided to start posting messages about how I felt on any given day.”

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    #7

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    Chronic Illness Advocates Report

    Michael Sanders
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I went to a rehab once and the people my heart went out to the most were the “pain patients”. Many addicted to oxy, percocet, s**t even heroine because of their chronic pain. Then to help their mood they would get addicted to benzos. Recovery is hard, but I just felt for them so much because even if they conquered the addiction they still had the pain. And it’s not something you just meditate away. Anyone living with this I see you, I hear you and hope you are able to get better

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The fact that it never stops and will likely be there the rest of your life. I cant handle the idea of being like this or worse for the next 4-5 decades

    Tamra Stiffler
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It really does become mentally exhausting.

    Tanya Venter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have thought to kill myself just to be rid of it!

    Mirek Hotový
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Let me talk about it enough: You are in a never-ending loop cycle. You don't really know what is the cause and what is the result, it is a cycle of addiction. Change your life drastically and learn to survive the new way. It's not going to take just weeks nor months. Persist in the change.

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    #8

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    Chronic Illness Advocates Report

    Ana.V.
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Being chronically ilI I can relate to this and confirm this statement is something very important, as we tend to feel we're being seen as lazy and/or selfish couch potatos

    Leo Domitrix
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Precisely. I didn't realize I'd overdone it this past Saturday till Sunday morning. I'll be off the cane again tomorrow, but meanwhile.... Yep. Chronic issues from injury mean I should've just let myself take a rest Saturday!

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    Zoe's Mom
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I take naps in the middle of the day with my dog ALL THE TIME. Whether recovering or just simply resting, it's no one else's business what you do with your time. I do wish you well.

    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And this is an example of the pressure society unnecessarily applies to what is outside the "accepted norm". (See also, for non-chronic illness sufferers, still being asleep after 9am, even though you work the night shift and didn't get home until 3am). Society's norms are not normal.

    Jo87
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I've never felt so liberated as when I decided to own my naps. I just decided I was gonna have my naps and ngaf what anyone thought. I don't feel guilty and now people respect it, very unexpected outcome but please try it it's the best thing you'll ever do!

    miss miss
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    YES, recovering with rest, solitude and all very needed.

    Liv
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Either recovering, or managing my spoons. Save / add some spoons now, so I can do things later (without damaging myself). I need frequent brakes, and a big activity demands many hours of rest beforehand (and it's not a given).

    Marie
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm not depressed, I don't feel well and I have to rest for an entire day every month. My husband (who has depression) tells me he doesn't like it when I take the day, and I have to remind him it's NOT depression, it's physical.

    Laly Lynch
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I need to seriously hang this one on my wall in order to deal with the guilty feelings of staying in bed.

    Sarah Cope
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I am useless at this my chronic illness has literally created a monster in my head the shouts at me calls me names I am vile to myself constantly I never give myself a break or focus on what I have achieved considering

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    #9

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    Chronic Illness Advocates Report

    Valisbourne Spiritforge
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    No one should have to live in pain. So many do though. Pain isn't a character builder or some virtue, it's just pain. To be sympathized with, understood and, if possible, alleviated. It's a horrible debilitating thing that just eats away at whoever has it.

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And please stop rubbing your religion on us chronic people. Many religious fundamentalists predate on people like us both in real and online life. Some people find confort in religion and thats great. But unless they bring the topic shut up. If I hear one more time how "god has a plan" or "everything happens for a reason" I will lose it. It means that this persons god could cure us but chose to make us suffer and ruined our lives. I dont believe in gods but I dont want to hear about that psyco.

    Sheila Stamey
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And it sucks. There is nothing good about it. Chronic pain here , born with osteogenesis imperfecta, and have suffered hundreds of breaks and surgeries galore . I've been told it was time to stop milking it , that it could not possibly be that bad or I would be in bed. I decided they were right! I went back home and got back to bed!

    Mazer
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Spot on. Repeating the most hated saying among chronic pain sufferers….no pain, no gain.

    Eucritta
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This. Chronic disease is an erosive force, not a formative one.

    Pernille Dyre
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Some times pain makes you through up again and again. Pain drains your body and your mind....

    Gini Sarver
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    even with my illness I went through a bone marrow biopsy where the 👨‍⚕️ had to keep giving me lidocaine, about 30% through the procedure he went to stop for more lidocaine…. he** nah….! told him to keep going, just get this 💩 over! i went through da** near through the entire biopsy NOT being numb, I felt a lot and I mean a lot of pressure/pain when he withdrew my bone marrow ((worst part of it)) first and only person in the history of the trauma center ((couple hundred years old)) to do a biopsy with 100% feeling it 😁 but my chronic pain has knocked me down for weeks at a time lol

    Tanya Venter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Can I slap someone that says these things?

    SuzyG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I've had plenty of character building, thanks. Can we just get to the part when it's enough?

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    This idea and their work soon went viral, proving that people who have to deal with health problems are not alone. Justin told Bored Panda: “ At first I was surprised at how some posts went 'viral' but then, the more I saw it happen, the more I realized how many people suffer.” Justin himself has to deal with a whole bunch of illnesses such as fibromyalgia, ulcerative colitis, migraines, depression, etc.

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    #10

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    Chronic Illness Advocates Report

    Terilee Bruyere
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is so very true. I remember not really getting what my dad was meaning when he said he felt like he was walking on cords (I thought maybe he felt like his sock was bunched up, he had renal failure and diabetic neuropathy). I finally understand :(

    Marie
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And then anothe issue pops up.... and another... and another...

    Mazer
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I loathe the bumper sticker term “no pain, no gain” chronic pain sufferers gain nothing positive from being wracked in intractable pain.

    SuzyG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Not even when they want to.

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    #11

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    Chronic Illness Advocates Report

    miss miss
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Your almost dying with your illness

    Scagsy
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I would do anything to go back to my old job but I just can't physically do it anymore. It's horrible when people don't get that and think I'm lazy because I don't work.

    kaitertot the god
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    ughhh this this this!!! i have autism, ptsd, adhd and depression and frequently have to take mental health days or i literally cannot function. despite the fact that i have worked this out with my employer my mother still says things like "i wish i could have a day off whenever i wanted!" and it makes my pain, emotional and physical, feel so unbelievably invalid.

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have heard so many time the "I wish i had time like you" "I wish I didnt need to go to work like you". F**k off. Do you want ti trade bodies? Because I tell you, you dont want to.

    Eric Lafleur
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Reminds me of a comment from a former boss about my sick leave: "So! How was your vacation? You feel rested enough?" My reply: " You know, when you just spent over five months suffering from a back injury so bad that you can barely whipe yourself because your back can't bend, it's not vacation".

    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And it doesn't mean that I have time or energy to do a zillion favors either. I don't work because I can't, not because I'm lazy.

    Bunzilla
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have about a million different hobbies (to help keep me sane)... and I can't do most of them most of the time. I simply do not have the energy, and some days I'm in too much pain. Today, I'd love to be finishing my figure kit, but that's simply not going to happen.

    Sally Shideler Bill
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Oh, my goodness - this! Let's put it on a billboard!

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    #12

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    Chronic Illness Advocates Report

    Joanna Werman
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thank you. I think that's a big thing that my friends don't get. The few friends that I still have.

    Scagsy
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yeah, it's weird how nobody wants to talk to you because you're ill. It's not like it's contagious.

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    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And please think about us for a second before inviting us to do things. The other day I was invited to go to a zoo that I always wanted to visit. You can only get from the parking/train walking about 30m up and down plus the hours that you must walk there. I simoly cant do it unless I get a wheelchair and I am not mentally prepared yet. Please if I say that I cant do it dont question it and dont be angry at me. Do you think that I want to not be able to have a life outside our home?

    J. Normal
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Please for the sake of those who love you accept the use of a rollinator (walker with wheels) or a wheelchair. We want to enjoy life WITH you. I regret letting my Mom deny her need for a chair.

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    Arieke
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And sometimes nothing happens so you're like 'YeAH, I can do X without consequences'. Next time you do X though........

    Ozacoter
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Right? Some days I can do groceries and walk the dog the same morning and others I am 4d ill because I walked 20m. Its absurd

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    Deb Swan
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yes, the next day can be awful...

    Steffi Love
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I cant Make safe appoinments. What in the morning looks like a good Start or Day, can totally Change within hours or even Minutes.

    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It's so frustrating, isn't it? Go to bed feeling fine, wake up feeling like death.

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    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This drives me absolutely crazy. One day, I can take a shower, do the dishes, cook a meal, etc. The next day, I can barely get out of bed. And I never can tell exactly what caused it.

    Eric Lafleur
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Pretty much like my wife. She got Covid last year and now she's a long hauler, with chronic everything. Her "good days" put her back to bed for days.

    Got Myself 4 Dwarves
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    So very much this. I hate committing to anything as I genuinely dont know what kind of day I'll be having 3 weeks from now

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    #13

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Ana.V.
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    😅😂😅

    Tami
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My mom is like this and I hate it. I don't have a chronic illness but like most people some days I'm just tired or not feeling well or maybe I have an injury or something. Normal people often share these things and talk about them, which can actually help you feel better, but my mom doesn't get this. She is the only one allowed to be tired or have pain.

    Daria B
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm feeling fine now, but back when I didn't know about my sensitive kidneys, I had such an embarrassingly low stamina, couldn't even walk up the stairs without breathing my heart out of my chest from my throat. Meanwhile I'd see elderly people all euphoric and lively, just came back from their regular hiking trip, looking much healthier than my then 20-something-year-old ass.... and judging people like me. It used to bother me a lot, but I didn't have any proof of anything legit. Wish more people stood by the "looks are deceiving" words of wisdom.

    Mazer
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Moral of the story: judging people from both sides isn’t a positive for anybody

    Cynthia Woodruff
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I've been saying this to my much younger neighbor and just wrote her and apologized!!

    GoddessOdd
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The fatigue is as bad as pain, for me, and part of the reason it's worse is because so many people don't really understand what it's like. I find walking to the mailbox exhausting some times.

    Feminist Percussionist
    Community Member
    3 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Like, yes, that’s exactly why I go to the doctor and take medicine for this condition???

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    Coping with these struggles takes a lot of energy and makes people feel like they are all alone in this battle. When such dark days come, Justin says that the right thing to do is to understand that “you are not alone, what you feel is valid, and there are many different social media accounts that can help you find a community that is super supportive of your struggles.” And their project also seems to be having a huge impact on how people see and hear each other, becoming more understanding and sympathetic.

    #14

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And I'm damned tired of hearing, "You don't look disabled." Really? What exactly does a disabled person look like?

    littlesaresare
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    In a wheelchair. Which is ironic, since the average wheelchair user is more abled in everyday life than the average sufferer of a chronic invisible illness.

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    KimB
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is a skill I have mastered (rheumatoid arthritis)

    John Smith
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    You know I was diagnosed at 11 with Synovitis and tenosynovitis and 40 years later I was also diagnosed with diabetic neuropathy and may end up losing a foot. Apparently that isn't enough to warrant a blue badge though, and the nurse told me that at least it doesn't hurt to walk. It does, after 40 years I got good at not letting it show.

    Vanessa Wanner
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Having chronic lymes has made me an 80 yr old woman in a 41 yr old body

    GoddessOdd
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is the one I practice the most

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Using tools like wheelchairs and walkers isn't giving up, it's making best use of our time and energy. Not wasting effort that could be used to live a little

    Autumn
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Very true. I don’t believe I have a chronic illness but I’m not a stranger to hiding pain. I do believe you’d be worse off than me tho…….

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    #15

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Scagsy
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I like this one. It's so true and absolutely exhausting. Every day is a battle.

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Accepting limitations isn't admitting defeat, it's a necessary step to continue the fight

    Steffi Love
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I feel like an absolute failure in those days.

    #16

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Lucas
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It is surprising how much pain and discomfort you can get 'used to' and how easy it is to hide. I don't want it to be the first thing people know about me. I don't mind sharing but only if I think the person is going to actually listen, and not lecture me on what worked for their old mum who had a completely different problem. I'm not old, I'm ill and I'm also living with injuries from an accident. It isn't the same.

    Scagsy
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Unsolicited advice is one of the worst things that people do.

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    Brandy Grote
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    That pain scale drs use is not accurate for chronic pain patients. We will base our pain on OUR PAIN, which we are used to. Our level 4 is a healthy person's 6 or 7! We need to be asked not "how bad is your pain", but "if a healthy person felt your pain, how would they rate it?" I had 2 vertebrae rubbing together, no disc, for decades, and my worst day was "about a 6". Until I based my chronic pain on what "regular people" would say. My "numbers" became higher, and drs began to take it serious, and I received adequate treatments!

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Doctors dont understand that pain cannot be meassured objectively because people feel it differently. The same wound might be a 4 for you and a 6 for me. The scale needs to be done relative to the patients pain. For example I think about it from 1-5. For a normal person 1 would be no pain, but thats not a thing for me anymore.

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    Hilary Mol
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And then people (including doctors) don't believe you're in as much pain as you actually are when you tell them straight-up how much pain you're in.

    littlesaresare
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    1/2 A few months ago I was taken to hospital due to extreme rib pain, so bad I was struggling to breathe. I have lots of health issues so pain and ambulances aren't terribly new to me. What was new to me, however, was that the paramedic asked me if I wanted painkillers. Literally the first time I have ever been offered painkillers, over many dozens of situations involving severe pain. I said no, thinking it was a trick to see if I was a drug seeker. A few minutes later, I'm still clutching my side, and he asks me again. It literally doesn't cross my mind that this is genuine, so I decline again, because I am terrified of being blacklisted as faking (something I'm sure every chronically ill person can understand). A few minutes later, after the cannula is in, I feel funny and the pain disappears. I ask him if he gave me painkillers. He said yes, he gave me fentanyl because I am clearly suffering, and what the f**k sort of paramedic would he be if he didn't stop my pain when he is

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    Caro Caro
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is something we should all know and respect.

    SuzyG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    "You don't have a migraine. You're here. You're working." Um, no. I *do* have a migraine, but this one is just light enough that I can leave the house. Back off.

    Teresa Taylor
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    YES!! And, we don't talk about it because we are blown off, minimized and told about how bad THEY are; we're told about the latest hoax methods that have cured the friend of a friend of a taxi driver's son's mother-in-law's yogi's dentist's veterinarian's sister's...you get it; we're told it's not THAT bad; and we're accused of being drug addicts trying to shop around for opioids.

    Mz Phit
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I typically look my best when I'm having a bad day- I've become a master at makeup and masking

    Sally Shideler Bill
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is very true. Apparently pain is very difficult for humans to show compassion for: if you attempt to speak honestly about your pain level, no matter how calmly you explain it, people either shut down or decide you're being melodramatic in order to seek some undue attention.

    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    You can often tell by the way we walk, not striding, but taking careful steps like a fragile, elderly person afraid of falling and breaking a hip.

    Gabby M
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Limping, always holding the hand rail afraid of falling.

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    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    We don't lie about being ill, we lie about being well

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    #17

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Got Myself 4 Dwarves
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Or that you have this burst of energy you don't want to waste so do everything knowing full well the minute you sit down your muscles are going to tighten and extreme pain is on its way - but if you don't take advantage of that energy burst it could easily come and go in a day and you're still sore but the house is still a disaster filling every second with guilt, frustration and shame

    Vexorg2
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    You feel better so you end up doing too much... and end up right back in bed. Ugh. The struggle is real!

    Lyn Moffett
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Me,,, every bloody time. I'm thinking Hey I feel great today Later that day I'm in complete agony!!!! Never fails

    mcborge1
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This! and it always ruins the good days.

    Karen Grace
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Every trip out of the house has a price so they are carefully planned. Even doing too much at home can have me laid up for days. I wish there was a pain simulator that all med and nursing students have to wear for at least 1 day. Then they have at least some vague idea of what our lives are like.

    Batwench
    Community Member
    Premium
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    How does he know my thoughts.

    Rannveig Ess
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yes, and getting snarky comments from family if they call at 4 pm and I'm in bed because I over did it already or it being implied that I'm "lazy" because it takes me 4 days to do something regular people can just DO. Life is so many increments, and so much energy to try to make deals with your body that you need to do more than you know you can

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    #18

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And more embarassed. They never stop to consider how hard it's for us to admit how weak our bodies are.

    Marie
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And I'm tired of explaining when you just think it's a complaint.

    Lynne Harbison
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    A family friend yelled at my mother for cancelling because my dad was unwell. Her yelling..,I'm sick of you using Fred as an excuse for cancelling. My dad died 3 weeks later..heart attacks, Emphysema, amputated leg and more. 😥😥😥

    Osgood_7
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And that we still want to be invited! Chronic illness may mean I often can't come, but I want to be a part of your life.

    Katie Decato
    Community Member
    2 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    yes ! this one makes me feel guilty

    The Frenchiest Fry
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I've almost lost friendships bc they get mad when I have to cancel plans last minute. I just wish they understood

    KimB
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I cry every time I have to cancel...but I can't go if I can't walk!

    Mazer
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have a standing rule when going out with friends, first person to say Uncle, wins. No arguments. I get it, if you want or need to go home, that’s it. I don’t want to be having fun when a friend is silently suffering and visa versa

    #19

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Wow, there are people weaponising someone else's illness against them?

    Ana.V.
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yes. People who don't believe or understand invisible/chronic illnesses

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    Valisbourne Spiritforge
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    If my SO is having a better day, I want to know so I can enjoy it with them. I don't want to punish them for having one and I certainly don't want to take it for granted. I want to enjoy their company when they are in less pain for a change. I'll still be there when the pain goes back to 'normal' (what a hideous application of that word!).

    Witchling
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I feel this on a deep deep level. Dang.

    Lynne Harbison
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    People think if you can't see it, it doesn't exist.

    Liv
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Also, I don't want them to make many plans with me on that day. Or I'll spend the next days recovering. :/ I want to slowly enjoy the day with only a sketch of a plan and without pressure or rush, with flexibility to do what I feel like doing at the moment including having breaks whenever (because it's so rare for me to have days like this, when I can just go out and do the things I've been wanting to do, and missing out on. Sometimes it's really small things).

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    A good day doesn't mean we are cured and can now function the way average people do. There is no cure, just the tides of good and bad days

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    #20

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Mz Phit
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I feel this so deeply! Sending my best to my fellow spoonies on BP

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    #21

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Kay blue
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have to constantly remind someone in my life of this. Because I don't work she thinks it's ok to constantly pester me to do stuff for her. I just can't do it all.

    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm dealing with this right now. Ironically, my SIL developed sciatica and now frequently asks for favors because she's in too much pain to manage. Um...hello?

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    Therese Ernholdt
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The worst thing I know is when close family who know of my health problems do the “why are you angry” and “it’s not so hard to keep a friendly tone with people you love”. No chronic conditions don’t give me a free pass at being rude but maybe you can let me have the benefit of the doubt that I’m not acting out of spite but exhaustion.

    Lyn Moffett
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I agree one million percent. I can't get a handle on my own life so it goes without saying that I can't run anyone else's.

    Deanna Clardy
    Community Member
    3 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yes!!!! You totally understand me!! Love your posts!

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    #22

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Jo87
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Or had their illness used as an excuse for everything else that's genuinely wrong with them so the hospital don't have to help...

    Cecilie Hammershøy
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    So to everyone who has a invisible illness....but thanks ♥️

    Pen Irwin
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have MS and yes having doctors repeatedly tell you it's all in your head prior to diagnosis is a punch to the gut. But not being able to talk about your bad days cause you don't want to be debbie downer is even worse.

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    All those who have had to fight for the benefits they are entitled to have. All the form filling and getting proof from doctors that the "judges" don't even look at until you lodge the appeal.

    Bilja M
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And doctors who just tell you that you are "just depressed".

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    #23

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Terilee Bruyere
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Okay, now you've made me tear up.

    Lesley H
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thank you. You also made me tear up. I am having a very painful day today and taking care of a 2 year who won't nap can be overwhelming. Knowing other people are out there like me, so that I'm not alone makes me feel better. Everything else on the internet is about fake super moms.

    RandomBeing
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    you're doing a favor for ur children by asking for help

    Valisbourne Spiritforge
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My mother suffered severe hip pain for decades but did not seek medical help for it until after all the kids had moved out. So yeah, that one hits home just as well as the others.

    Sam rice
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I appreciate Acknowledgement

    Marie
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    No kids, but absolutely could not cry for loss of a dog because husband couldn't get over it and I had to be the "strong one", even as I disintegrated emotionally and physically inside.

    Katie Decato
    Community Member
    2 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    HOLDING BACK TEARS. THIS ONE IS A HARD ONE FOR ME

    Gini Sarver
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    thank you, i sometimes wish my kids knew ((more than they know now)) but i know i do NOT want them to not do things with me because they’re afraid for me/worry about me

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    #24

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Getting stuff done also includes recovering. It needs to go on the to do list.

    Scagsy
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I get so frustrated because it feels like I'm just wasting my days. There's nothing anyone can say to make it better either because I know that it's degenerative. Things are only going to get worse and it makes me so miserable sometimes. Then I feel bad for being self-pitying. I just can't win.

    Melissa TO
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Or 'I'm having a good day so I'm going to take advantage of it and... OW! Now I'm in bed for 3 days".

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Use it, or lose it. If you don't exercise, you won't be mobile. If you do exercise you definitely won't be mobile

    Autumn
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I can relate to this in more ways than one…..

    Gini Sarver
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    5 minutes of “doing stuff “ always results in recovering for days or even weeks for myself 😞 i too have fibromyalgia, and that is Just 1 ((of 4 that cause chronic pain feom the nerve/spinal cord injury i suffered)) neurological damage from the botched surgery

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    #25

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Teresa Taylor
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I once explained my illness to my boss. She looked me dead in the face and told me she didn't believe me. She knew I was sick, but she thought I was exaggerating to get sympathy. Yeah. That did not go over well. I quit talking about my health altogether. When I called in sick and she'd ask why, I would remind her that it was against the law for her to ask. She started to tell me she wanted a doctor's note every time I was sick. I reminded her it was only needed for 4 days or more in a row of absence. It was not a good time.

    Wyn Williams
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    This! I gave up on having a girlfriends now for this reason

    Mimi M
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is why it's easier to hide s**t. And people wonder why one is a 'private person'.

    Helga Nicastro
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is the truest statement I've seen

    Cheryl Mullen Chainey
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My husband doesn't understand sometimes, why I need to stay home away from everyone and everything, after working all week in a public school. My anxiety/depression is taking a beating. My migraines are worse. I take meds for all of it. My body is hurting.

    Bobby
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    wife and I each have a different chronic illness. We only understand each others illness through our own. We have each hurt each other by thinking we understood the others illness and did not at all.

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    #26

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Nicola Doyle
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    So true! Didn't expect to be on disability and deciding day to day what I can do at my age. Trying not to do too much on days I feel better. Some days all I can do is rest all day.

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    For me it feels like if it killed the person I was. She had a career, dreams, knowledge (if you dont use it you forget), a fit body... I lost it all

    Josephine
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I know. But what saddens me most is that you smile in this picture. It is NOT fair to have to go through this. And you are allowed to show your true emotions when sharing this statement. Big hug from a distance!

    John Smith
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    You have friends.. lucky you. Mine left and I don't get out to make more.

    Stephanie Hudson
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yes! I just turned 50, was diagnosed with MS last year. I went from peak of k career to near retirement in a year.

    Red Sunny
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm only nineteen. My friends are worrying about college and work, and I'm worrying about whether or not I'll get a pain medication or be able to afford compression gloves and back support pillows.

    #27

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Patty Corbett
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    So many people do not realize just how true this is. One in ten suicides are chronic pain patients. A psychology magazine just shared a study that said doctors believe poor patients can handle pain better. That says that doctors are not actively treating chronic pain patients that appear to be poor because they assume we can “handle” the pain. No wonder one in ten of us are dying because we can’t handle the pain like they think we can. 😢

    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Amen to that. Who else sometimes wakes up in the morning and instantly starts crying?

    GIANT BELUGA WHALE
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm obsessive-compulsive and have high anxiety. I relate to this so much.

    #28

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Oooh, that's right up there with "everything happens for a reason". Yes , it could be worse, it could also be better. And what good does it do anybody saying that either? This is the bronze medal of the Misery Olympics.

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And the f*****g religious nuts telling that god has a plan for you... Or the people telling you that "others have it worse". Its a bad excuse to not try to be empathic

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    Leo Domitrix
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    "It could be worse." Well, yes. It could. But that doesn't mean it isn't BAD.

    JoanieBalonie
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Or when they say, "What have YOU got to be depressed about"?

    Beth Sito
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It is so invalidating when people say this. Pisses me off. Or the variant "At least you don't have ___ "

    Arieke
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Ah yes, the dreaded 'but you are not dying right?'.

    Joanna Werman
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    " Yeah but you survived " it doesn't feel like I survived. It feels more like I'm constantly struggling for survival. Even though the big part of it is gone, a big part of me is gone too.

    Tamra Stiffler
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    That's a thoughtless statement that completely invalidates what the other person is experiencing - no matter how "well meaning" it is.

    Jjiinnee
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    or I hear, "it's not a real disease. It's not like...cancer or something. Consider yourself lucky"...

    Marie
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Most hated phrase ever, "It is, what it is." No, it is what I can stand for now.

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    #29

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My best friend has spina bifida and she expressed this to me. She then added that since I'm not a licensed medical professional and am unable to provide relief, she would accept a brew, and for me to watch her kids for a couple of hours while she slept. We can't give relief, sometimes the only thing we can offer is support if you want it (and not push it if you don't ask).

    Scagsy
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I love that you totally understand you friends condition. I wish I had a friend like you.

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    Lauren
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Amen. I was told by a NP that there was nothing the ER could do for my pain and I should discharge-without treatment. I have two herniated discs that are compressing the nerves to my right leg and I have muscle spasms from hip to toes that you can see the muscles twitching. Besides spinal injections, only one provider has offered me any sort of pain relief and I can only take one at bedtime.

    Batwench
    Community Member
    Premium
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And to be taken seriously.

    D K
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Relief, and I would add to that, understanding.

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The only time I have been pain free in the last 4 decades was when I had an epidural for surgery to remove my womb and d all the big fibroids it contained. The surgery site was tender, but the back and joint pain came back in full force on day 3. They tried Tramadol, away with the fairies and more relaxed about being in pain.

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    #30

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Scagsy
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Advice full stop. Nobody wants to hear about Auntie Margaret who soldiered on with a bad hip. It's not the same and it never will be. Please shut up and make me a cup of tea.

    Valisbourne Spiritforge
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I try not to give advice. I try to give SUPPORT. Emotionally & physically. I'm not a doctor, I'm a husband. My medical knowledge is based on my personally experienced health history, not hers. So no, no advice. Support, however, is something I won't stop giving.

    Amanda Reicha
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    "Why can't you be rational" while I'm having a full blown panic attack and feel like I'm dying

    Mz Phit
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    "Have you ever heard of/tried....." dammit, yes! OMG if I have another person tell me to get Accupuncture/reiki/faith healing/etc I will scream! The multitudes of treatments I've had already would make their head spin.

    Caro Caro
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This needs to be higher up.

    Michaelangelo S.
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    "Try this, it worked for me, so I'm sure it will work for you too"

    GoddessOdd
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I was brought to tears once when I was having a very bad time, and a friend just asked "what can I do". No "if you'd only" ... no "have you tried" ... just "how can I help".

    Reynard
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I got this a lot when I was battling lymphoma. So much ridiculous medical advice that people found online. Especially the alkaline diet people. I listened to my doctoers and I'm still alive 3.5 years later. I wouldn't be if I did differently.

    Ellie Rosser
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Also, mostly your advice is stupid s**t you read on the internet and unless you're a doctor you should keep it to yourself ALL the time,, forever.

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    #31

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Michaelangelo S.
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    One would think this would be something people understand since each of their days are different as well. No two days are the same.

    Nicolai Zoëga
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Or you did a small thing since you were fine ... And Now the paying for that thing is here....

    AnimeObsessedTeenager
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My mother has Postural Orthostatic Tachycardia Syndrome, and no one really gets it except for the people in our household and even my grandmother (mom's mom) has no idea and she just doesn't understand how hard it is

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Reminded an ill friend that she only sees me on a good day. She is not alone in having "Oh, poor me" times and shouldn't beat herself up as "failing" when her body insists on resting for days at a time. Waking, having meds and making it to the bathroom are worthy of praise

    Lynne Harbison
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My husband has chronic heart disease. People say...oh is he still playing 10 pin bowling? He pushes himself to because he has been told by his Cardiologist he MUST exercise....and he loves it and looks forward to it.

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    #32

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Patty Corbett
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I can’t count how many times my sister has said, “How come that doesn’t happen to me?” Because I’m not you! 🤦🏼‍♀️

    #33

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Deb Swan
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yep, feels the way the end of an 8 hour shift used to.

    Karen Joy Nesheim
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    When my MS flares up badly; I’m beyond exhausted. I can sleep 16 hours and still be dead tired!

    mcborge1
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    When I explain fibromyalgia to people I say the fatigue is like running up hundreds of stairs, and the pain is like falling back down those stairs.

    Brandy Grote
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Wore myself out sleeping, broke something stretching.

    Ozacoter
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Strangely for me I am all the time physically exhausted but not sleepy. When i started to get more ill i was very sleepy at midday and i used to take a nap. Now I am much weaker but I dont seem to get sleepy anymore

    J.L. Martin
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Idiopathic Hypersomnia for the win. D:

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    When my alarm goes off, my "Just 5 more minutes" can mean another 12 hours asleep. Without multiple alarms set and determination to try my best, I would miss taking my meds many times a week. I could sleep for days, til my bladder wakes me (once I finally get to sleep). Most days, my battle is to wake twice and have food and meds, then I go back to sleep.

    Terri Rimmer
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yes, I'm so tired of defending this!

    littlesaresare
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Because your exhaustion is not the sleepy kind of exhaustion. It's the kind of fatigue where your whole soul is drained, and you are tired all the way down to your bones. No amount of sleep can fix the sort of exhaustion that comes with fighting just to breathe every day.

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    #34

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    Chronic Illness Advocates Report

    RandomBeing
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I may not be able to understand. But I can understand that it is real and legitimate.

    Ana.V.
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    That's so true, unfortunately

    Sill Marien
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yeah, they really do not get it. Even if you don't have, say SM, but 3 "less bad" autoimmune things. Those bitches are like a pack of piranha working together -_-

    Eucritta
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My rheumatologist once told me autoimmune diseases tend to run in packs, and if you've got one, the likelihood of developing another is high. She was right. Some nights, I feel like I'm being nibbled to death by geese.

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    Nikki Sevven
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Me, early in the day: I'm going to make lasagna for dinner. - Me at 1500: Cheesy toast it is!

    Melissa TO
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    It is a constant in my life. It is always there, every move I make, every thought and breath. What movement can I make will cause the least amount of pain? When is my next medication or doctor appointment due? How do I explain to someone that they can't touch me casually because a small touch can cause pain because my skin is on fire?

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    #35

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Donna Rakowiecki
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The worst was when I had to miss my best friends funeral because I was too sick to get out of bed it was simply heartbreaking and everyone said it was OK put me it wasn't I miss her so much

    mcborge1
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I'm not just home all day being ill, i'm also a full time carer so even at home I can't just rest up when i'm feeling unwell, I have to keep going until bedtime.

    Amanda Reicha
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I think how nice it would be to be able to work and then I remember how difficult working would be: 1) frequently calling in on bad days, 2) scaring people when I have a seizure, 3) the chance of being fired because I had a seizure, which surprisingly happens often but u see a different reason for being fired.

    Lyone Fein
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I empathize. I am always looking up job openings, and thinking about applying........but just getting out of bed and getting started on my day is so exhausting most days, I realize that these day dreams of going back to work are impossible.

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    Susi Moffitt
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I truly wish people could feel compassion to those with chronic illness and pain, because I'm a sufferer, too. I never in my life thought I could be so tired and hurting.

    littlesaresare
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Healthy people act like you're lucky for "not having to" work. No. I would give anything to *be able to* work. To have financial independence. To have freedom. To wake up and be able to actually breathe. To stand in my kitchen and cook dinner in one stretch, without a break every five minutes. To have an actual life. But people act like you're chilling about by a pool drinking mojitos all day. Staying home from chronic illness is not a luxury, it is a cage.

    #36

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Scagsy
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Particularly because it feels like you're moaning. I don't want to be the person who says 'I can't do that because of my illness' so please just understand that and respect it for what it is.

    Patty George
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And why it’s so hard to change doctors

    msminnie
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Also, most people REALLY don't care.

    Deb Swan
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Conversations in general, more than one person talking...

    Willowbilly
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Worse if it's fibromyalgia. No ones even heard of it.

    Grace Noyes
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And I end up boring myself because I've explained it so many times over the years. And it changes with time.

    mcborge1
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Sometimes I want to just put it on a T-shirt.

    Marie
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Illnesses... they build up and feed off each other.

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    #37

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    RandomBeing
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yknow you can actually pay bill board places to put up that kind of 🤔

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    Teresa Taylor
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This entire post resonated deeply with me. You could probably tell by my individual comments on several of the photos. Being sick sucks. No one wants a chronic illness. Berating someone for it or ghosting them for it isn't fair or nice. We didn't ask for whatever illness we got; be glad it's us and not you.

    Tiggy Darling
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I need to send these to my managers at work. Month 9 of Long Covid and I'm up to 6 hours per day, 4 days per week.

    Paige Merlin
    Community Member
    Premium
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Year 6 of ME and fibromyalgia, I am at 6.5 hours per day, 3 days per week. I've spent two years trying to get this increase and 3 of the hours are only just recently overtime I get temporarily while they try to figure out if they have it in the budget to keep them - after "not" forcing me to go part-time when I could only manage 4 hours per day, 3 days a week. It may be hard to find people that understand but know it's not your fault at all, even if we can't shake the negative feelings I want you to know you're doing great!

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    Gini Sarver
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    💜 a true chronic pain sufferer, worries about others over themselves most days god bless you

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    #38

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Amanda Reicha
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My seizures and anxiety/panic attacks make my sleep schedule rotate. No matter what any doctor has tried, it's impossible for me to stay on a regular schedule. If I try, my fatigue triggers more seizures and anxiety/panic attacks. It's one big loop.

    Marie
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yup, they feed off each other. It's exhausting trying to figure out which one is doing the most damage each day.

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    Cyndie Varin
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thank you so much for this post full of hope. I have a heavy fibromyalgia and I can relate to so many things. I hope it also did for everyone around the world suffering of chronical illness. Let's fight it like warriors!

    Ladyvischuss
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have tears running down my face as I read these quotes. No one knows us better than ourselves. This is NOT a club that we asked to join. Due to the "opioid issues " I have been cut back on my meds because the doctor is being watched. I haven't been able to find another doctor that will 1.believe me 2. treat me with anything other than suggestions for surgery 3. or just give me useless drugs. I love it when the insurance company says it's too soon to refill when my doctor calls it in. Do they feel my pain.

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    #39

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Anapv
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This should be a song theme

    Mirek Hotový
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I wish for Christmas that you would understand it enough yourself to initiate the inner healing process... like I did.

    #40

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Terilee Bruyere
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Even doctors have a hard time with this. I ended up talking to a psychiatrist before I was taken seriously.

    Wyn Williams
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yeah same thing and I was drug tested before they would consider real testing and it stil took years to get a diagnosis

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    #41

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Scagsy
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It doesn't have to be specifically about the illness. It would be great to just get a jokey text or something. Being left out hurts more than the illness sometimes.

    Caro Caro
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    A simple phone call or just pop by and see if you can help with a chore, have a chat, make some coffe. Small things.

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And don't complain if it takes a day or two to answer a text. Some are resting, some shaking so badly they can't hold anything, some can't stand the light of a screen right now. Send remote hugs and love

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    #42

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Lyone Fein
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Or these: *You don't look disabled........ *You sure sleep a lot! *I know you're not doing anything else, so can you do xyz for me? * You look great

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have gone from "You're too young to be in pain" to "You should expect that at your age" via "Have a baby that'll cure it" and "You're making it up for attention". Pity it took over 35 years to qualify for help, but I now have a loo and shower I can use and money to pay for treatments that keep me mobile that are not available on the NHS

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    #43

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Ana.V.
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thank you for understanding

    Ananya Chakraborti
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thanks for fixing it by saying 'year'. People go about writing day or week, and I have always felt inferior because I kept thinking that all my 52 weeks were bad so am I abnormal? Thanks for this.

    #44

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Ugh, I hate this phrase. It needs to be struck from the general lexicon.

    Valisbourne Spiritforge
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Almost as bad is "Gods plan". A better reason to try making the chronically ill hate God I've never heard.

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Right? If i believed in gods I would be extremely mad at them. Any god who chose to make us this way is a monster and deserves no worship

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    #45

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    Beth Sito
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    So incredibly hard not to do. <3

    Isabel Care
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I like to compare myself to a healthy sloth. Slow and steady, with time for a doze before a nap before bed time

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    #47

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report

    #48

    Chronic-Illness-Advocates-How-You-Feeling

    Chronic Illness Advocates Report