I've Been Living With Alopecia Universalis For 19 Years And I Show Why It Makes Me Special (23 Pics)
This happened 19 years ago. One morning, I woke up and found a pile of hair in my bed. The next morning, I saw more hair on the pillow and the nightmare began. Alopecia universalis runs very quickly – I lost all hair on the scalp, face, and body for only a few weeks. I was shocked! I was depressed.
My friends were asking me: What’s wrong with you? My answer was: I do not know, I have no idea! I was not prepared for this. The feeling is terrible – I was afraid that something terrible is happening inside me. Something that can kill me. I tried to get treatment, but my own life turned to hell for several years. I was looking for salvation in modern medicine – I swallowed countless colorful pills, I had a lot of corticosteroid injections, I used different lotions, foams, creams, or ointments. I was looking for salvation in traditional medicine – garlic, herbs, acupuncture. I felt guilty that the disease affects my family. My parents were helpless and they were suffering. My girlfriend was with me all the time, she supported me, she loved me … and she was suffering because the only thing I was doing was to seek treatment. Nothing else.
One day, I thought: I must stop this and continue to live normally. I should humbly accept Alopecia Universals as part of my life. I have to allow others to accept me, to be myself again. “Hey,” I said, “you have to keep doing what you love!” I love to be creative, this is one of the things that makes me feel good. I started the project Eyebombing Bulgaria – to humanize things that are broken, ruptured, punctured, tangled, or crumbling with googly eyes. I believe that this project will give a little smile wherever people see the eyes that will take them away from their boring everyday life.
Now I have a loving family and two wonderful children – for them, I am just special, not different. Sometimes I ask myself: “Why do I have Alopecia?” I still do not know. Maybe to win the game with a sense of humor. That’s how I feel right now!
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My older (11 years) has this since before my birth. He didn't let anyone outside family see him without a wig until he met his girlfriend at 35. But for me, this is so normal, and when I meet (or just see) someone without hair it feels so familiar that I instantly like this person :)
My older (11 years) has this since before my birth. He didn't let anyone outside family see him without a wig until he met his girlfriend at 35. But for me, this is so normal, and when I meet (or just see) someone without hair it feels so familiar that I instantly like this person :)
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