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This Baby Girl Has An Inoperable Brain Tumor, So Her Parents Did A Photoshoot To Show Their Love
When Abigail Jones was born on August 6th, her parents already knew the odds were stacked against her, but then came the diagnosis: their little angel had an inoperable brain tumor and probably didn’t have long to live. Despite this crushing news, however, Erika and Stephen Jones were determined to fill her short life with love. This heartbreaking photoshoot captures their bittersweet family life.
“We knew little Abby’s life had a purpose, no matter how long or short it was,” Erika writes on a blog run by Mary, the couple’s photographer. The couple first had to come to terms with the news that Abigail, their second daughter, would be born with Down syndrome, but the news of the inoperable tumor was different. “Our hearts were broken and our minds weighted with questions and fear of the unknown to come”
“The neurosurgeon recommended that we take Abigail home and cover her with love,” Erika writes. “So we did and pediatric hospice will help us navigate the journey to come. We have smothered this little one with love and kisses and will continue to do so every moment we get.”
More info: 808photographyjax.com (h/t: abcnews)
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“At our 30 week ultrasound, our Dr. discovered that a mass had developed in the left hemisphere of Abigail’s brain”
“A MRI done after birth confirmed that nothing can be done to treat the tumor, it is too invasive and aggressive”
“Our hearts were broken and our minds weighted with questions and fear of the unknown to come”
“The neurosurgeon recommended that we take Abigail home and cover her with love”
“We have smothered this little one with love and kisses and will continue to do so every moment we get”
“She is moving, nursing, squawking, sticking out her tongue, opening her eyes, holding our fingers, and doing all things a baby does”
“Most likely, her whole life will be weeks or months, not years”
“Our hearts are broken and ache for the time that we don’t have”
“We don’t want to lose our daughter. We want to see her laugh, dance, fight with her sister, ride a bike, go to school… we want to see her life”
Erika writes that God “will heal Abigail, in our arms on this earth or the moment she breaths her last breath and is embraced by her Heavenly Father”
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What do you think ?
NadavBarKama 10 years ago
these photos are lovely. i mean every thing about them just has LOVE written on it.
HattieLeighton 10 years ago
The same place He was when my son lost oxygen during birth, was severely disabled and passed away 3 weeks before his 4th birthday. Ever present! Let's be clear. Religion is for fools. I have a relationship with the King of Kings. It's a deep spiritual connection. I pray everyone can experience Him <3
Load More Replies...
HaleyGoranson 10 years ago
I am moved to tears... breathtaking beauty within this entire family
BarbaraHarrell 10 years ago
My heart goes out to you...wrapping her in love is the perfect medicine....
FurnishMyWay_Blog 10 years ago
The photos are lovely and the couple's story is powerful. The love they have for their daughter is the most precious thing ever. Such and sad yet powerful story they have.
CarolynFerrill 10 years ago
My older brother had Downs and died of medical complications months after he was born. These parents are doing a great job to honor this child. I really feel for them.
LetíciaTeles 10 years ago
It's an unnamed feeling, but I hope they are having the talk with the bigger princess, that's going to be tough
MaryLouiseCastillo 10 years ago
Thank You! These photos have captured the immensity of love parents have for their little one and for their little family. The depth of genuine love cannot be measured nor imagined, but here we are allowed to enter into its universal tenderness in the face of Little Abigail! Thank for sharing your love. Blessings!
MarikaStanway 10 years ago
I am so sorry for you. But I am also happy for the moments you get to spend with her, and give her all the love you can muster. I can not even imagine what you are going through as a family and as individuals. I hope you can pull strength from each other and let your love envelope yourselves as well as your little daughter. Much love to you all. May you find peace after it's all done.
Rob Garcia 8 years ago
I don't tolerate fools and I don't tolerate weakness! This defect should be put to sleep and her organs and body parts sold off for research! She does not deserve a life at all!
RebeccaFreeman-Obrien 10 years ago
I'm so sorry. Thank you for sharing this beautiful little girl. God bless you all.
KennethSilagy 10 years ago
It is very wonderful that you have her to hold and love. May she be a blessing over and over again for your family with the time given to you. Spend every day with her to the fullest.
JoedeM 10 years ago
These parents are using this poor little babe to promote their right to "life" approach at whatever the cost and to receive accolades from those who are not considering the poor quality of life associated with the diagnoses. This sanctimonious attitude is selfish and lacking in compassion.
FrancesReidSeward 10 years ago
oh my goodness, yes, please heal the little baby dear almighty. I am so sorry you have to go through this. So hard it must be. Wow! My heart goes out to all your family! Dear little one looks strong. I will think of you often! xxxx
PascalScherrer 10 years ago
Why have they to do a photo shoot to show their love? To whom? Their kid or the people out there? Of course they love you love your baby even if it has a brain tumor. You don't have to do a photo shoot to proof that...
DanielaBlueMoonBoal 10 years ago
I'd say for themselves, so they can keep them and remember but are also sharing with people around. A lotof people do photoshoots with their babies and no ones says anything about it, so what it so wrong with them doing th same? They will have lovely photos to look at and remember the little time they had together with their beautiful daughter.
Load More Replies...
JeanninePope-Carter 10 years ago
Just to clarify, for most people of mature faith God is not Santa Clause. God gives all humans free will or we would be robots. One of the consequences of free will is that the world is not a clockwork -- illness happens, disease happens, natural disasters happen. Religion is not about rules of being a good boy/girl or a bad boy/girl it is a deep relationship with the Eternal One who is, was and always will be. If you are Christian, then your primary faith relationship is with Jesus Christ who is one in being with God. People who are dealing with illness in themselves or their family members or most sadly their children are praying to God that they will get well. Because prayer changes us and changes circumstances, but God is not impassively looking down. God is always trying to bring about better outcomes, and often God uses us for that. God is a complete expression of love, though our own pain obscures that, but these pictures do not. Rev. Jeannine - Hopice Chaplain.
YolandaMunoz 10 years ago
I would like this family to try baking soda . My brother did and his tumor is less than 1/2 the size it was 5 months ago. Please try a holistic healer. Please know that I will hold you in my prayers!! The photos are nice.
CristiPop 10 years ago
I'm going to go out on a limb and state that you've never dealt with a newborn before? It may look weird but it's not that uncommon to wrap them up like that. They don't use their limbs much because the muscles are still too weak, and it's more important that they feel snug & warm. http://raisingchildren.net.au/articles/wrapping_newborn.html
Load More Replies...
NadavBarKama 10 years ago
these photos are lovely. i mean every thing about them just has LOVE written on it.
HattieLeighton 10 years ago
The same place He was when my son lost oxygen during birth, was severely disabled and passed away 3 weeks before his 4th birthday. Ever present! Let's be clear. Religion is for fools. I have a relationship with the King of Kings. It's a deep spiritual connection. I pray everyone can experience Him <3
Load More Replies... HaleyGoranson 10 years ago
I am moved to tears... breathtaking beauty within this entire family
BarbaraHarrell 10 years ago
My heart goes out to you...wrapping her in love is the perfect medicine....
FurnishMyWay_Blog 10 years ago
The photos are lovely and the couple's story is powerful. The love they have for their daughter is the most precious thing ever. Such and sad yet powerful story they have.
CarolynFerrill 10 years ago
My older brother had Downs and died of medical complications months after he was born. These parents are doing a great job to honor this child. I really feel for them.
LetíciaTeles 10 years ago
It's an unnamed feeling, but I hope they are having the talk with the bigger princess, that's going to be tough
MaryLouiseCastillo 10 years ago
Thank You! These photos have captured the immensity of love parents have for their little one and for their little family. The depth of genuine love cannot be measured nor imagined, but here we are allowed to enter into its universal tenderness in the face of Little Abigail! Thank for sharing your love. Blessings!
MarikaStanway 10 years ago
I am so sorry for you. But I am also happy for the moments you get to spend with her, and give her all the love you can muster. I can not even imagine what you are going through as a family and as individuals. I hope you can pull strength from each other and let your love envelope yourselves as well as your little daughter. Much love to you all. May you find peace after it's all done.
Rob Garcia 8 years ago
I don't tolerate fools and I don't tolerate weakness! This defect should be put to sleep and her organs and body parts sold off for research! She does not deserve a life at all!
RebeccaFreeman-Obrien 10 years ago
I'm so sorry. Thank you for sharing this beautiful little girl. God bless you all.
KennethSilagy 10 years ago
It is very wonderful that you have her to hold and love. May she be a blessing over and over again for your family with the time given to you. Spend every day with her to the fullest.
JoedeM 10 years ago
These parents are using this poor little babe to promote their right to "life" approach at whatever the cost and to receive accolades from those who are not considering the poor quality of life associated with the diagnoses. This sanctimonious attitude is selfish and lacking in compassion.
FrancesReidSeward 10 years ago
oh my goodness, yes, please heal the little baby dear almighty. I am so sorry you have to go through this. So hard it must be. Wow! My heart goes out to all your family! Dear little one looks strong. I will think of you often! xxxx
PascalScherrer 10 years ago
Why have they to do a photo shoot to show their love? To whom? Their kid or the people out there? Of course they love you love your baby even if it has a brain tumor. You don't have to do a photo shoot to proof that...
DanielaBlueMoonBoal 10 years ago
I'd say for themselves, so they can keep them and remember but are also sharing with people around. A lotof people do photoshoots with their babies and no ones says anything about it, so what it so wrong with them doing th same? They will have lovely photos to look at and remember the little time they had together with their beautiful daughter.
Load More Replies... JeanninePope-Carter 10 years ago
Just to clarify, for most people of mature faith God is not Santa Clause. God gives all humans free will or we would be robots. One of the consequences of free will is that the world is not a clockwork -- illness happens, disease happens, natural disasters happen. Religion is not about rules of being a good boy/girl or a bad boy/girl it is a deep relationship with the Eternal One who is, was and always will be. If you are Christian, then your primary faith relationship is with Jesus Christ who is one in being with God. People who are dealing with illness in themselves or their family members or most sadly their children are praying to God that they will get well. Because prayer changes us and changes circumstances, but God is not impassively looking down. God is always trying to bring about better outcomes, and often God uses us for that. God is a complete expression of love, though our own pain obscures that, but these pictures do not. Rev. Jeannine - Hopice Chaplain.
YolandaMunoz 10 years ago
I would like this family to try baking soda . My brother did and his tumor is less than 1/2 the size it was 5 months ago. Please try a holistic healer. Please know that I will hold you in my prayers!! The photos are nice.
CristiPop 10 years ago
I'm going to go out on a limb and state that you've never dealt with a newborn before? It may look weird but it's not that uncommon to wrap them up like that. They don't use their limbs much because the muscles are still too weak, and it's more important that they feel snug & warm. http://raisingchildren.net.au/articles/wrapping_newborn.html
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