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Remember The Ice Bucket Challenge? It Just Funded A Major Breakthough In ALS Research
Remember the ice bucket challenge? Well, guess what? The charity fundraiser condemned by many as “slacktivism” has just funded a major breakthrough in ALS research.
The University of Massachusetts Medical School’s Project MinE has just identified the gene that is responsible for ALS (Amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease or Motor Neuron Disease). This game-changing discovery, published in Nature Genetics, was possible thanks to the 1 million USD that was donated to scientists at the university from the Ice Bucket Challenge. More than 5,000 people each year are diagnosed with ALS in the U.S alone, and the discovery of the gene in question (named NEK1) could lead to a better understanding of, and treatment for, ALS.
“The ALS Ice Bucket Challenge enabled us to secure funding from new sources in new parts of the world,” said Bernard Muller, founder of Project MinE and an ALS patient. “This transatlantic collaboration supports our global gene hunt to identify the genetic drivers of ALS.”
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Remember the Ice Bucket Challenge back in 2014?
Image credits: Mr.Gregor
Millions of people took part to help raise money and awareness for ALS, otherwise known as Lou Gehrig’s disease
Image credits: thegatesnotes
Well, some of the $100+ million USD raised from the initiative has just helped scientists to make a major breakthrough in ALS research!
Image credits: Broadimage/REX
They’ve finally identified the gene that causes ALS. It’s called NEK1
Image credits: Nature
Many people, including Stephen Hawking, suffer from ALS. Most people die within 2 to 5 years of diagnosis but Hawking has a rare form of the disease
Image credits: Lwp Kommunikáció
ALS attacks the body’s nerve cells responsible for controlling voluntary muscles. There is currently no cure but discovering NEK1 is a huge step forward
Image credits: nursingcrib
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mofoso fisto 5 years ago (edited)
My first symptoms of ALS occurred in 2011, but was diagnosed in 2013. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS Formula treatment from Akanni herbal centre , It has made a tremendous difference for me (Visit www. akanniherbalcentre .com). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others.
Aybike Avşar 9 years ago
This is good news! They will find the cure eventually, at least a way to ease the sufferings of patients.
Steven Westermann 6 months ago
I was diagnosed with bulbar ALS in May 2024. I live in Texas, and I’m 68 years old. I take Nudexta medication to help with the emotional outbursts of laughing and crying. The weakness, slurred speech, and muscle loss progressed quickly. Mobility has been an issue since Dec 26, when I fell and broke my hip, and although I made small strides at first, I felt like my life had been placed on a countdown, as there was no known cure other than the prescription of riluzole medications, vitamins, and therapies. As the disease progressed, my symptoms worsened. With my neurologist's guidance we decided to try other approaches and started the ALS/MND treatment, and it changed everything. Within 5 months, I noticed more strength in my limbs, clearer speech, and I have stopped using feeding tubes. I’m starting to learn how to walk again & I now sleep better. This ALS/MND treatment program gave me back control and hope. we got the treatment from uinehealthcentre. net This is a game changer for peopl
Grace Nathan's 1 year ago
“My husband has been diagnosed with ALS since August ‘2021 and started taking Riluzole without missing any doses. We set the time (7:00 a.m.& 19:00 p.m) to take Riluzole in time without missing. After taking this d**g for 2 years we noticed more advancements in breathing difficulties, difficulty pronouncing words, and difficulties eating occurred before we made the decision to try different medications Around last year our primary physician made us aware about the ALS/MND programme which has helped a lot of similar ALS cases, we decided to try the program, it has made tremendous difference for my husband, He received the treatment for ALS at uinehealthcentre. com approximately four months ago; since then, he has stopped using a feeding tube, sleeps well, works out frequently, and has become very active.
Grace Nathan's 1 year ago
“My husband has been diagnosed with ALS since August ‘2021 and started taking Riluzole without missing any doses. We set the time (7:00 a.m.& 19:00 p.m) to take Riluzole in time without missing. After taking this d**g for 2 years we noticed more advancements in breathing difficulties, difficulty pronouncing words, and difficulties eating occurred before we made the decision to try different medications Around last year our primary physician made us aware about the ALS/MND programme which has helped a lot of similar ALS cases, we decided to try the program, it has made tremendous difference for my husband, He received the treatment for ALS at uinehealthcentre. com approximately four months ago; since then, he has stopped using a feeding tube, sleeps well, works out frequently, and has become very active. Although it doesn’t cure his ALS, it has improved his quality of life.
Kenneth Laura 1 year ago
Find a natural alternative method to reverse different diseases and STDs no matter what hospital's says about these illness. I am sharing my healing encounter from genital herpes after using WORLD REHABILITATE CLINIC Formula to cure my HSV-1&2 diagnosis permanently. A few weeks ago my new lab result shows that I tested negative. I am so happy I did gave it a try. Currently, my 65 years old mom is using " herbs" to eliminate her diabetes and the recovery process is amazing. I am recommending this product for those that are willing to give it a try as these holistic remedies do not have any side effects. It’s also crucial to learn as much as you can about your diagnosis. Seek options check out: ( worldrehabilitateclinic. com )
Meyer Odette 1 year ago
Last year, my 68-year-old partner was diagnosed with Lou Gehrig's disease also known as ALS. Speaking and swallowing were two of his challenges. His collapse was swift and catastrophic, and neither the riluzole nor the medical staff did much to aid him. He would not have survived if our primary care physician hadn't given him attentive care and attention, as the hospital center didn't provide any psychological support. His fall was abrupt and catastrophic. His hands and legs gave way to weakness in his arms. This year our family physician suggested using vinehealthcentre. com ALS/MND treatment, which my husband has been receiving for a few months now. I'm delighted to say that the treatment greatly reduced and reversed his symptoms of ALS, he no longer requires a feeding tube, sleeps soundly, works out frequently, and is now very active. In the hopes that it could be useful, I thought I would relate my husband's tale; in the end, you have to do what suits you the best.
Julie Hilditch 2 years ago
In December my health took a turn for the worse I became very weak fast and could not even eat When I say fast I mean going from eating a full plate of food to three days later not being able to drink a a sip of water I went to VA hospital emergency room for dehydration and figure they schedule me for a feeling tube placement They admitted me and two weeks later I woke up to my standing over me in the hospital room this occurred during my second or third drug holiday from Radicava Again no way to know if what I experienced was a side effect When I was discharged I was completely paralyzed So i started on Ayurvedic treatment from Natural Herbs Centre as time went on movement returned to my legs and to my arms and hands Able to hold my head up and strength has returned I give credit to God and NHC for my recovery Almost forgot to mention I was on 24 hours ventilation Now only use vent at night and during naps Was diagnosed in 2021 with ALS, I urge you to seek out naturalherbscentre. com.
mofoso fisto 5 years ago (edited)
My first symptoms of ALS occurred in 2011, but was diagnosed in 2013. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS Formula treatment from Akanni herbal centre , It has made a tremendous difference for me (Visit www. akanniherbalcentre .com). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others.
Aybike Avşar 9 years ago
This is good news! They will find the cure eventually, at least a way to ease the sufferings of patients.
Steven Westermann 6 months ago
I was diagnosed with bulbar ALS in May 2024. I live in Texas, and I’m 68 years old. I take Nudexta medication to help with the emotional outbursts of laughing and crying. The weakness, slurred speech, and muscle loss progressed quickly. Mobility has been an issue since Dec 26, when I fell and broke my hip, and although I made small strides at first, I felt like my life had been placed on a countdown, as there was no known cure other than the prescription of riluzole medications, vitamins, and therapies. As the disease progressed, my symptoms worsened. With my neurologist's guidance we decided to try other approaches and started the ALS/MND treatment, and it changed everything. Within 5 months, I noticed more strength in my limbs, clearer speech, and I have stopped using feeding tubes. I’m starting to learn how to walk again & I now sleep better. This ALS/MND treatment program gave me back control and hope. we got the treatment from uinehealthcentre. net This is a game changer for peopl
Grace Nathan's 1 year ago
“My husband has been diagnosed with ALS since August ‘2021 and started taking Riluzole without missing any doses. We set the time (7:00 a.m.& 19:00 p.m) to take Riluzole in time without missing. After taking this d**g for 2 years we noticed more advancements in breathing difficulties, difficulty pronouncing words, and difficulties eating occurred before we made the decision to try different medications Around last year our primary physician made us aware about the ALS/MND programme which has helped a lot of similar ALS cases, we decided to try the program, it has made tremendous difference for my husband, He received the treatment for ALS at uinehealthcentre. com approximately four months ago; since then, he has stopped using a feeding tube, sleeps well, works out frequently, and has become very active.
Grace Nathan's 1 year ago
“My husband has been diagnosed with ALS since August ‘2021 and started taking Riluzole without missing any doses. We set the time (7:00 a.m.& 19:00 p.m) to take Riluzole in time without missing. After taking this d**g for 2 years we noticed more advancements in breathing difficulties, difficulty pronouncing words, and difficulties eating occurred before we made the decision to try different medications Around last year our primary physician made us aware about the ALS/MND programme which has helped a lot of similar ALS cases, we decided to try the program, it has made tremendous difference for my husband, He received the treatment for ALS at uinehealthcentre. com approximately four months ago; since then, he has stopped using a feeding tube, sleeps well, works out frequently, and has become very active. Although it doesn’t cure his ALS, it has improved his quality of life.
Kenneth Laura 1 year ago
Find a natural alternative method to reverse different diseases and STDs no matter what hospital's says about these illness. I am sharing my healing encounter from genital herpes after using WORLD REHABILITATE CLINIC Formula to cure my HSV-1&2 diagnosis permanently. A few weeks ago my new lab result shows that I tested negative. I am so happy I did gave it a try. Currently, my 65 years old mom is using " herbs" to eliminate her diabetes and the recovery process is amazing. I am recommending this product for those that are willing to give it a try as these holistic remedies do not have any side effects. It’s also crucial to learn as much as you can about your diagnosis. Seek options check out: ( worldrehabilitateclinic. com )
Meyer Odette 1 year ago
Last year, my 68-year-old partner was diagnosed with Lou Gehrig's disease also known as ALS. Speaking and swallowing were two of his challenges. His collapse was swift and catastrophic, and neither the riluzole nor the medical staff did much to aid him. He would not have survived if our primary care physician hadn't given him attentive care and attention, as the hospital center didn't provide any psychological support. His fall was abrupt and catastrophic. His hands and legs gave way to weakness in his arms. This year our family physician suggested using vinehealthcentre. com ALS/MND treatment, which my husband has been receiving for a few months now. I'm delighted to say that the treatment greatly reduced and reversed his symptoms of ALS, he no longer requires a feeding tube, sleeps soundly, works out frequently, and is now very active. In the hopes that it could be useful, I thought I would relate my husband's tale; in the end, you have to do what suits you the best.
Julie Hilditch 2 years ago
In December my health took a turn for the worse I became very weak fast and could not even eat When I say fast I mean going from eating a full plate of food to three days later not being able to drink a a sip of water I went to VA hospital emergency room for dehydration and figure they schedule me for a feeling tube placement They admitted me and two weeks later I woke up to my standing over me in the hospital room this occurred during my second or third drug holiday from Radicava Again no way to know if what I experienced was a side effect When I was discharged I was completely paralyzed So i started on Ayurvedic treatment from Natural Herbs Centre as time went on movement returned to my legs and to my arms and hands Able to hold my head up and strength has returned I give credit to God and NHC for my recovery Almost forgot to mention I was on 24 hours ventilation Now only use vent at night and during naps Was diagnosed in 2021 with ALS, I urge you to seek out naturalherbscentre. com.
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