One in about 2,500 people has EDS and most people with EDS dont know it. How is this possible?…


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How is this possible?

EDS is a connective tissue disorder that is almost invisible to even the trained eye. It presents as extremely widespread symtoms like chronic pain, gastrointestinal issues, partial and full joint dislocations, memory loss, comprehension issues and many more! Any given person has quite a number of symptoms and everycase is different!

As doctors cannot see connective tissue many EDSers get diagnosed with fibromyalgia and/or chronic fatigue syndrome.

It takes a very expensive, rarely available genetic test or a well versed geneticist to see EDS in a patient.

I have Ehlers Danlos Syndrome and im trying to help people with this condition to be properly treated and diagnosed.

Occassionally i am able to do some photography to show some of our invisible pain and raise awareness for all people with EDS.

I have been working on this for less than a year but hope that with awareness will come better research and treatment for patients with Eds. Please note the bruising is makeup to show the pain of an individual with EDS and while easy bruising is a symptom you don’t need to show such violent bruising to have EDS.

More info: Fb.com

90% of people with EDS are female

EDS feels like living the day after a car crash every day

Our bodies efforts to hold everything in place can lead to pain and even hospitalization