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As A Mum I Waited For This Moment For 5 Years…
Five years ago a very tiny boy was born. I called him Ivo. The next day I found out that he has a Down Syndrome. It was a hard time for my family but we loved him at the first smile. When he was 6,5 months old he was diagnosed with one of the hardest type of epilepsy known as Infantile Spasms or West Syndrome. Luckily, after a month of steroid therapy the seizures stopped.
As he grew, we noticed some odd behaviors. Around age 2 his behaviors began to be burdensome to normal functioning. Unsuccessfully searching for an answer we finally asked for a study of autism. The answer we get: neurological disorder calls SPD (Sensory Processing Disorder)
Ivo’s speech is delayed. He usually says some sentences connecting only two words together.
21st of March… for some people this is the first day of Spring, for people with DS ( like my son Ivo ) and their families this is World Down Syndrome Day. For me, since now it is going to be a very special day. The day to remember, the day when my little boy told me the most beautiful words every mother wants to hear… spontaneously, just like that…
Could I have asked for a more beautiful ending of this special day? I was in tears. I waited for this moment for 5 years…
Just watch this video.
More about Ivo you can find on Ivo’s diary (link below) www.facebook.com/IvoSz
More info: Facebook
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Born to be …Ivo…
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What do you think ?
JoChrisco 10 years ago
My little brother Gary was born with MS and Downs syndrome. At six months old he contracted double pnemonia. Being the 50's an intern recessitated Gary after he had stopped breathing. But too long had passed and Gary came back to us with brain damage. There is heart ache in raising special needs children but elation is too small a word when strides are made.
PiotrSzymankiewicz 10 years ago
Sorry to hear that , but true every small step is like something really big for us.
Load More Replies... JoChrisco 10 years ago
My little brother Gary was born with MS and Downs syndrome. At six months old he contracted double pnemonia. Being the 50's an intern recessitated Gary after he had stopped breathing. But too long had passed and Gary came back to us with brain damage. There is heart ache in raising special needs children but elation is too small a word when strides are made.
PiotrSzymankiewicz 10 years ago
Sorry to hear that , but true every small step is like something really big for us.
Load More Replies...
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