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One of the most important things in life is a person’s health. Recent times have shown how crucial it is to take care of ourselves to prevent our health from deteriorating. But even if people lead a healthy lifestyle and are aware of their habits, there are some diseases that change a person’s life forever and these are chronic diseases.

According to the National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP), chronic diseases are “conditions that last 1 year or more and require ongoing medical attention or limit activities of daily living or both.” Such health problems become a real everyday struggle that can be difficult for others to understand. Having this in mind, a couple who call themselves Chronic Illness Advocates started sharing inspiring messages to educate and encourage people to start a more open discussion about chronic illnesses. 

More Info: Instagram

#1

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Chronic Illness Advocates Report

Ana.V.
Community Member
4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

Yes! Toxic positivity only makes us feel worst.

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    #2

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    Chronic Illness Advocates Report

    Frankie
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Wait I realised I hopefully misread it lol

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    October
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This! I have several auto-immune issues that (amongst other things) drain my energy. I allways feel guilty/lazy for not having the stamina that others have. And on the rare occasion that I talk about my diseases, people respond with "But you look great".

    Ozacoter
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I relate to this so much. Invisible diseases and getting used to hide the symptoms make that most people dont believe in our suffering. Including relatives and doctors.

    Steffi Love
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    That's what I needed to read today. I feel a lot less alone.

    snipergun
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I know it's true. And it shouldn't be. You're not failure nor guilty. And I know it's not much, but there are people on this world who are trying to make things better also that you don't have to feel like this.

    GoddessOdd
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I can relate to all of these. I also feel like a burden, because relatives often stop in to help me, and I am younger than they are. I keep thinking that I will overcome, and hopefully, I will.

    Melissa TO
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yes! My mom, who is 69, comes over to help me all the time. She's in better shape than I am!

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    Mz Phit
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Ok, feeling like I'm looking at a mirror now... these all ring true. Chronic pain/illness for 10+ years now... still no diagnosis. Ridiculous frustration

    Got Myself 4 Dwarves
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This hits too close to home. Fibromyalgia is a d**k

    Therese Ernholdt
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Having a plethora of chronic illnesses it almost hurts my brain how relatable this is.

    GFSTaylor
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have had MS nearly 20 years. I don't look sick but nor do I feel like a failure or feel guilty. My illness is not my fault. It stops me from doing stuff I want to, like working a regular job. Still not my fault.

    Grace Noyes
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have MS too, but I can relate to everything on the list except constant pain because of remittances.

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    Id row
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Let go of the guilt and the idea that you're a failure. After many years, I've realized I don't have to apologize for being disabled.

    miss miss
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Oh no. Please, it is all not reality. You're important

    Gini Sarver
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    even after 6 yrs, i still grieve for the wife/mother of 5/grandma of 3 ~ my life was “taken away” from me at the age of 40 ~ grandsons were 5 and 3 yrs old ~ baby girl wasn’t even thought of yet 😁 ~ taking my grandbabies and my daughters to the park ay 7am and teaching them all to play tennis, my daughters had no idea that their mama was a huge lover of tennis 4 months later a doctor not paying close attention made a mis - cut …. …. stroke from being under general anesthesia for over 14 hours. (( h ,nor the anesthesiologist did notice the changes in my vitals thats took place telling them of the impending stroke 🤬 …. he and the ☎️ ed in doctor to assist in the repairs somehow managed to *pull an important nerve lose/away from my spinal cord fast forward, i live in pain 24/7/365, 2 high dose pain meds that reduce my pain from a 10 to an 8 ((on a good day)) however, I have a wonderful team of medical professionals that know my illness i MISS me 💜

    Patty George
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    And some doctors treat you like you’re a drug addict.

    abby smink
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I feel guilty for not being "as sick" as other people with Ehlers Danlos, I guess it's a no win.

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    The Instagram page @how.u.feeling, which has 115k followers, shares pictures of Justin Cypres and Sarah Gausepohl, who pose with a board in their hands stating some powerful words meant for those who struggle with their illnesses and sometimes find it hard to keep moving forward. Some of the things they express are also directed at people who are healthy and don’t necessarily understand what it means to deal with chronic pain. Their thoughts teach these people to be more compassionate and understanding.

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    #4

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    Chronic Illness Advocates Report

    Terilee Bruyere
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is so very true. And the longer you have to hide that grimace the harder it gets.

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    #5

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    Chronic Illness Advocates Report

    Monica Michelle
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Eds and pots exercise or it gets worse for you exercise and dislocate boneand have heart issue. I feel this one

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    Bored Panda contacted Chronic Illness Advocates to find out more about their project. The things that they present on social media come from their everyday struggles as both of them suffer from many chronic illnesses. Justin shared that this is what gave him a spur to create something on his own: “I felt that there was a lack of awareness and positive/educational posts in the social media arena. I thought that I couldn’t be the only one feeling how I felt so I decided to start posting messages about how I felt on any given day.”

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    #7

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    Chronic Illness Advocates Report

    Kay blue
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I wish I could like this more than once.

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    #8

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    Ana.V.
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Being chronically ilI I can relate to this and confirm this statement is something very important, as we tend to feel we're being seen as lazy and/or selfish couch potatos

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    This idea and their work soon went viral, proving that people who have to deal with health problems are not alone. Justin told Bored Panda: “ At first I was surprised at how some posts went 'viral' but then, the more I saw it happen, the more I realized how many people suffer.” Justin himself has to deal with a whole bunch of illnesses such as fibromyalgia, ulcerative colitis, migraines, depression, etc.

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    #10

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    Terilee Bruyere
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    This is so very true. I remember not really getting what my dad was meaning when he said he felt like he was walking on cords (I thought maybe he felt like his sock was bunched up, he had renal failure and diabetic neuropathy). I finally understand :(

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    #11

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    #12

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    Joanna Werman
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thank you. I think that's a big thing that my friends don't get. The few friends that I still have.

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    Coping with these struggles takes a lot of energy and makes people feel like they are all alone in this battle. When such dark days come, Justin says that the right thing to do is to understand that “you are not alone, what you feel is valid, and there are many different social media accounts that can help you find a community that is super supportive of your struggles.” And their project also seems to be having a huge impact on how people see and hear each other, becoming more understanding and sympathetic.

    #16

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    Chronic Illness Advocates Report

    Lucas
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It is surprising how much pain and discomfort you can get 'used to' and how easy it is to hide. I don't want it to be the first thing people know about me. I don't mind sharing but only if I think the person is going to actually listen, and not lecture me on what worked for their old mum who had a completely different problem. I'm not old, I'm ill and I'm also living with injuries from an accident. It isn't the same.

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    #21

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    Kay blue
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I have to constantly remind someone in my life of this. Because I don't work she thinks it's ok to constantly pester me to do stuff for her. I just can't do it all.

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    #24

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    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Getting stuff done also includes recovering. It needs to go on the to do list.

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    #26

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    Nicola Doyle
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    So true! Didn't expect to be on disability and deciding day to day what I can do at my age. Trying not to do too much on days I feel better. Some days all I can do is rest all day.

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    #28

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    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Oooh, that's right up there with "everything happens for a reason". Yes , it could be worse, it could also be better. And what good does it do anybody saying that either? This is the bronze medal of the Misery Olympics.

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    #29

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    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My best friend has spina bifida and she expressed this to me. She then added that since I'm not a licensed medical professional and am unable to provide relief, she would accept a brew, and for me to watch her kids for a couple of hours while she slept. We can't give relief, sometimes the only thing we can offer is support if you want it (and not push it if you don't ask).

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    #33

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    Deb Swan
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Yep, feels the way the end of an 8 hour shift used to.

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    #34

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    RandomBeing
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    I may not be able to understand. But I can understand that it is real and legitimate.

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    #35

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    Donna Rakowiecki
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    The worst was when I had to miss my best friends funeral because I was too sick to get out of bed it was simply heartbreaking and everyone said it was OK put me it wasn't I miss her so much

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    #38

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    Amanda Reicha
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    My seizures and anxiety/panic attacks make my sleep schedule rotate. No matter what any doctor has tried, it's impossible for me to stay on a regular schedule. If I try, my fatigue triggers more seizures and anxiety/panic attacks. It's one big loop.

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    #40

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    Terilee Bruyere
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Even doctors have a hard time with this. I ended up talking to a psychiatrist before I was taken seriously.

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    #41

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    Scagsy
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    It doesn't have to be specifically about the illness. It would be great to just get a jokey text or something. Being left out hurts more than the illness sometimes.

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    #42

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    Lyone Fein
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Or these: *You don't look disabled........ *You sure sleep a lot! *I know you're not doing anything else, so can you do xyz for me? * You look great

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    #43

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    Ana.V.
    Community Member
    4 years ago (edited) Created by potrace 1.15, written by Peter Selinger 2001-2017

    Thank you for understanding

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    #44

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    NsG
    Community Member
    4 years ago Created by potrace 1.15, written by Peter Selinger 2001-2017

    Ugh, I hate this phrase. It needs to be struck from the general lexicon.

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    #47

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    #48

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