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When a person goes to a medical institution, they expect to be treated equally as others, they expect to be heard and provided a solution. Unfortunately, that’s not how it works all the time and patients get disappointed with their healthcare providers.

The reasons can vary: it could be that the healthcare worker has a personal problem with a patient, maybe they worked 24 hours in a row and just want to be finished with their shift, or they don’t devote themselves to their job as much anymore because they’re burnt out.

There are obviously a lot of issues in the medical field that both patients and healthcare professionals have to deal with. And Twitter user @DrBryanLeyva wanted to know what people feel is the problem that is the worst in their eyes. Bryan asked, “What should we denormalize in healthcare?” and people had so much to say.

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#1

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Jenn Ryan
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

It took me until my early 30's to find an OB/GYN who would sterilize me. I have known since I was a kid that I don't want children. I have horrible side affects from birth control, so that wasn't an option. It is absolutely ridiculous.

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SBW71
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I knew from age 14 I didn't want any kids either and I'm about to turn 50 and still don't want any. Glad I didn't have any. What's the saying? My body my choice.

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Foxxy (The Original)
Community Member
2 years ago (edited) DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

It's absolutely ridiculous. I had to emphasise that if I accidentally fell pregnant that I will be getting an abortion. I think that made them understand how serious I was about not wanting any more kids. Now I am expecting to have the surgery (salpingectomy) within the next month or so. I'm actually looking forward to it, much less stress and can take my contraception out that causes crappy side effects.

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Marie
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

A friend had a cesarean during a high risk pregnancy and they took her uterus OUT and put it beside her while they repaired some damage and even though she said not to put it back (localized anesthetic) the Dr replied "what if one of your kids die"... as if having a replacement kid (sickening idea to start with) was more important than her wish to not have the damaged (unusable anyway) organ returned.

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Ivan Aguilar
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I knew about this because a friend of mine, single mom of 1, 36yo, was denied from getting the operation, I was shocked because me as a 38yo. single man, no kids, got the vasectomy without any problem. I just don't get it...

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Tobias Rieper
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

a hysterectomy is a lot more complicated than a vasectomy which can be reversed

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Kori Peek
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I was in my late 20's, already had twins and was having horrible side pain that would come and go but over time was there every day and was awful. After so many tests, taking out my appendix they realized it was my rt ovary. The ob wouldn't take it out though bc she kept saying "what if you want more kids?" "You're still so young." I didn't care and made that VERY clear plus I'd still hv my left "but it made the chances much smaller". Still made it clear I didn't care just wanted to feel normal again w/out pain. She wouldn't take it out. So for 2 years I put up with horrible pain off and on until one day it was so horrific her colleague finally did an emergency surgery and took it out.(she was out of town) I hadn't had a normal period in almost 4 years until it came out. The pain immediately stopped, and lo and behold 7 months later, I got pregnant. I learned to NEVER let a doctor tell me what's best for my body from that point on.

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jtrisn1
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I'm about to start requesting to grt my tubes tied. I have irregular periods that need to be medically induced or else I am at risk for cancer. Can't wait to fight everyone and my mother.

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V33333P
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Check for endo or PCOS, coz tying your tubes won't help with periods :/ good luck! I had endo and it's absolute hell

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Cass Malone
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Or you have to have x amount of kids already or you husband has to agree to it. Like wtf?!

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Bobby
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

It should be the same as for a man. You know what your losing? you're sure you want this? ok lets do it

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Carol Emory
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Thank you. I wanted a hysterectomy because I have really bad Endometriosis. The doctor said "no" because I was 29 and I might want to have more kids. My son was 8 and autistic. I was told I had a really good chance of any other kids being even more severely autistic. Why can't I make the decision? It's my body.

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Clare E
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Hysterectomy is not a cure for endometriosis, only for adenomyosis.

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Kenya Tate
Community Member
2 years ago (edited) DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

THIS!! In 98 I had my ob/gyn tell me that I should get an iud and I said NO I want my tubes tied, I kept asking at every appointment until she finally said: you’ve waited too late to request your tubes be tied, it has to be 30 days before estimated delivery?! WTF???

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Ellie Chandler
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

They didnt let my mom do it untill she had 3 kids while having problems I myself almost killed her during birth.

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kjorn
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

my wife always says that she didn,t want kids. it was only in her 30's she completly changed her mind. you never know.

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Frankenfrog
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Kindly f off with this demeaning s**t. You go around saying this to people who had kids as well? Total disrespectful of other people's bodily autonomy just because your wife hadn't made up her mind

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Ashley Shaffer
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Seriously. I don't want anymore kids. But when I had my last one and I was please make it stop 3 is enough. They doc who also told me 3 is enough said what if you change your mind. I've already had two birth control pregnancies. Wtf.

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Riley Quinn
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I was extremely fortunate to have an ob/gyn who was willing to tie my tubes (back in the 70's!!!). The hospital required my husband's consent (C.Y.A.), but I knew I wasn't parent material.

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Kise Miarse
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Not just her current wishes, but her health, well-being and quality of life. I had horrible symptoms for years, and am in my late 30s. Stated clearly and without hesitation that fertility was not a concern. And still had a doctor dodge my hysterectomy questions because "Some women - not you - but *some* *women* hit 40 and just (snaps fingers) want that baby." This was a female surgeon btw.

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Celtic Pirate Queen
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

My daughter wanted her tubes tied after her second was born. They refused because she was under 30. Guess who has 3 kids and tied tubes now?

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littlesaresare
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I had endometriosis that left me in such pain that I was literally incapacitated. I also had literal non-stop periods - for two years I had maybe twenty days total that I didn't bleed - and was anemic and constantly fatigued and dehydrated despite high iron supplementaion. I was also allergic or otherwise contraindicated to every contraceptive, AND I have a heart condition that makes both pregnancy and abortion extremely dangerous. Yet even with all that, it took over eight years of fighting for me to win my right to a medically necessary hysterectomy. And even then I was abused by the religious doctors the whole time.

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Metallic Geisha
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I FINALLY got my tubes tied after my 3rd child, before hitting age 27. Those were the conditions before I was 'allowed' to have it done. Either have 3 kids or be 27 yrs old or older. I knew when I was 15 I didn't want kids, and I was forced by 2 husbands to get pregnant all 3 times. What is this, 1321?

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Wonderful
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Finally had a hysterectomy at 22 after having problems since I was 12. Biggest excuse is that “what if you want children some day”. Beoootch I’m having a period for 2 years straight and it’s not light. Endometriosis, fibroids, cysts, strangulated Fallopian tubes, upside down uterus, cervix removal, right ovary removal, missed school, missed life, but “what about babies!!!”

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Anne
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Don't forget.. in many countries.. without your husbands approval.. its really hard to get sterilized.. crazy world

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AzKhaleesi
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Or the notion that a woman who's already HAD children and can't have anymore and yet STILL won't give a medically necessary hysterectomy and demands said Woman needs to "try BC for 3 months" and then won't authorize to pay for it. smh

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Linda HS
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

The fact that my OB/GYN didn't proceed with hysterectomy as I have requested, almost killed me. Complications from previous surgeries that went wrong. Finally found an amazing OB/GYN who did everything to save me! Bless him!

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Little Wonder
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I finally had a hysterectomy a couple of weeks ago, after asking for one since I was 15 (I'm 43). I was told I could "squeeze in a pregnancy" before hand if I wanted to. No thanks. I knew when I was 15 I wouldn't be having children, but every scrap of health care I've had my whole adult life has been based on my fertility. Delighted to now be able to say "Nope, can't have a kid anyway, treat me!"

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v
Community Member
2 years ago (edited) DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

The notion that women aren't able to make their own mind about their own body should be de-normalized. The only thing that should be made into law in this regard is that all true and relevant information for the moment at hand will be provided and clearly explained.

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Ivy Uken
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I see the point if like a teenager wants to get sterilized because it could change and yeah but after like 19 0r 20 you should be able to decide because its your body

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Frankenfrog
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

And what about teenagers who are having kids while being kids themselves? At least no one's getting hurt by being sterilised. And there's a thing called adoption. Not everyone is a giant narcissist who only wants their own genes multiplied.

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Catpoker88
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Oh yes, I had doctors refuse to sterilize me, it didn't matter that I didn't want kids, it didn't matter that I have a disease that could kill me if I carried to term, hell, it didn't even matter that I was married and over the legal age to choose sterilization! Nope, future spawn was all that mattered to them. It took years of fighting to finally get it done.

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Emma Byrne
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

In a lot of places women find it hard or impossible to get sterilized. Especially if they are younger and childless.

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WA2DK
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Gyn nurse here. Our doctors are also very cautious to allow women under the age of at least 35, to have their tubes tied. 1: An IUD is pretty much as save as a sterilisation, 2: You might be 27, have been married for 8 years, have two kids and think you don't want more. Flash forward 5 years, your relationship fell apart, and you've met a new wonderful, but childless man, whose biggest dream is to have at least ONE child. I'm not saying this happens for all, but it happens often enough that women want their sterilisation reversed for whatever reason, so when there IS something on the market that's nearly as safe, doesn't include half the risk of complications and can be reversed in a jiff, it does make sense doctors prefer that. Sure, not everyone can "get along" with their IUD, but there's also the risk of not "getting along" with your surgery, in regards to scar tissue, long lasting infection and/or adherences.......

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Foxxy (The Original)
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

As a gyno nurse you would know that most women who have surgical contraception like tuba ligation, oophorectomy or salpingectomy etc still have the option of IVF, foster/adoption and/or surrogacy. Why should a women's choice be taken away because of the few that change their mind. I would never choose to use an IUD, have heard too many horror stories of them moving, embedding and causing infections and severe pain. I would much rather surgery, which fortunately I have been approved for.

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KT
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2 years ago

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Because many women do change their minds later on in life about having children.

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Foxxy (The Original)
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Most medical contraception ie tubes tied, ovaries removed etc the woman can still go through IVF. So the possibility of them "maybe" changing their minds is not a good enough reason to prevent them from having the surgery if they choose too. A hysterectomy though is major surgery and women won't choose that method simply for surgical contraception. They are usually desperate women suffering in pain or extremely heavy periods that effect their quality of life.

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Verena Abt
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2 years ago

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I'm so glad I was talked out of this one!!! I went from no child to four, and after going through a major trauma last year, I'm so so glad I still have the little one who makes my life worth living!

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Frankenfrog
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I feel sorry for your kids who are practically acting as your therapist. You should definitely have gotten your tubes tied.

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Lora Mad
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2 years ago

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Current wishes sometimes can be subjective and under the influence of temporary forces, or under the influence of strong affect. I once wanted to kill myself because I broke up with my first boyfriend and life seized to have meaning to me. What young people don't fully realize is that their life is full of different chapters and every decade you can be a totally different person, look back at yourself and say "What the heck was I thinking?". It's perfectly OK, this means you evolve.Of course somebody is going to apply resistance to your current wishes, I do it all the time with my children, just to make sure they truly want the thing they want. You cannot trust the current judgement of people when the consequences are terminal. That's the main reason they removed death penalty - because of the "what if..." part. Don't get me wrong, I definitely don't care whether a woman has or doesn't have children. But people's choices that have permanent consequences should definitely be questioned.

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Susie Elle
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2 years ago

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I kind of get it, from a doctor's point of view. The consequences of sterilizing a woman who later on has a change of heart on wanting children are greater than having someone who wants to be sterilized wait for a few more years to avoid the former. There's just no going back after sterilization, and women changing their feelings about having children isn't uncommon.

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Bryan Leyva is a Doctor of Medicine who went to Warren Alpert Medical School of Brown University and now he is a public health researcher at the University of Minnesota. Bryan focuses his research on “the behavioral and social determinants of health; b) racial and socioeconomic health disparities; c) models, measures, and strategies to improve quality and equity in health care.”

#3

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Nikki Sevven
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

"Psychosomatic" isn't an insult. It means "(of a physical illness or other condition) caused or aggravated by a mental factor such as internal conflict or stress." Anxiety and depression can cause physical symptoms to worsen, and it's necessary to point that out clinically in order to properly treat a patient.

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He wanted to hear the vox populi and asked “What should we denormalize in healthcare?” which essentially means, what are the biggest problems in the healthcare system that bother people the most.

Both people who were patients and medical professionals joined the conversation and a lot of issues surfaced. Some pointed out that racial and sexual discrimination or applying stereotypes still are existing problems that prevent doctors from giving quality service.

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Robert T
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2 years ago (edited) DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

This is no joke. When I was on chemo, they used start it of an evening, and well 4 or 5 bags of fluid has to go somewhere, so I was up all night peeing. You can therefore imagine my delight when someone comes round offering you breakfast at 7.30 in the morning! I won't complain too much though, as I owe my life to them and the care they gave me.

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Vicky Z
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Exactly!!! When a 15 year old is telling you while crying that her quality of life is so bad that she prefers to get rid of everything inside her or to die you don't f*****g tell her that it's normal and you better get used to it cause it's going to be like that for the next 30-40 years!!! (Real dialogue with my first ob!)

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J Rob
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I was at university and broke my pinky finger during the night. I went to Student health first thing in the morning when they opened. They put me in an exam room to wait for next available. I sat in the room for four hours. I thought things were getting very quite. I walked down hallway and everyone had gone to lunch except one attendant at the front desk. He asked me what I was doing! Not a happy day.

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Vicky Z
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

What's interesting is that noone is asking a pregnant woman if she is sure she wants to keep it cause she might regret it later! It's very possible that there is regret in both situations!

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Others were pointing to the absurd amounts of money they have to pay in order to get the help they need. There were a quite significant number of people who thought that doctors will not believe how much pain patients, especially women, are in.

Miscommunication was also brought up as doctors will not try to explain conditions and illnesses to their patients in a language they would understand.

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Robert T
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2 years ago (edited) DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

This is sadly one of the drawbacks of the NHS. The healthcare might be free, but it often involves a fair bit of waiting around, meaning more time off work, and if you have driven the to the hospital it can also mean increased parking charges if they are running late. I think we need to start an awareness campaign with fake invoices "if this had been America, this is what you would'be been charged". People might appreciate them more.

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Medical professionals themselves were mentioning burnout and long shifts as well as disrespect among colleagues. So both sides see problems that need to be fixed and every issue that has been mentioned has to be dealt with individually as there is no one solution that would fit all challenges, so maybe that is why it is so difficult to change the situation. 

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Caro Caro
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

My mum was discharged from hospital with meds and wound care supplies. A specialist comes every other day to take care of her wound.

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Zozo🤟
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I got really tired of being called a healthy young woman until I realized that they were saying that I wasn’t fat or underweight.

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Vicky Z
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Or normal because you are a woman and you are supposed to feel like s**t all the time

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Medical professionals are a crucial part of our society as they contain the knowledge of how to heal and survive when you are literally in the process of stepping into a coffin. But if they can't provide the care people need, it is really concerning and admitting that there are problems is already progress towards finding a solution.

So what would you answer to Bryan’s question? Let us know in the comments and also show us what tweets you agree with the most by upvoting them!

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Jo Johannsen
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

When you can hear the nursing staff making jokes about you from outside your room in the emergency department. Guys, I am fat, not stupid and deaf.

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Robert T
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Stop pussy footing around. Make healthcase a universal right which is free to everyone.

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Lauren Caswell
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Ding ding Ding! Anxiety disorder, female, told my crippling pain must be stomach bug, twice turned away from hospital. Third time I went back i was really bad, and it caused a huge amount of surgeries that may have been avoided. I mean jeez if I'm saying it's only one notch below childbirth, pls listen. Anxious doesn't always mean wrong.

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Marie
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

As a person with several conditions that CAUSE weight gain as a side effect, I'm still classified as obese even as I know that if I wasn't watching every carb (dibeties 2) every cup of water or how much iron I eat(PCOS)(anemia) , or keep up with daily walks (arthritis), I could easily be 300lbs. So being 40lb overweight is NOT the issue.

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Joanna
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

YES! I'm always wary of a workplace that encourages self-care - they're basically setting themselves up to blame you when they work you to death.

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Pille P
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Or especially due to corona not letting the parents accompany a baby to hospital. Or the opposite, not letting a breastfed baby accompany mom to hospital and telling moms to stop breastfeeding.

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Kookamunga
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Well, I believe it depends on what kind of doctor you are there to see and what your medical issue is. I was told at the Ophthalmologist to put my clothes back on. The mammogram lady said I could've kept my pants on. It's very confusing.

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BluEyedSeoulite
Community Member
2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Over specialization is an issue for us in Korea. It seems like each specialist only knows about their specialty and nothing about general health or anything related to their field. My husband has bad allergies and weird sinus structure. Not one sinus doctor has offered allergy meds, they just want to do surgery. Finally saw an allergist, still no meds but wants to do expensive immunotherapy to "cure" his moderate allergies for the low cost of $800/year AND getting rid of our pets. Seems like a daily pill would be a lot cheaper...

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Kookamunga
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Gina seems misinformed. Kidneys? Nephrology. Brain issues? Neurology. Cancer? Oncology, etc. There's not exactly a Geriatric One-Stop-Shopping Center for specialists. It would be great if there was, though.

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Robert T
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

Clinical language is used because it is unambiguous, but it really doesn't help the patient. Good doctors will take the time to explain things to the patient (I appreciate that they may not always have time for this).

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Riley Quinn
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

This attitude probably has its roots in some toxic masculinity initiation thing. Rarely do I hear women bragging about their burnout schedule, but it's bragging rights for some men. Very dangerous bragging rights.

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KetchyMoira Report

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White Paper Tsuru
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2 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

My hospital calls it "failure to thrive". I like that better. Means, might be surviving, but quality of life could be improved if we can find the source of what's slowing you down/troubling you. And maybe we can help you be more you with some supports.

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#30

Things-Denormalize-Health-Twitter

ryjodo Report

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Vicky Z
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2 years ago (edited) DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

I don't get what he means.... the term is quite specific in med books and it's a phrase that is used a lot when you are studying the patient's everyday life! Does he mean they use it wrong?

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