These 3 Kids Are Going Blind, So Their Parents Took Them On An Unforgettable Trip Around The World
Blink is a new extraordinary documentary by National Geographic which shows a family with 4 children, 3 of whom are destined to go blind due to a rare genetic disorder.
Edith Lemay and SĆ©bastien Pelletier, who are the parents of 13-year-old girl Mia and three boysāLĆ©o, 11, Colin, 9, and Laurent, 7āset out on a trip around the world to see all of its beauty while their kids still can.
More info: National GeographicĀ
When 3 of their 4 kids were diagnosed with a rare genetic disorder causing vision loss, the family set out on a trip around the world to experience all its beauty while their kids still can
Image credits: National Geographic
Image credits: National Geographic
Image credits: National Geographic
The last 6 years were truly devastating for the family from QuƩbec, since their daughter Mia and the two youngest boys were diagnosed with retinitis pigmentosa, a rare genetic disease in which the cells of the retina slowly die.
āThe hardest part with the diagnosis was inaction. Thereās nothing they can do about it. Thereās no treatment,ā Edith shared.
The parents couldnāt do anything about the progress of the disease, but they realized that at least they could give their kids some unforgettable experiences that would stay in their memories for a lifetime.
āWe donāt know how fast itās going to go, but we expect them to be completely blind by mid-life,ā the parents said and added that Miaās impairment advisor suggested they fill her visual memory with pictures from books.
āI thought, Iām not going to show her an elephant in a book; Iām going to take her to see a real elephant,ā Edith said. āAnd Iām going to fill her visual memory with the best, most beautiful images I can,ā she added.
The familyās 3 kids were diagnosed with retinitis pigmentosa, a rare and incurable disease that leads to severe visual impairment
Image credits: National Geographic
Image credits: National Geographic
Image credits: National Geographic
This understanding led the family to an inspiring year-long journey across 24 countries. The parents asked their kids to create a bucket list of things they wanted to see and do, which included watching a desert sunset, drinking juice while riding a camel, riding horseback in Mongolia, making friends in other countries, sleeping on a train and many others.
āWe were focusing on sights,ā SĆ©bastien explained. āWe were also focusing a lot on fauna and flora. Weāve seen incredible animals in Africa but also elsewhere. So we were really trying to make them see things that they wouldnāt have seen at home and have the most incredible experiences,ā he added.
Therefore, during the journey, LƩo got to see elephants on safari, Mia swam with dolphins, Edith rode a hot-air balloon in Cappadocia while SƩbastien saw the historic site of Angkor Wat and Colin realized his dream of sleeping on a moving train. The entire family made friends with local people and experienced magically beautiful wildlife.
Edith Lemay and SƩbastien Pelletier set themselves a goal to fill the memories of their kids with breathtaking destinations and once-in-a-lifetime encounters
Image credits: National Geographic
Image credits: National Geographic
Image credits: National Geographic
Image credits: National Geographic
The film Blink will be released by Walt Disney Studios in 150 theaters in the U.S. and Canada beginning October 4.
āItās a testament to familial strength and resilience in the face of adversity,ā shared Edmund Stenson, who directed the film. āYes, the diagnosis is visual impairment-specific, but itās really a more broad story about what do you do when the world throws you something? How do you respond? How do you react?ā
National Geographicās cameras followed the family for 76 days as they traveled Namibia, Mongolia, Egypt, Laos, Nepal and Turkey and managed to capture this in the most intimate way.
āKeeping our camera at kid-height and intimately close to the family, we aimed to immerse the audience in the observational realities of their daily life, as well as the subtle relationships between each of them. This is a film built on looks, gestures and tiny details ā the very fabric of our relationships with one another,ā the directors Edmund Stenson and Daniel Roher explained.
āBy balancing (the parentsā grief) with a more innocent and joyous tale of childlike wonder and discovery, we felt we could go beyond a mere catalog of locations and capture something universal,ā they added.
The way the family faced this life-altering news showed that the uncertain future does not define the present
Image credits: National Geographic
Image credits: National Geographic
Image credits: National Geographic
āDonāt lose sight of what matters,ā says the main message of Blink, and I suddenly remember one of my favorite quotes from Roald Dahl, which perfectly describes the attitude of this wonderful family: āAnd above all, watch with glittering eyes the whole world around you because the greatest secrets are always hidden in the most unlikely places. Those who donāt believe in magic will never find it.ā
Edith Lemay and SĆ©bastien Pelletier show the entire world that even in those situations where we cannot control anything, thereās still a way to see the light, to cherish life and embrace every single second of it as if itās the most special and the most magical one.
People all over the internet sent supportive and heartfelt messages to the entire family
Iāve been following an artist Paul Castle on instagram who suffers from the same condition, he writes and illustrates kids picture books and is just one of the most wholesome and inspiring people. The resilience that these people who face life altering conditions have is truly amazing. I canāt wait to see this film and share it with my students
Back in the '70s, there was a story about a little girl named Elizabeth who had leukemia. The hospital had a whole ward of children with it, and their cases were all terminal. Elizabeth was, it was agreed, going to recover, but she was losing her hearing. (I don't remember the details, and I was a young girl myself at the time). Elizabeth loved music, especially Christmas music. One of the nursing sisters got the children together and taught them to sing, so they could give Elizabeth a final Christmas concert before she lost her hearing altogether. One of the kids had lost his ability to speak, and felt left out, so the Sister taught him to read music, and he was the page-turner. The story was written by Elizabeth's mother, and she mentioned that all of the other children had passed. It made me cry, but those children giving like that to Elizabeth touched me so much I remember 50 years later.
Iāve been following an artist Paul Castle on instagram who suffers from the same condition, he writes and illustrates kids picture books and is just one of the most wholesome and inspiring people. The resilience that these people who face life altering conditions have is truly amazing. I canāt wait to see this film and share it with my students
Back in the '70s, there was a story about a little girl named Elizabeth who had leukemia. The hospital had a whole ward of children with it, and their cases were all terminal. Elizabeth was, it was agreed, going to recover, but she was losing her hearing. (I don't remember the details, and I was a young girl myself at the time). Elizabeth loved music, especially Christmas music. One of the nursing sisters got the children together and taught them to sing, so they could give Elizabeth a final Christmas concert before she lost her hearing altogether. One of the kids had lost his ability to speak, and felt left out, so the Sister taught him to read music, and he was the page-turner. The story was written by Elizabeth's mother, and she mentioned that all of the other children had passed. It made me cry, but those children giving like that to Elizabeth touched me so much I remember 50 years later.






















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