Zente was born on the 28th of February 2018 in Hungary with a severe genetic disorder, called SMA ( spiral cord muscle atrophy). He started to show signs of the disease at 4 months of age, and was diagnosed at 5 months of age with SMA type 1. With this diagnosis, children will not survive beyond age 2, because muscular atrophy not only affects the muscles of the limbs, but also the muscles needed for swallowing and breathing! Zente, on the other hand, is an exceptionally strong baby, despite of the disease. He is fighting against muscle wasting with a help of a special treatment called Spinraza. He is getting this since 7 months of age. Each injection is given into the spinal cord after lumbar admisintration. So far, Zente has been through 6 lumbar.
There is one treatment what could save Zente’s life.
The essence of the Zolgensma treatment is very simplified: a virus is introduced to the body, which takes over the role/function of the missing gene and begins to produce protein for the muscles…as much as you need to have. (Not just a little to survive).
This is a single infusion. Only one treatment is needed. It is available since May in the USA. There is no European treatment permit.
The current development is only for children up to 2 years of age. The cost of the treatment is an incredible amount $2.11 million.
So the parents have 6 months to get it…
Zente is an excellent candidate for this treatment. Please help him with even one dollar if you can!
Összefogás Zentéért Alapítvány
International account number (OTP Bank Hungary): HU06117310012312017800000000
SWIFT/BIC: OTPVHUHB
GoFundMe:
https://www.gofundme.com/f/help-zente-to-live-a-long-carefreesma-free-life
PayPal:
https://www.paypal.me/OsszefogasZenteert
(Source:https://www.facebook.com/Zente-SMA-1-Baby-350892568989729/)
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